GLA’s campaign wrap-up for Lyme Disease Awareness Month 2020
May was National Lyme Disease Awareness Month, a time to come together to spread awareness about Lyme disease, and also show support of those living with the disease every day. National Lyme Disease Awareness Month has been observed since the 1980s, taking place during May when most of the country is entering tick season. It’s a perfect time to spread the message of prevention, which was the primary goal of our campaign, One Bite Is All It Takes.
Today it is estimated that there are 427,000 new cases of Lyme in the US every year. Scientists estimate that two million people could suffer from post-treatment Lyme disease by 2020. Now more than ever, we have reached a time when it’s incredibly important to continue the conversation about Lyme disease.
One Bite Is All It Takes
The goal of the campaign was to raise awareness about tick bite prevention (#BeTickAWARE), especially as more people head outdoors due to COVID-19 distancing restrictions. Throughout the campaign we communicated how Lyme disease can impact someone, educated people with Lyme disease facts, and created multiple ways for the community to participate; from asking supporters to share GLA’s message, to creating and sharing their own message based on our campaign templates, and donating to our mission to conquer Lyme & other tick-borne diseases.
We were aware that it’s a very difficult time for many people right now due to the pandemic—from stress and health to financial uncertainty. That’s why it was a good time to bring the community together to share the critical message of prevention. Reminding people that we can’t let our guard down when it comes to ticks, because one bite is all it takes.
We are forever grateful to the Bang the Drum Foundation who generously matched up to $100k, as part of our online fundraiser which raised $152,680 in total! Additionally, we were able to reach nearly half a million people with our “One Bite Is All It Takes” awareness & marketing efforts online. Thanks to Netflix Star Talia Jackson, #1 New York Times & USA Today Bestselling author, Kerri Maniscalco, and HBO Max Star, Armani Jackson, among the many others who participated in our campaign by helping to share our “One Bite Is All It Takes” message. Our ‘alliance’ is truly amazing!
Special thanks to our partners and friends for also helping to make the campaign a success—Our board member Erin Walker and her husband, PGA Pro Jimmy Walker donated special hats as donation thank you gifts, our prevention partner, Ranger Ready Repellents posted new GLA content, shared our Be Tick AWARE message and donated a portion of proceeds to GLA for Lyme Awareness Month. A big thank you also goes to Ali Moresco who hosted a virtual fundraising event with amazing special guests Erin & Jimmy Walker, and Crystal Hefner.
Lyme Awareness Month ends, but our work continues
As always, It’s important to remember that ticks can be active all year round, and spreading Lyme disease awareness should not be limited to a single month. We’ll continue to share & spread awareness all year long. Thank you to all who supported us during Lyme disease Awareness Month, we hope that you’ll continue to support GLA and our mission.
Note: This post discusses self-harm and suicide. If you feel suicidal or a danger to yourself or others, PLEASE call the National Suicide Prevention Lifeline: 1-800-273 TALK (8255),or text “HOME” to 741741 to reach the Crisis Text Line. You can also call 911, or go to your nearest hospital emergency room. YOU ARE NOT IN THIS FIGHT ALONE.
May is Lyme Disease Awareness Month and Mental Health Awareness month. These matters are inextricably linked because there is now a mental health crisis among those with tick-borne diseases. As Dr. Robert C. Bransfield writes, “Lyme and other tick-borne diseases contributes to causing a significant number of previously unexplained suicides and is associated with immune-mediated and metabolic changes resulting in psychiatric and other symptoms.”[i]
If you’ve been in this circle for even a short while, you most likely have heard about a fellow Lyme warrior who died by suicide. You may have even known the person or have once called them your friend. Sadly, it happens far too often.
Statistically, those with any chronic illness are more likely to die by their own hand than those the general population, but for those with Lyme and other tick-borne diseases the risk is even greater. The reason for this is complex, but here are three important factors to consider:
1. Living with Lyme disease is hard.
The fatigue, the aching joints and muscles, the headaches, the brain fog and other symptoms of Lyme disease are constant and debilitating. Moreover, most Lyme patients have insomnia and rarely get a break from the barrage of symptoms. This means the patient also has to cope with a great deal of uncertainty (anxiety) over his or her health— a very heavy burden.
2. Lyme disease treatment is notoriously challenging for a variety of reasons, all of which it helps the Lyme patient to be aware of.
