Tag Archives: lyme education

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The Lyme Voices You Didn’t Hear at TBDWG Meeting

The Tick-borne Disease Working Group (TBDWG) issued a public request to hear from patients willing to share their stories for its July 8, 2020 meeting. It’s an important part of these meetings, where the public and the TBDWG members can hear directly from patients, to better understand the dire need for answers and results.

Four of Global Lyme Alliance’s Educational Ambassadors submitted their public comments for this meeting. We’d like to highlight their stories and share them with you now. Below are the unedited submissions from Lyme patients Fawna Bough, Rhonda Howdyshell, Jen Kenley, and Robin Reich.


Fawna Bough

Fawna Bough_TBDWGMy name is Fawna Bough and I have struggled with tickborne diseases (Lyme, Babesia, Bartonella, Ehrlichiosis) for at least 14 years. I struggled for years to get a diagnosis which finally came in 2015. Since then I have been battling these tickborne diseases–most of which the costs have been solely my burden to bear as my insurance refuses to pay for most of the treatments, and my doctor appointments, related to my illness.  I have spent 10s of 1000s of dollars fighting this disease. The financial burden has changed most every plan I had for my life and retirement. I had to retire early from a job that I loved, realized that most of my family and friends thought I was a hypochondriac as I watched them distance themselves from me, and I continue to fight these diseases on a daily basis.

This disease brought me to my knees and almost took my life. I have heart and neurological involvement, have been bedridden, have permanent muscle damage, the list goes on and on… and I still struggle with mobility from time to time. These diseases have disrupted my immune system so much that I have now progressed into other issues i.e. POTS, Reynauds, etc. I will also share that these diseases have sadly changed me from the inside out. My personality morphed into a person that I literally did not recognize and I’m still trying to get myself back.  The neurological suffering of patients like myself is simply indescribable.

I am grateful that the Tick-Borne Disease Working Group is allowing TBD victims to voice their comments as this disease changes the trajectory of your life in every way possible. The barriers that are currently in place that discard us as patients need to be removed quickly and permanently.  There have been a variety of treatments that have been prescribed to me to help me heal; however, because of my diagnosis of TBD, my insurance will not approve those treatments due to their claim that chronic TBD does not exist and/or because the treatments that I prefer lean more toward holistic healing vs. traditional Western medicine. The treatment decisions for any disease should fall solely on the patient. There should be equality toward coverage of both holistic and traditional medicine.

I have suffered long enough, as has my fellow Lyme Warriors.  There are thousands of children that are getting TBD and not being diagnosed and these kids are being set up for a lifetime of suffering.  We have NO RELIABLE TESTING.  We have NO CURE.  Please help us gain equality in treatments.  Please help us.

Thank you for your time and consideration.

Fawna Bough
GLA Education Ambassador, Illinois


Rhonda Howdyshell

gla_rhonda howdyshell_tbdwgJust last week another doctor shared with me that it wasn’t possible to have advanced or undiagnosed Lyme Disease. Find that contrary to my own experience. I was only 8 years old growing up in Northern Virginia when my family thought sending me to camp in the Shenandoah Valley for 6 weeks would be a wonderful adventure! It was horseback riding, pond swimming, hiking, and outdoor showers and privies were all part of my summer adventure! Then one day a counselor was helping to brush and braid my hair when they found an engorged and embedded tick in my hair. It was a big deal and the nurse had to remove it, using a match to burn and make it come off. When I came down with a disseminated rash a while later—they quarantined me with measles. It was determined later it wasn’t measles. My later childhood was marked by allergy issues that had me on antibiotics often. Later I developed a strange blood disorder where I would bruise and bleed upon the slightest bump.

I moved to the Shenandoah Valley in 1979. Ticks were commonplace. Most symptoms Drs and I wrote off to getting older. including thyroid disorder, skin mottling, confirmed arthritis (suspected RA) in my hands and feet, and joint deterioration in my hip that required a replacement to walk.

I retired at 62 early, as the cumulative deterioration was making work very difficult. The next spring I found a tick attached to my chest. I had no bulls-eye, it was only on 8-10 hours. The subsequent flu, neck pain, and facial paralysis didn’t give me a clue. but a migrans rash that appeared on my calf sent me to the doctor and they diagnosed Lyme based on symptoms (note no blood test was administered! Which means the health dept/CDC didn’t have to count the case as confirmed Lyme). The speaking difficulty (not being able to remember words) and cognitive disfunction got more severe. (Like writing this account would have been impossible.). They gave me 14 days of doxycycline. Cured… NO, so I tried to accept my new normal of no energy, cognitive lapses, and arthritis throughout my body as my lot in life.

Then a friend suggested an LLMD doctor and I went to one near me. The blood tests were done and I tested “wildly positive” for Lyme. Treatment of 28 days of Doxy began and I felt some better. Then a course of two antibiotics followed. The treatment was harsh and I was sick (Herxing) daily on it. But still, I felt 60% better and I was grateful. Then I showed the LLMD the massive bruises on my legs and arms (had this since childhood) and a sore that wasn’t healing. Diagnosis? Secondary Lyme infection .. and this time the doctor tried a new trial – the WEIGMAN protocol. I remember it was just before Christmas and I decided to wait until after the holiday and I was tired of being sick every day from the meds. The protocol was cheap and effective, It gave me back my life.! It was a pulsed Mindi / Tindi antibiotic that has proven studies that show a complete kill of spirochetes over others that foster the formation of round cysts. (you know the ones that hatch out after the antibiotic cure and then multiply so you stay sick). It included boosting the immune system before starting it, to allow your body to fight along with the meds.

So my advice is:

  1. Change the CDC recommended 14-28 day doxycycline treatment to Weigman Protocol.
  2. Recognize that Lyme disease not addressed or under-treated will resurface when your body allows the remaining spirochetes to multiply.
  3. Encourage doctors to think “advanced” Lyme disease when seeing a patient with disseminated migrans rash, joint pain, thyroid disorders, MS, Parkinson like symptoms, and temperature of 97.
  4. Order health departments to count all cases of diagnosed Lyme even without a blood test (you see the test is so unreliable docs aren’t bothering to do it) – so we have no idea the number of cases. Keep in mind over a million dogs are diagnosed every year in the US.

