Tag Archives: lyme disease awareness

One Bite Is All It Takes – Lyme Awareness Month Campaign Results

GLA’s campaign wrap-up for Lyme Disease Awareness Month 2020

May was National Lyme Disease Awareness Month, a time to come together to spread awareness about Lyme disease, and also show support of those living with the disease every day. National Lyme Disease Awareness Month has been observed since the 1980s, taking place during May when most of the country is entering tick season. It’s a perfect time to spread the message of prevention, which was the primary goal of our campaign, One Bite Is All It Takes.

Today it is estimated that there are 427,000 new cases of Lyme in the US every year. Scientists estimate that two million people could suffer from post-treatment Lyme disease by 2020. Now more than ever, we have reached a time when it’s incredibly important to continue the conversation about Lyme disease.

One Bite Is All It Takes

The goal of the campaign was to raise awareness about tick bite prevention (#BeTickAWARE), especially as more people head outdoors due to COVID-19 distancing restrictions. Throughout the campaign we communicated how Lyme disease can impact someone, educated people with Lyme disease facts, and created multiple ways for the community to participate; from asking supporters to share GLA’s message, to creating and sharing their own message based on our campaign templates, and donating to our mission to conquer Lyme & other tick-borne diseases.

We were aware that it’s a very difficult time for many people right now due to the pandemic—from stress and health to financial uncertainty. That’s why it was a good time to bring the community together to share the critical message of prevention. Reminding people that we can’t let our guard down when it comes to ticks, because one bite is all it takes.

The Results

We are forever grateful to the Bang the Drum Foundation who generously matched up to $100k, as part of our online fundraiser which raised $152,680 in total! Additionally, we were able to reach nearly half a million people with our “One Bite Is All It Takes” awareness & marketing efforts online. Thanks to Netflix Star Talia Jackson, #1 New York Times & USA Today Bestselling author, Kerri Maniscalco, and HBO Max Star, Armani Jackson, among the many others who participated in our campaign by helping to share our “One Bite Is All It Takes” message. Our ‘alliance’ is truly amazing!

Special thanks to our partners and friends for also helping to make the campaign a success—Our board member Erin Walker and her husband, PGA Pro Jimmy Walker donated special hats as donation thank you gifts, our prevention partner, Ranger Ready Repellents posted new GLA content, shared our Be Tick AWARE message and donated a portion of proceeds to GLA for Lyme Awareness Month. A big thank you also goes to Ali Moresco who hosted a virtual fundraising event with amazing special guests Erin & Jimmy Walker, and Crystal Hefner.

Lyme Awareness Month ends, but our work continues

As always, It’s important to remember that ticks can be active all year round, and spreading Lyme disease awareness should not be limited to a single month. We’ll continue to share & spread awareness all year long. Thank you to all who supported us during Lyme disease Awareness Month, we hope that you’ll continue to support GLA and our mission.

Follow us on Facebook, Instagram, and Twitter for daily Lyme-related posts. We are here to help!


Visit the Lyme Disease Awareness Month campaign page
Visit the donation page
Visit GLA’s blog page

Don’t Forget It’s Tick Season, Too

by Jennifer Crystal

While everyone is quarantined at home people have one illness in mind: COVID-19. It’s why we wear gloves and masks, why we sanitize anything we touch, and the reason we practice social distancing. Everyone is trying to avoid infection, even those of us who have already had the illness because we don’t know yet if we have any built-in immunity to the novel coronavirus and we have to be wary of reinfection.

But while we’re so busy protecting ourselves from one illness, we can’t leave ourselves vulnerable to another: Lyme disease. Each year, over 427,000 new cases of Lyme disease are reported in the U.S.—that’s more than HIV and breast cancer combined. Ticks are already out in full force and this is predicted to be a particularly bad season. A recent article in The Providence Journal stated, “Because the winter was more mild, more ticks than usual have likely survived until spring and with many more people expected to be outside this year, authorities are concerned that 2020 may be a bad year for tick bites and the transmission of Lyme and other [tick-borne] diseases.”