First, because Lyme and other tick-borne diseases are not accepted by the mainstream medical community, the psychiatric ramifications of such illnesses generally go unconsidered by most doctors. Second, because treatment is often long term, painful, and the patient may get worse before he or she getsbetter. Third, Lyme disease treatment is expensive and rarely covered by health insurance, even though patients are often unable to work while undergoing the process.
3. Lyme disease bacteria can infect the brain.
Neurological Lyme disease affects thinking and behavior. Thoughts can become distorted and hopeless and often rise to traumatic levels. It’s said that “depression lies,” because people’s nervous systems send them messages that they are worthless or a burden to others in their life. Lyme disease lies, too, since it fosters depression and its woes.
What’s important to remember is that you are not alone in this fight. There are millions of people living with Lyme and also people in remission who stay connected to the Lyme community in the hope of helping others.
Naturally, as a therapist, I encourage everyone with Lyme disease to consider therapy. Ideally, you should make sureyour therapist understands chronic illnesses and medical trauma. However, simply having an empathetic ear to listen to your story can be transformative. Often our friends and family don’t understand how difficult it is to live with this disease, so a therapist can be a necessary support in this fight.
But what if regular therapy isn’t enough. What if you are in crisis right now and need help?
How To Tell if You Are in a Mental Health Crisis:
1. Self-harming behaviors.
Self-harming behaviors have many manifestations. They may look like self-injury, such as cutting or burning or they may manifest as the patient purposely not taking important medis, or taking too much of something that can be harmful.
2. Suicidal thoughts.
Thoughts about suicide are a sign of something very serious taking place and require immediate attention. Take note if your thoughts are increasing in frequency and intensity—If the trend is on the rise this can determine the level of intervention you need. Feelings of suicide should never be ignored.
3. Suicidal plans or behaviors.
Having a plan to complete suicide or engaging in behaviors, such as saying goodbye to loved ones or giving away possessions is a medical EMERGENCY. Call 911 or go straight to your nearest emergency room and tell them what is happening.
4. Your intuition.
Do you feel like you need immediate mental health care? Therapists, outpatient, and inpatient programs are all more accessible than ever before. With tele-health becoming more popular, you may even be able to see a psychiatrist or therapist through a secure video chat platform.
What To Do in a Mental Health Crisis?
1. Call 911 or go directly to the nearest emergency room.
People who survived suicide attempts report that the time between considering suicide and making an attempt is only about an hour. That’s a very small window. Seek help at once.
Many of us who have Lyme also have negative perceptions of emergency rooms, but during a mental health crisis the focus is not on treating the Lyme disease. Doctors need to observe you and assess your suicidality. Most importantly is that you are in safe and contained place where you can get help.
2. Call or text a suicide hotline.
Suicide hotlines, such as the National Suicide Prevention Lifeline are free, anonymous, and available 24/7. These hotlines can also help you find information about local suicide crisis resources, such as voluntary inpatient and outpatient programs.
National Suicide Prevention Lifeline: 1-800-273-TALK(8255)
Crisis Text Line: Text “HOME” to 741741
3. Reach out to a trusted loved one.
Opening up about mental health can make one feel ill at ease and vulnerable, but talking to such a loved one can help you immediately. Ask this this person to help you get the care you need.
How To Prepare Yourself for a Mental Health Emergency
1. Remove firearms from your home and lock up lethal medications
2. Make a contact list of crisis phone numbers, local resources, and trusted friends or family members. It’s a good idea to let these people know in advance that they are on this list, so they can be prepared to rise to the occasion if necessary.
3. Print this article out, fold it up and keep it with you always. You never know when you may need to consult it.
Always keep in mind, you don’t have to go through Lyme disease all alone. If no one sympathetic is near, search the internet in your area for Lyme or chronic illness support groups. If you can’t find such a community where you live, please dig deeper. There are thousands of people creating safe spaces and raising Lyme-suicide awareness online.
You deserve to heal. You deserve a life free of Lyme and its many debilitating symptoms. You deserve to be seen and heard. You deserve to be treated with dignity and respect in your illness. The world needs you and you need the world.
[i]Bransfield RC. Suicide and Lyme and associated diseases.Neuropsychiatric Disease and Treatment,2017; 13:1575-1587.
Opinions expressed by contributors are their own.
Kerry J. Heckman is a licensed therapist and author of the healing and wellness blog Words Heal. She was diagnosed with chronic Lyme disease in 2016.