Rhonda Howdyshell
GLA Education Ambassador, Virginia


Jen Kenley

As a patient with Lyme disease, and an Ambassador for the Global Lyme Alliance, it is difficult to put into tangible words what I want to convey to your team. The Lyme community just lost one of our greatest advocates this past week (as of June 24th), Dr. Neil Spector. Following your last meeting, I know that I speak for many Lyme patients when I say that we are deflated, crushed, and incensed by things that were said.  Most pointedly at the disregard for two million lives (“Post Treatment Lyme Disease” patients) in refusing to update the CDC’s treatment guidelines. The CDC’s guidelines have and continue to fail the Lyme community shamefully.  I know this personally, I have done the CDC’s advises Doxycycline regimen and am left with almost no immune system (after years of “PTLD”), terrible arthritis, ongoing night sweats, heart abnormalities and debilitating brain fog and loss of memory.  I am 33 years old, crying over my 5-year-old son at night because there is nothing else that can be done for me because of the “guidelines” in place. In September we had to sell our house to pay medical debts, because again, thanks to the CDC’s guidelines my continued treatment is not covered by insurance.  There have been NUMEROUS studies indicating that Lyme disease can hide in the joints and that people are affected for years despite these Doxycycline doses (Please see Tulane and John Hopkins studies). Many suggest a three-antibiotic cocktail and others, like Dr. Sapi (New Haven) propose enzymes and drugs to break down biofilms in remaining bacteria to enhance antibiotics.  To be completely candid, myself and a lot of others in the Tick / Vector-Borne Disease community have lost faith in the ability of this group to make empathetic, fact-based decisions following this past meeting. With Lyme now in all 50 states and enough PTLD patients to fill the city of Chicago, we can no longer be ignored.  We are pleading with every one of you to revisit and amend the CDC guidelines. For those unwilling to bend, please put aside your conflicts of interest and stand on the side of history that fights for humanity.

My life (and my 5 year old’s) is (are) in your hands.

Jen Kenley
GLA Education Ambassador, Tennessee


Robin Reich

gla_robin reich_tbdwgI need HELP in the Orlando Florida area… Will a doctor please message me if willing and able to assist me with this Babesia created with Lyme Disease. I have had it too long now…..and I am frightened. I want to live a wholesome life as best I can and I can not find a doctor who is legally able to treat me past the 21 days IV antibiotic treatment. Unless I PAY CASH. Also, is an Infectious Disease doctor LEGALLY ABLE to take care of patients for this (Babesia/Lyme) yet past the 21 day IV antibiotics? If so, who? I am having a very difficult time trying to find a doctor who will treat me past 21-day treatment and is able to use my health insurance coverage of any kind. I am going on 5 years with the exact symptoms of Babesia after having been treated for Lyme Disease with an integrative and natural medicine doctor who was guided by Dr. Richard Horotwiz’s books out of NY. The book entails details and treatments of my disease(s) to the T. I have gone to ANOTHER 2 local infectious doctors here in Orlando, Florida who say they DO NOT treat Lyme Disease. This is SURREAL at this day and age … I don’t have $$$ thousands of dollars to treat myself at [redacted] doctors … Sadly, I can buy a gun but I can not use my $384.00 a month Health Insurance to treat my disease when there ARE treatment options available out there, but only for cash … or am I severely missing something here?

Also, I’m on the backstretch of this thing or things/diseases Lyme or and Babesia…And I am already in debt from treating basic Lyme … 2 years unable to work (I only made six figures). And yes I have the credit cards I am paying off for that paid for treatment and or living without being able to work … I am a strong person and I insist on working again … I am working … willing to work … never took charity … have health insurance and yet … there ARE solutions out there … documented … but I need large amounts of cash to use them.

Maybe I will try this angle … Who has about $5,000 to $20,000 to give me to travel and treat my disease because of the Health MR. OZ’s of our world do not believe Insurance should pay for treatments found for my illness???? Please message me … I will keep all receipts to assure you that that is where the money will go … And I am an organ donor so science can study this mess … But … GOD BLESS AMERICA there are options out there but I have to be wealthy in order to use them!!

I am going on 10 years since my positive Western Blot diagnosis of Lyme Disease… and I do realize Babesia is a co-infection… However, I am currently treating myself -no doctor supervision. Because I choose to pay my mortgage … and possibly die in my own house without legal professional treatment versus moving into a tent because I had to pay CASH for the treatment … I am not sure if the “Samsara Herbs TICK Immune Support” will treat Babesia or only Lyme Disease … I started to lightly herx after 2 days so it’s doing something. Herx symptoms include morning headaches, eye inflammation/blurry, sweating, anxiety, neuropathy on the entire left side and is now agitated with tingling hot/cold increases. Or…. are these Herbs bringing the Lyme symptoms back that went into hiding versus KILLING these miniature beasts??

Who or where do I go for help? My mind has become boggled or continues to stay fogged with all the internet info and NO SOLID covered health insurance doctors who can legally treat me.

Robin Reich
GLA Education Ambassador, Florida

 

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Lyme Education: Hurley, New York

Learn about Lyme disease and other tick-borne illnesses

Hosted by GLA Lyme Education Ambassador

Date: Thursday, April 2, 2020
Time: 1:30 PM
Location: Hurley Reformed Church, 11 Main Street, Hurley, NY 12443
Cost: Free to the public
Learn morehttp://hurleyreformedchurch.org/

lyme education

Lyme Education: Camden, ME

Program on Lyme Disease and Pets

Paula Jackson Jones, cofounder of Midcoast Lyme Disease Support and Education, shares her harrowing journey with Lyme disease and discusses how tick-borne illnesses impact pets. She’ll talk about prevention, spotting the symptoms of infection, and best care for pets.

Date: Saturday, March 14, 2020
Time: 10am
Location: P.A.W.S., 123 John Street, Camden, ME, 04843

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Lyme Education: New Baltimore, NY

The New Baltimore Conservancy presents Avoiding Lyme Disease

Date: March 11, 2020
Time: 7:30 pm
Location: Cornell Hook and Ladder, 77 Gill Road, New Baltimore, NY
Cost: Free to the public

Join Cornell University’s Joellen Lampman as she talks about the different ticks in our areas and their biology, the diseases they carry, dealing with ticks on your property and how to protect yourself and others from being bitten. Free tick removal kits for attendees that agree to participate in a short survey. Admission is free and open to the public.