The problem is not just more ticks, but that people are spending more time outside. With stores and restaurants closed and people feeling trapped inside their homes, they’re going out for walks and hikes. Children are having recess in their own backyards. To maintain social distancing, many people find themselves straying from beaten paths into the woods. While these adventures are vital to mental and physical health, they also increase one’s risk of tick exposure. 

A  friend of mine in Massachusetts recently pulled three ticks off each of her kids during a hike—and this was on a snowy day when they were wearing snowsuits and boots! Another friend in Colorado showed me a classic bulls-eye rash on her child’s leg. Stories like these are not rare, sending people into a panic, especially when the only way to see a doctor is via teleconference. 

So what should we do? The answer is not to stay locked inside. It is to Be Tick AWARE. Five important steps to follow are:

AVOID areas where ticks live. Ticks thrive in wood piles, long grass, leaf piles and beach grass.

WEAR light-colored clothing to spot ticks more easily; this includes a long-sleeved shirt tucked in at the waist, long pants tucked into high socks, closed-toed shoes, and a hat with your hair tucked in, if possible. Do not walk in the grass barefoot or in open sandals, even if it’s a shortcut. 

APPLY EPA-approved tick repellent (such as DEET or picaridin) to skin and insecticide (such as permethrin) to clothing and shoes as directed. 

REMOVE clothing upon entering the home; toss clothes into the dryer at high temperature for 10-15 minutes to kill live ticks. Washing, even in hot water, will not kill them. 

EXAMINE yourself and your pets for ticks daily. Feel for bumps, paying close attention to the back of knees, groin, armpits, in and behind the ears, belly button, and scalp. And check everywhere—ticks love to hide.

Another great tool I’ve found is to wipe yourself or your pet down with a lint roller after spending time outside; the sticky paper may pick up ticks that you haven’t caught by other means. 

If you do find a tick, don’t panic. Instead, remove the tick, send it in for testing, monitor your bite site closely, consult with your doctor, and watch your symptoms (for details on each of these important steps, click here.

It’s especially important to keep Lyme symptoms in mind right now, when we think every ache or fever must be a sign of COVID-19. Remember that flu-like symptoms can also indicate tick-borne illness. If you spend time outdoors and experience fever, fatigue, joint or muscle aches, be sure to talk to your doctor about tick-borne illness as well as COVID-19. To find a Lyme Literate Medical Doctor (LLMD) in your area, visit GLA.org/find.

Despite Lyme and COVID-19, we can’t live in fear. Instead, as I mentioned during my recent webinar with Dr. Daniel Cameron, we have to be smart about protecting ourselves from both illnesses. Do get outside, but stay on paths, at a safe distance from others and from ticks. 

Additional COVID-19 and Lyme Disease Resources:
Webinar: Lyme and COVID-19 Panel
GLA POV: Parallel Pandemics: COVID-19 and Lyme Disease
Blog: Q&A on COVID-19 and Lyme Disease with LLMD
Blog: Personal Patient Experience with COVID-19 and Lyme Disease
Letter: GLA CEO Addresses COVID-19 and GLA Community


jennifer crystal_2

Opinions expressed by contributors are their own.

Jennifer Crystal is a writer and educator in Boston. Her memoir about her medical journey is forthcoming. Contact her at [email protected].

team gla_nyc marathon 2019 highlights_post

Highlights: Team GLA Crushes 2019 TCS New York City Marathon

Thank You Team GLA!

 

jesse ruben_team gla_for those who can'tWhy run 26.2 miles through the streets of New York City? Team GLA captain Jesse Ruben’s shirt says it best … “For those who can’t.”

A huge thank you to all five Team GLA runners in the 2019 TCS New York City Marathon, including captain Jesse Ruben, Erin Conant, William Egan, Mia Sapienza, and Taryn Tomczyk. Your dedication and commitment to not only training for and running the grueling NYC Marathon, but also raising awareness and funds to support Lyme patients everywhere and GLA’s mission is incredible and inspiring. Thank you!

Here are a few pics of this amazing team:

Team captain Jesse Ruben interviewed by CBS 2 New York (at 1:30):


Click here to learn more about the 2019 marathon team.