Learn more at https://newbaltimoreconservancy.org/calender/

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Lyme Education Ambassadors: Active In the Community

Global Lyme Alliance’s (GLA) Lyme Education Ambassador Program (LEAP) has been busy since it began in August 2018, thanks to a growing team of dedicated volunteer Ambassadors

 

Working together to spread awareness drives change. This is especially true when it comes to GLA’s education Ambassadors sharing information about tick bite prevention and Lyme disease detection and awareness with members of the community. The more we share these important messages, the more we will prevent future cases and help those currently living with the disease.

GLA is extremely appreciative of our Ambassadors; a team of trained volunteers who proactively go out into their communities raise awareness about Lyme disease. They  present to a range of groups, including elementary, middle, and high schools, college students, medical students, senior centers, public libraries, health and wellness fairs, corporate wellness events, and more. As Sara Tyghter, GLA’s Director of Education and Outreach puts it, “our education Ambassadors play an important role in strengthening our efforts to protect people from this insidious disease.”

Here’s what some of our Ambassadors have been up to …

GLA Ambassador Rika Keck presenting in Woodbury, CT

Rika Keck, FDN-P, ACN, CMTA held an event called “Ticks 101: How to Prevent Lyme Disease” at a local Connecticut library in early March. She covered tick bite prevention, how to protect yourself, your family and pets, and addressed common myths about ticks and Lyme disease. Rika shared that “It was a great turnout Everyone in the audience knew someone with Lyme disease.” Rika’s next educational program will be at the New Milford Public Library on April 11, 2020.

 

GLA Ambassador Sarah Maxwell presenting at University of Texas-Dallas

Sarah Maxwell, a professor at University of Texas at Dallas, presented “Lyme Disease 101: Risks and Prevention” to a standing room only crowd of 180 medical students. It’s great to see the high level of interest in the topic of ticks and Lyme disease by an audience of medical students, especially in the state of Texas. Educating future healthcare providers is a key element of helping future generations of patients.

GLA Ambassador Lauren Lee presenting in Jacksonville, FL

Lauren Lee, RN had a table at a local Health and Wellness fair in Jacksonville, Florida in January. She wrote “Providing lots of education and having fun networking!” Fairs and events like this are a wonderful venue to share information about Lyme disease as it may be the first opportunity for many of the attendees to learn about the disease and how to protect themselves.

GLA Ambassador Bill Beesmer sharing Lyme awareness in Hurley, NY

Bill Beesmer held an educational event at his local high school in Greene County, New York in early March. He used our curriculum for teachers and workbooks for students in order to provide interactive learning. Bill’s next educational program will be at the Hurley Reformed Church on April 2, 2020. The discussion will include information about Lyme disease and other tick-borne illnesses and  tick bite prevention. Joining him are speakers Kenneth Bock, M.D., of Bock Integrative Medicine, and Mayla Hsu, Ph.D., Director of Research & Science, GLA.

Mark Liberto held two presentations at Clarion University in Clarion, Pennsylvania in early March. He educated over 200 students in two separate classes; the first was comprised of freshman biology majors, the second was a general audience of students about Lyme disease and tick bite prevention.

lobbying for lyme
Team GLA, L-R: Ambassadors Mark Liberto, BreAnna Liberto, Jen Kenley, Melinda Sander, GLA Director of Education and Outreach Sara Tyghter, and GLA Peer Mentor Kiki Penn

In February, Sara Tyghter was joined by Ambassadors Mark Liberto, Melinda Sander, and Jen Kenley for the Center for Lyme Action Network Fly-In in DC. Sara wrote “we all had the opportunity to meet with our state representatives to lobby for funding to support the Kay Hagan Tick Act Bill.”

You can help educate the community too!

If you are interested in becoming an Ambassador, click here to learn more. We are always looking for dedicated people who are engaged, energetic, and passionate about spreading awareness and educating people about Lyme and other tick-borne diseases. As a GLA Ambassador you will make a difference in the community and help us achieve our mission. It’s time to take a LEAP for prevention!

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Lyme Education: Woodbury, CT

Ticks 101: How to Prevent Lyme Disease

Rika Keck, an education ambassador with Global Lyme Alliance will present Ticks 101: How to Prevent Lyme Disease, includes information on tick-bite prevention, how to protect yourself, your family and pets, common myths about ticks and Lyme disease and more.

Date: Saturday, March 7, 2020
Time: 11am
Location: Woodbury Public Library, 269 Main Street South, Woodbury, CT
Cost: The program is free and open to area residents; registration is required. Those wishing to register may visit www.woodburylibraryct.org or call 203-263-3502 for more information.

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Lyme Education: London, UK

CALLING TIME ON LYME: UK LYME DISEASE CONFERENCE 2019

This conference brings together some of the leading medical professionals in the field of tick borne diseases and offers a unique day programme where the latest in research, treatment and therapy is shared with medical practitioners and patients in the UK.

There will be an open Q&A session at the end of the day for patients and medical practitioners to gain answers from these global experts as well as various exhibitors and charities on hand to give you help, support and advice.

Date: Saturday, November 16, 2019
Time: 9:30am – 5:30pm
Location: Council Chamber & Regent Suite, Hallum Conference Centre, 44 Hallam Street, London, W1T 3DD
Cost: £50
Tickets: https://lymediseaseclinic.co.uk/product/lyme-disease-conference-2019/

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Lyme Education: Central Mass Lyme Conference

The Central Mass Lyme Foundation, Inc. will host its 4th Lyme Disease and Wellness Conference

This event will explore the complexities of Lyme and other vector-borne diseases and include presentations by experts in primary care, research, testing, and much more. Learn the facts about Lyme disease and how you can protect yourself and your family. This conference is not just for people suffering from this disease but for anyone looking for early signs to prevent the disease from becoming chronic.

Date: Saturday, November 16, 2019
Time: Registration at 8:30am | Conference from 9am to 4:30pm
Location: Sturbridge Host Hotel & Conference Center, Sturbridge, MA
Tickets: Tickets are on SALE NOW and are $30.00 each. A brown bag lunch is included if you prepay for your ticket. Tickets at the door will be $40.00 each cash or a check made payable to “CMLF”. No brown bag lunch will be provided.

ILADS boston

ILADS: Boston 2019

ILADS will host its 20th Annual Scientific Conference will be held on Thursday, October 31 – Sunday, November 3, 2019, at the Westin Copley Place in Boston, MA.

Learn more at ilads.org/

 

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Lyme Education: Block Island, RI

A Talk On Ticks

The Nature Conservancy is sponsoring a presentation by Dr. Peter Krause about his 25-year study of Lyme and other tick-borne diseases on Block Island. 

Date: Saturday, October 26
Time: 12:30pm
Location: Island Free Library

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Lyme Education: Thurman, New York

What You Need to Know About Lyme and Other Tick-borne Diseases

Presentation by Holly Ahern, Associate Professor of Microbiology at SUNY Adirondack, is co-founder and vice president of the Lyme Action Network, and nationally recognized as an expert in this field.

Date: Tuesday, September 24, 2019
Time: 6:30pm
Location: Thurman Town Hall, 311 Athol Road, Thurman, NY 12810
Cost: Free and open to the public

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Lyme Education: LDA/Columbia Annual Scientific Conference

Lyme & Other Tick-Borne Diseases: 20th Annual Scientific Update for Clinicians & Researchers

Organized by LDA and Columbia University

Dates: September 21 & 22, 2019

Location: Hilton Penn’s Landing in Philadelphia, PA.

This conference is designed for medical & health professionals & researchers, but it is also open for registration to the general public.

Featured speakers are clinicians and researchers from across the US and other countries. Click here for more information and to register.

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Lyme Education: Katonah, NY

Tick Awareness at Muscoot Farm

Date: Saturday, September 14, 2019
Time: 2:00 PM
Location: Muscott Farm, 51 Route 100, Katonah, NY 10536
Presented by: Christopher Pappas, Ph.D., Associate Professor and Chair of Biology, Manhattanville College with Captain Dorkyman, the Superhero from the recent children’s book, Captain Dorkyman, The Tick Busting Superhero

Dr. Pappas will educate about tick biology and life cycle, tick identification and Lyme disease prevention, and will bring live ticks for the audience to see.

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Lyme Education: Martinsville, VA

Alpha Gal: New Research, New Hope

Date: Saturday, August 24
Time: 8 am to 4 pm
Location: New College Institute, 191 Fayette Street, Martinsville, VA, 24112
Tickets: click here

Speakers:

  • Jennifer Platt, CEO Tick Warriors, Co-founder Tick-borne Conditions United
  • John Bianchi, VP of Product Development, Revivicor, Inc.
  • Beth Carrison, Co-founder Tick-borne Conditions United“An Update on Advocacy and Going Forward”
  • Dr. Laurie Bianchi, RDN, Dept. of Health & Human Performance, Radford Univ.
    “Nutrition, Dining Out and Alpha Gal”
  • Dr. Donald Liebell, Liebell Clinic for Chronic Pain & Wellness Solutions
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Lyme Education: Southold, NY

Suffolk County Summer 2019 Tick Talks

Participants will learn about the variety of ticks found in Suffolk County, the diseases caused by ticks, protective measures that prevent tick bites, proper tick removal techniques, and steps to take if bitten. Among the diseases carried by ticks on Long Island are Lyme disease, babesiosis, ehrlichiosis, and Rocky Mountain spotted fever.

Date: August 1, 2019
Time: 7pm – 8:30pm
Location: Southold Free Library (at Southold Presbyterian Church), 53705 Main Rd., Southold, NY 11971
Preregister: (631) 765-2077

lyme education

Lyme Education: North Hampton, NH

Talk about all things ticks including: bite prevention, species found in NH, checks and removal, and treatments. Followed by Q&A.

Guest speakers: Martha Wassell, MT, MPH, CIC and Craig Kelleher, DVM
Date: Thursday, August 1, 2019
Time: 6pm – 7:30pm
Location: North Hampton Public Library, 237A Atlantic Avenue, North Hampton, NH
More info: https://nhplib.org/

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Lyme Education: Cutchogue, NY

Suffolk County Summer 2019 Tick Talks

Participants will learn about the variety of ticks found in Suffolk County, the diseases caused by ticks, protective measures that prevent tick bites, proper tick removal techniques, and steps to take if bitten. Among the diseases carried by ticks on Long Island are Lyme disease, babesiosis, ehrlichiosis, and Rocky Mountain spotted fever.

Date: July 23, 2019
Time: 6:30pm – 8:00pm
Location: Cutchogue New Suffolk Free Library, 27550 Main Rd., Cutchogue, NY 11935
Preregister: (631) 734-6360

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Lyme Education: Riverhead, NY

Suffolk County Summer 2019 Tick Talks

Participants will learn about the variety of ticks found in Suffolk County, the diseases caused by ticks, protective measures that prevent tick bites, proper tick removal techniques, and steps to take if bitten. Among the diseases carried by ticks on Long Island are Lyme disease, babesiosis, ehrlichiosis, and Rocky Mountain spotted fever.

Date: July 15, 2019
Time: 6:30pm – 8:00pm
Location: Riverhead Free Library, 330 Court St., Riverhead, NY 11901
Preregister: (631) 727-3228

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Lyme Education: Hampton Bays, NY

Suffolk County Summer 2019 Tick Talks

Participants will learn about the variety of ticks found in Suffolk County, the diseases caused by ticks, protective measures that prevent tick bites, proper tick removal techniques, and steps to take if bitten. Among the diseases carried by ticks on Long Island are Lyme disease, babesiosis, ehrlichiosis, and Rocky Mountain spotted fever.

Date: July 11, 2019
Time: 7pm – 8:30pm
Location: Hampton Bays Public Library, 52 Ponquogue Ave., Hampton Bays, NY 11946
Preregister: (631) 728-6241

 

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Lyme Education: London, UK

Lyme Disease UK Seminar Series

A Morning with Dr. Joseph Jemsek MD, FACP, AAHIVS
Lyme Disease: Insights into Diagnosis, Treatment and Recovery

Date: Saturday 29th June 2019
Time: 9.30am – 1.30pm
Venue: Central London – to be confirmed

Click here for tickets

mary beth pfeiffer

Lyme Education: Southampton, NY

Mary Beth Pfeiffer, author of Lyme: The First Epidemic of Climate Change, will discuss the rise of ticks in eastern Long Island.