Click here to donate and support GLA’s mission to conquer Lyme disease and other tick-borne illnesses.


Special thanks to our #BeTickAWARE sponsor Ranger Ready for their support of #TeamGLA!

team gla_shirt_ranger ready

lyme disease awareness golf event_brooke fuchs

Lyme Disease Awareness Golf Tournament: Idaho

Lyme Disease Awareness Golf Tournament

Brooke Fuchs, a student living with chronic Lyme disease, is hosting a golf tournament to raise awareness and funds for Lyme disease. Net proceeds from the event will go to Global Lyme Alliance. Please support Brooke and the work of GLA.

When: August 11, 2019
Time: 4pm, followed by dinner
Where: Canyon Springs Golf Course (9 holes), 199 Canyon Springs Rd, Twin Falls, ID 83301
Register today: Email [email protected]

lyme disease awareness golf tournament_idaho

palm beach equestrian Center

AWARENESS EVENT: Palm Beach, FL

Join Erin Walker and GLA at a special event in Palm Beach

 

SATURDAY, MARCH 2, 2019
6:00 PM – 10:00 PM
PALM BEACH INTERNATIONAL EQUESTRIAN CENTER

Join equestrian Erin Walker and Global Lyme Alliance (GLA) for this special event at the exclusive Palm Beach International Equestrian Center (PBIEC), to raise awareness and funds for Lyme disease. GLA is honored to host this event with Erin Walker, GLA board member, equestrian, and wife of 2016 PGA Championship Winner Jimmy Walker. The Nations Cup is one of PBIEC’s most memorable events of the year.

Awareness and funding of Lyme disease are more important than ever, with a record number of cases reported. According to the CDC there are 427,000 new cases of Lyme disease each year in the U.S.—a 30% increase from previous years. Many of those impacted are outdoor enthusiasts, pet owners, and children.

BUY TICKETS

lyme education

GLA: Lyme Education (Vermont)

Learn about Lyme and other tick-borne diseases.

Date: October 5, 2018
Time: 7:15am (Breakfast); 8:00am (Presentation)
Location: Sheraton Hotel in Burlington, 870 Williston Rd., So. Burlington, VT 05403
Speaker: Pat Bannerman, Global Lyme Alliance Ambassador
Hosted by: Burlington Sunrise Rotary Club

lyme education

EDUCATION: Lyme Disease Awareness

Join Global Lyme Alliance for an informative presentation on Lyme Disease.

Topics include:
– What is Lyme Disease
– Signs & Symptoms
– How It’s Transmitted
– Prevention & Safety
– Testing Methodologies
– Treatment

Date: September 26, 2018
Time: 9am – 11am
Where: John Rolfe YMCA, Richmond, VA
Presented by: Jenna St. Pierre, Global Lyme Alliance Education Ambassador
Contact: [email protected]

lyme education ambassador program

 

Why I’m Getting Dirty for Lyme Disease

by Scott Santarella, CEO, Global Lyme Alliance
pictured here with GLA teammate, Lindsy Brophy

I need your support for Team GLA and Tough Mudder

 

On Sunday, July 23rd I will Captain the Global Lyme Alliance Tough Mudder team in Bethpage, Long Island, raising funds and awareness to support GLA’s efforts to eradicate Lyme disease. Part of my incentive to take on the challenge of the Tough Mudder was to support the tens of thousands of patients who struggle each day dealing with the insidiousness of Lyme disease, and as an excuse for me to get my you-know-what into shape!

Getting Ready

I went so far as to exercise on LIVE TV!  That alone should tell you how important this is to me. If you want a laugh, check me out on this Good Day New York segment promoting GLA and our team. 

How You Can Help

You’ve witnessed me crawl, jump, and try to catch my breath – now it’s your turn to help.

  • To make a donation to support me and Team GLA, CLICK HERE.
  • To be part of the fun by joining Team GLA or participate in a Tough Mudder anywhere in the county on behalf of GLA, CLICK HERE.

Thank you all in advance for your consideration of support and I will report back on how sore I am with photos of me full of mud on July 24th!

Scott Santarella