Date: June 19, 2019
Time: 5:30 pm
Location: Rogers Memorial Library, 91 Coopers Farm Rd, Southampton, NY 11968
For information: call (631) 283-0774 x 523.

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Lyme Education: New Canaan, CT

TICKED OFF! INVASIVE PLANTS AND LYME DISEASE – A SURPRISING CONNECTION

Aaron Lefland, executive director of New Canaan Land Trust, surrounded by invasive Japanese barberry on Land Trust property. This presentation will look at the ties between the invasive plant, and ticks known to carry Lyme disease.

Date: June 12, 2019
Time: 6:30 pm – 7:30 pm
Location: New Canaan Library, 151 Main Street, New Canaan, CT 06840
Learn more: https://newcanaanlibrary.org/event/ticked-off-invasive-plants-and-lyme-disease-a-surprising-connection/

Lyme Education: Atlanta, GA

Community Lyme Talk
7-Practical Tips to Prevent & Protect from Lyme Disease

This one-hour informational talk is meant to educate and offer practical tips on how to protect yourself and loved ones from acquiring Lyme disease as well as what to do should you get bitten.

Date: June 9, 2019
Time: 2pm
Location: Wylde Center – Edgewood Learning Center, 1503 Hardee St Atlanta, GA
Learn more: https://www.pamgould.net/upcoming-classes

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Colorado Tick Talk: Staying Tick Safe in the Outdoors

Lyme Education: Colorado Tick Talk

Date: May 28, 2019
Time: 6:30pm – 8:00pm
Location: REI, 4025 S College Ave, Fort Collins, CO 80525
Group size: 40
Instructor: Sharon P Austin

Colorado is a state where many residents both work and recreate in the outdoors. Did you know Colorado is home to nearly 30 species of ticks, some capable of transmitting diseases that can cause illness in people, pets and wildlife? Coloradans and their companion animals, can unknowingly be exposed to additional risks of contracting tick-borne diseases (TBD), particularly Lyme disease, when traveling to regions where tick prevalence and diseases are greater. Tick species are expanding in both range and prevalence (CDC), nationally and internationally. Currently tick-borne diseases are the fastest growing vector borne diseases, far above those transmitted by mosquitoes and fleas. The most common TBD, Lyme Disease, is now reported in all 50 states. Regardless of where or how exposure to ticks may occur, Coloradans need access to accurate information regarding risk, prevention and potential disease. Though not every tick bite may transmit disease, prevention measures should always be taken and every tick bite should be treated properly. Be tick-wise and keep enjoying the fabulous outdoors!

colorado tick talk_lyme education

Colorado Tick Talk: Staying Tick Safe in the Outdoors

Lyme Education: Colorado Tick Talk

Date: May 21, 2019
Time: 6:30pm – 8:00pm
Location: REI, 14696 Delaware St, Westminster, CO 80023
Group size: 50
Instructor: Sharon P Austin, GLA Lyme Education Ambassador

Colorado is a state where many residents both work and recreate in the outdoors. Did you know Colorado is home to nearly 30 species of ticks, some capable of transmitting diseases that can cause illness in people, pets and wildlife? Coloradans and their companion animals, can unknowingly be exposed to additional risks of contracting tick-borne diseases (TBD), particularly Lyme disease, when traveling to regions where tick prevalence and diseases are greater. Tick species are expanding in both range and prevalence (CDC), nationally and internationally. Currently tick-borne diseases are the fastest growing vector borne diseases, far above those transmitted by mosquitoes and fleas. The most common TBD, Lyme Disease, is now reported in all 50 states. Regardless of where or how exposure to ticks may occur, Coloradans need access to accurate information regarding risk, prevention and potential disease. Though not every tick bite may transmit disease, prevention measures should always be taken and every tick bite should be treated properly. Be tick-wise and keep enjoying the fabulous outdoors!

mary beth pfeiffer

Lyme Education: Woodstock, NY

The Growing Threat of Lyme Disease and Ticks

Date: May 18, 2019
Time: 2:00 pm -3:00 pm
Location: Golden Notebook Bookstore, 29 Tinker Street, Woodstock, NY 12498

Investigative journalist Mary Beth Pfeiffer will talk about her book, “Lyme: The First Epidemic of Climate Change”.

Free and open to the public.

lyme education

Lyme Education: Riverhead, NY

Tick-Borne Disease Educational Symposium

This event is intended to bring together some of the greatest minds in the field of Tick-Borne Illness to educate both the public and the medical community here on the East End of Long Island. The event will last all day and will include an allergen-friendly buffet-style lunch with gourmet-wraps in the upstairs terrace above the conference room where you can visit all of our exhibitors and vendors!

The morning session will be geared towards professionals in the healthcare field, while the afternoon session will be more focused on patient and public concerns in regards to Tick-Borne Illnesses.

Date: Saturday, May 18, 2019
Time: 9:00am – 5:00pm
Where: Long Island Aquarium, 431 East Main Street, Sea Star Ballroom, Riverhead, NY 11901
Registrationhttps://www.eventbrite.com/e/tick-borne-disease-educational-symposium-at-the-long-island-aquarium-tickets-58734492448

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Lyme Education: Middletown, NJ

Psychiatric Manifestations of Lyme and Other Tick-Borne Diseases in Adults and Children: An Overview

Dr. Robert Bransfield, Clinical Associate Professor of Psychiatry at Rutgers-Robert Wood Johnson Medical School, is a foremost expert on how Lyme disease affects the brain.

Presentation is sponsored by the Monmouth County Mental Health Association.

Date: May 14, 2019
Time: 7:00 pm
Location: Middletown Library, 55 New Monmouth Rd, Middletown, NJ 07748
Tickets: Open to the public

lyme education

Lyme Education: Clayton, GA

Community Lyme Talk
7-Practical Tips to Prevent & Protect from Lyme Disease

This one-hour informational talk is meant to educate and offer practical tips on how to protect yourself and loved ones from acquiring Lyme disease as well as what to do should you get bitten.

Date: May 13, 2019
Time: 5:30pm
Location: Northeast Georgia Teaching Kitchen, 46 Plaza Way, Clayton GA
Learn more: https://www.pamgould.net/upcoming-classes

lyme education

Lyme Education: Andover, OH

3rd Annual Lyme Disease Symposium: Little Tick, Big Problem
Hosted by the Northeast Ohio Lyme Foundation

Date: May 11, 2019
Time: 9am – 5pm
Location: VMPAC, 5571 US Rt. 6, Andover, Ohio 44003
Learn more: https://www.eventbrite.com/e/3rd-annual-lyme-disease-symposium-tickets-55618408156

lyme education

Lyme Education: Sacramento, CA

Sacramento Lyme Picnic with Dr. Jamie Kunkle 

Celebrate Lyme awareness month and socialize with local Lyme community with this year’s annual Sacramento Lyme Picnic! Bring (chosen) family, friends, and food and chat with other Lymies!

Date: May 5, 2019
Time: 12pm – 3pm
Location: Rusch Community Park, 7801 Auburn Blvd., Citrus Heights, CA
Learn more: https://www.facebook.com/events/2131294173573594/

lyme education

Lyme Education: Monroeville, PA

Third Annual Tick-Borne Disease Patient Symposium
“Lyme, PANS and Associated Disorders”

Date: Saturday, May 4, 2019
Time: 8:30 AM – 5 PM
Location: Monroeville Convention Center, 209 Mall Plaza Boulevard, Monroeville, PA 15146
Keynote Speaker: Kenneth A. Bock, MD, FAAFP, FACN, CNS, “Brain Inflammation: The Role of a Dysregulated Immune System in Lyme and PANS”

Tickets: https://www.eventbrite.com/e/pa-lyme-2019-patient-symposium-tickets-57871279555

lyme education

Lyme Education: Binghamton, NY

2019 Lyme Conference
Hosted by Binghamton University and Southern Tier Lyme Support

This conference is intended for a wide audience including primary care physicians, neurologists, health professionals and the general public, confronting the rapid increase of Lyme disease infections in New York State. The conference lectures will increase participants’ knowledge of the risk of Lyme disease and co-infections, tick infectivity and distribution, and the diagnosis and treatment of tick-borne disorders and overlapping medical conditions.

Date: Saturday, May 4, 2019
Time: 8 am
Registerhttps://stlyme.org/general-public-registration/

lyme education

Lecture: Updates & Breakthroughs: Battling the Unknown and the Unseen

Hear from both Lyme patients as well as scientists, including Joel Tabb, Ph.D., of Ionica Sciences, who are on the front lines of tick-borne disease research. You’ll learn about Lyme disease, symptoms, and what is being done to tackle this growing epidemic. A question and answer session will follow.

Date: May 1, 2019
Time: 6:00pm – 8:00pm
Location: Mohawk Valley Community College

GET TICKETS

lyme education ambassador program_calendar

Lyme Education: Whitinsville, MA

Tick Talk by Terri

Learn about tick prevention and Lyme disease. No registration is necessary.

Date: April 29, 2019
Time: 6:30pm – 7:30pm
Where: 76 Church Street, Whitinsville, MA

lyme education

Lyme Education: Atlanta, GA

Community Lyme Talk
7-Practical Tips to Prevent & Protect from Lyme Disease

This one-hour informational talk is meant to educate and offer practical tips on how to protect yourself and loved ones from acquiring Lyme disease as well as what to do should you get bitten.

Date: April 28, 2019
Time: 2pm
Location: Wylde Center – Edgewood Learning Center, 1503 Hardee St Atlanta, GA
Learn more: https://www.pamgould.net/upcoming-classes

 

lyme education

Lyme Education: Augusta, ME

Midcoast Lyme Disease Support & Education Conference

Date: April 26, 2019
Time: 8am – 5pm
Where: Augusta Civic Center, Augusta, ME
Learn more: https://conference2019.mldse.org/

lyme education ambassador program_calendar

Lyme Education: Whitinsville, MA

Ticks are No Fooling Matter

Learn about tick prevention and Lyme disease. No registration is necessary.

Date: April 1, 2019
Time: 5:00pm – 6:30pm
Where: Family Karate Center, 96 Church Street, Whitinsville, MA

Note: If you can’t make April 1, there will be a talk on April 29th at 76 Church St, Whitinsville MA

lyme education

Lyme Education: Lebanon, CT

Experts will share information about testing, common myths and misconceptions, and diagnostics. Your registration includes the presentations and lunch provided by The Foodie Farmacy.

Location: Lebanon Town building. 37 R. West Town St., Lebanon, CT
Date/Time: Saturday March 30, 2019 10am – 3pm
Registration Fees: Early Bird special before Feb. 22, 2019, $75 (After Feb. 22, 2019 $99)
Ticketsbit.ly/2TfwciU


Note: Listing for information purposes only. GLA does not endorse any specific content or treatment.

lyme education

Lyme Education: Quogue, NY

Tick-Borne Diseases – What You Need to Know

Chances are that you, or someone you know, has been diagnosed with Lyme or another tick-borne disease. Jerry Simons, RPA-C, a member of the Medical Advisory Panel of Stony Brook Southampton Hospital’s Regional Tick-Borne Disease Resource Center, will speak about the types of diseases that are carried by the different species of ticks found on Eastern Long Island, and the symptoms, diagnostic tests, and treatment options that are available. Tips on preventing tick bites will also be shared. Each attendee will receive a free tick removal kit. There will be ample time for Q & A.

Date: March 27, 2019
Time: 7:00 pm – 8:00 pm
Where: Quogue Wildlife Refuge, 3 Old Country Road, Quogue, NY
Registrationhttps://quoguewildliferefuge.org/event/tick-borne-diseases-what-you-need-to-know/

lyme education

Lyme Education: La Crosse, WI

Learn About Lyme Workshop

Lyme and other tick-borne diseases continue to rise in our area.  Hear from experts in this field, who will share evidenced-based information and education on this rapidly growing health concern.  Whether you are looking for prevention tips or are suffering the effects of a tick-borne disease, this day is for you.  Please join us as we discuss the number one vector-borne disease in the United States. Gluten Free/Dairy Free lunch is included. This event is supported by the Wisconsin Lyme Network and the Minnesota Lyme Association.

Date: March 23, 2019
Time: 9:00am – 4:00pm
Where: Black River Beach Neighborhood Center, 1433 Rose St, La Crosse, WI 54603
Cost: $10
Learn more:
https://www.cityoflacrosse.org/parksandrec/calendarofevents/#event|learn-about-lyme-workshop-555024-19|12716

lyme education

Lyme Education: Deerfield, MA

Dr. Stephen Rich from the University of Massachusetts Amherst, will present “What Every Gardener Needs to Know About Ticks and Tick-borne Diseases” at the Western Massachusetts Master Gardener Association (WMMGA) Garden Symposium at Frontier Regional School is scheduled for Saturday, March 23, from 8:45 a.m. to 2:15 p.m. with a lunch available at noon.

Date: March 23, 2019
Time: 8:45 am – 2:15 pm
Where: Frontier Regional School, Deerfield, MA
Learn morehttps://www.wmmga.org/content.aspx?page_id=4002&club_id=101643&item_id=939841

 

lyme education

Lyme Education: Summerdale, PA

Thursday, March 21, 6 p.m. to 8 p.m. 
Central Penn Business College Conference Center
Susquehanna and Yellow Breeches Room
600 College Hill Rd, Summerdale, PA 17093

Registration is required
Call (717) 975-2235 or click here to register online

Experts include:
– East Stroudsburg University Northeast Wildlife DNA Lab Director, Nicole Chinnici
– Bureau of Epidemiology Pennsylvania Department of Health, Leah Lind
– Associate Professor of Microbiology Suny Adirondack and member of the Federal Tickborne disease working group, Holly Ahern
– PA Lyme Resource Network Chair, Julia Wagner
– Garth Ehrlich, Ph.D. Department of Microbiology and Immunology, Drexel University
– Gettysburg Osteopathic Family Health center, Robert Mauss, D.O.

lyme education

Lyme Education: North Richland Hills, TX

The North Texas Lyme Group hosts Lyme expert Daniel Cameron, MD, MPH. Dr. Cameron is a nationally recognized leader for his expertise in the diagnosis and treatment of Lyme disease and other tick-borne illnesses. For more than 25 years, he has been treating adolescents and adults suffering from Lyme disease.

Date: March 16, 2019
Time: 10:45am – 2:30pm
Where: North Richland Hills Library, North Richland Hills, TX
Registration requiredhttp://ntxlyme.org/

focus on lyme

Lyme Education: Scottsdale, AZ

Focus On Lyme is hosting its 2nd annual Patient Forum. This forum brings the top researchers and clinicians to share the latest in evidence-based treatment options. This is a great event for local physicians, patients and caregivers.

When: March 16, 2019
Where: Omni Scottsdale Resort & Spa At Montelucia
Time: 9:00am-12:00pm
Cost: $25/person
Ticketshttps://www.focusonlyme.org/2019-patient-forum

lyme education

Lyme Education: Davis, CA

The FREE One Health Seminar Series is presented by Students for One Health and the One Health Institute at UC Davis.

When: Wednesday, February 27 from noon-1PM
Where: 1020 Gladys Valley Hall at UC Davis School of Veterinary Medicine
Speaker: Laura Backus, MPH, DVM, PhDc in Epidemiology @ucdavisvetmed
Topic: Tickborne pathogens that affect domestic pets, livestock and wildlife

Lunch will be provided, so please RSVP (required) to Erica Chang at [email protected] [include any dietary restrictions if you intend to eat lunch provided at the event]

lyme education

Lyme Education: Queensbury, NY

SUNY Adirondack and Cornell Cooperative Extension of Warren County will host two free “Don’t Get Ticked” workshops in February to educate the public about the dangers of tick-borne diseases.

Programs are planned from 3:30 to 5:30 p.m. Friday, Feb. 15, at the 4-H Training Center, 556 Middle Line Road in Ballston Spa and from 3 to 5 p.m. Friday, Feb. 22, at the Northwest Bay Conference Center on the SUNY Adirondack Campus in Queensbury.

Ticks and tick-borne diseases have become a significant public health issue in New York, with different tick species and diseases currently present and spreading within the state and region, according to New York State Integrated Pest Management. Learning where ticks are on the rise and steps to take to avoid being bitten are important preventive measures.

The “Don’t Get Ticked” workshop will feature presentations by Dan Durkee of the Warren County Public Health Department and SUNY Adirondack Professor of Microbiology Holly Ahern.

Durkee will talk about where ticks are most prevalent, best strategies to avoid getting bitten and what to do if bitten. Ahern will give a tick-borne disease update, including information about the latest medical responses to tick bites and associated diseases.

A question-and-answer session will follow each presentation.

Pre-registration is required. Participants can register by emailing Dan ([email protected]), Chris ([email protected]) or Michele ([email protected]) or by calling 518-668-4881.

lyme education

Lyme Education: Ballston Spa, NY

SUNY Adirondack and Cornell Cooperative Extension of Warren County will host two free “Don’t Get Ticked” workshops in February to educate the public about the dangers of tick-borne diseases.

Programs are planned from 3:30 to 5:30 p.m. Friday, Feb. 15, at the 4-H Training Center, 556 Middle Line Road in Ballston Spa and from 3 to 5 p.m. Friday, Feb. 22, at the Northwest Bay Conference Center on the SUNY Adirondack Campus in Queensbury.

Ticks and tick-borne diseases have become a significant public health issue in New York, with different tick species and diseases currently present and spreading within the state and region, according to New York State Integrated Pest Management. Learning where ticks are on the rise and steps to take to avoid being bitten are important preventive measures.

The “Don’t Get Ticked” workshop will feature presentations by Dan Durkee of the Warren County Public Health Department and SUNY Adirondack Professor of Microbiology Holly Ahern.

Durkee will talk about where ticks are most prevalent, best strategies to avoid getting bitten and what to do if bitten. Ahern will give a tick-borne disease update, including information about the latest medical responses to tick bites and associated diseases.

A question-and-answer session will follow each presentation.

Pre-registration is required. Participants can register by emailing Dan ([email protected]), Chris ([email protected]) or Michele ([email protected]) or by calling 518-668-4881.

lyme education

Lyme Education: Frostburg, MD

Lyme Disease and Tick Safety in Western Maryland 

Speaker: Dr. Rebekah Taylor, Associate Professor of Biology, Frostburg State University

Date: February 14, 2019
Time: 7:00 pm
Location: Frostburg State University, Compton Science Center, Room 327
Learn morehttps://mdflora.org/event-3208389

lyme education

Lyme Education: Moravia, NY

Don’t Get Ticked Workshop

When: Saturday, February 9, 2019
Time: 2:00 PM – 3:30 PM
Where: Masonic Temple, 159 Main Street, Moravia, NY 13118

What you’ll learn:

  • Habitat, biology, identification, and control of tick species in our area.
  • How to monitor your yard for high-density tick populations and how to reduce their occurrence.
  • What to do if you find a tick on your body.

FREE EVENT – Free Tick Kits for all participants

lyme education

Lyme Education: Poughkeepsie, NY

CONQUERING LYME DISEASE – SOLUTIONS THROUGH SCIENCE 
Speaker: Brian Fallon, MD, Columbia University Medical Center

Dr. Brian Fallon, director of the Lyme & Tick-borne Diseases Research Center at Columbia University Medical Center, will present a message of hope. He will review recent scientific advances in diagnosis, treatment and prevention that will help to stem the tide of this most challenging disease. While the controversies and uncertainties associated with Lyme Disease are well known, less well known are the great strides being made by contemporary science that are leading to remarkable new approaches to conquer this disease.

Dr. Fallon received his BA and M.Ed. from Harvard University. He has been associated with Columbia University since 1979 where he obtained a MPH in epidemiology and a MD. He co-authored a book “Conquering Lyme Disease: Science Bridges the Great Divide” with Jennifer Sotsky, MD which was published by Columbia University Press in December 2017.

Our Lady of Lourdes High School
131 Boardman Road
Poughkeepsie, NY 12603

Admission is free. No reservations required. Doors open at 7 pm.

For information call: 845-473-0940

lyme education

GLA: Lyme Education (Vermont)

Learn about Lyme and other tick-borne diseases.

Date: October 5, 2018
Time: 7:15am (Breakfast); 8:00am (Presentation)
Location: Sheraton Hotel in Burlington, 870 Williston Rd., So. Burlington, VT 05403
Speaker: Pat Bannerman, Global Lyme Alliance Ambassador
Hosted by: Burlington Sunrise Rotary Club

lyme education

EDUCATION: What You Need to Know About Lyme Disease

Join the Kent Memorial Library and Lyme disease expert Rika Keck for a health talk, What You Need To Know About Lyme Disease on Saturday, May 19, 2:00 p.m. at the Kent Town Hall, 41 Kent Green Boulevard, Kent. You will be informed about Lyme disease, co-infections, testing options, and transmission. Learn about myths and complexities associated these stealth infections that keep many individuals sick – even after a correct diagnosis, antibiotic and/or herbal treatment.

Since December 2016, Rika is a member of International Lyme and Associated Diseases Society (ILADS). She intends to take an active role to help, advocate for, and support individuals with vector-borne infections including Lyme disease.

As an author, she has published two books. Her clients inspired the following publications: Nourish Heal Thrive: a Comprehensive and Holistic Approach to Living with Lyme Disease and the Nourish Your Brain Cookbook. Rika is also an invited guest speaker on various health panels in NYC. As she spends time in Washington Depot, Rika is committed to giving back to the community by presenting health talks on the important topic of Lyme disease.

Free & open to the public. Must register: 860-927-3761 or kentmemoriallibrary.org.

WEBINAR: Novel Vaccines for Lyme Disease and other Tick-borne Pathogens

Richard Marconi, Ph.D., a member of GLA’s Scientific Advisory Board, is hosting a one-hour webinar on March 7, “Novel Vaccines for Lyme Disease and other Tick-borne Pathogens”.

Spring, and more ticks, are around the corner.

Should you be vaccinating your canine patients for Lyme? Just how worried should you (and your pet owner) be? Join us for complimentary VETgirl online veterinary continuing education webinar on Lyme disease, thanks to sponsorship from Zoetis. In this 1-hour lecture, Richard Marconi, Ph.D. will review the etiological agent of Lyme, and tell you what’s new with novel vaccines for tick-borne pathogens.

ilads

ONLINE EDUCATION: ILADS Webinar

Join leading Lyme physicians and researchers as they discuss highlights from the recent International Lyme and Associated Diseases (ILADS) – Boston Conference. Includes Q&A.

Date: January 31, 2018
Time: 5pm ET
Registration: CLICK HERE


 

Lyme disease is an illness caused by the bacteria Borrelia burgdorferi, a complex microbe known as a spirochete. Lyme disease is a multi-systemic illness, if left untreated it can become a severely debilitating illness affecting the central nervous system, joints, and multiple organs, including the heart and brain. It presents in multiple-stages from: acute (early stage) to chronic (late stage or persisting) illness.

The CDC estimates over 300,000 people in the United States are diagnosed with Lyme disease each year. It is one of the fastest growing infectious diseases in the U.S. and Western Europe.This year, the International Lyme and Associated Diseases (ILADS) 18th Annual Scientific Conference presented a theme, Tick-Borne Diseases: A Global Perspective. Leading physicians, scientists, and others with expertise in tick-borne diseases shared important research updates, and other evidence-based clinical data with their peers. Join us to hear a summary of key data and information presented at the ILADS 18th Annual Scientific Conference.

EDUCATION EVENT: Understanding Lyme and Associated Diseases: Prevention, Symptoms, and Management

Part of the Greenwich Country Day School Speaker Series.

Program:

  • Patient and Parent Perspective with Charles Balducci, GLA Board Member. Mr. Balducci will share his personal journey with Lyme disease and the impact of tick-borne diseases on children and the importance of awareness.
  • Clinical Insights with Kenneth Liegner, MD. Dr. Liegner will provide key prevention tips, discuss increasing risk (ticks) for Lyme and other tick-borne diseases, share how to recognize symptoms of Lyme and other TBDS, optimal disease management, and address ways researchers are building the bridge to close the scientific gap in Lyme disease.
  • Lyme Disease Landscape with Timothy J. Sellati, Ph.D., GLA Chief Scientific Officer. Dr. Sellati will discuss overall advancements in Lyme disease research and advancements being made through GLA funded research, future directions, and outlook – highlight promising steps being made in Lyme.

Admission:

  • Registration is not required.
  • The program is free of charge and open to the public.
  • Email [email protected] with any questions.

Location:

Greenwich Country Day School
401 Old Church Road
Greenwich, CT 06830

Time: 6:30pm – 8:30pm