Tag Archives: avril lavigne

#FightLyme with Avril & Friends

GLA Presents #FIGHTLYME With Avril & Friends

In lieu of holding our annual gala this year, GLA is proud to be presenting the inaugural #FIGHTLYME With Avril & Friends virtual event this fall: A concert to raise awareness and funds for GLA & The Avril Lavigne Foundation to support the Lyme Community.

Date: October 24, 2020
Time: 8 PM EST

Must enter code “GLA” at checkout for your purchase to go to Global Lyme Alliance

the avril lavigne foundation_GLA_abu dhabi

The Avril Lavigne Foundation and GLA Discuss Tick-Borne Disease at Global Health Forum

Real change happens when we work together. This is especially true when it comes to advancing the Lyme disease and tick-borne illness agenda, be it through research, awareness, funding, or patient support.

At Global Lyme Alliance (GLA) we are eternally grateful for the tireless work of our board member Avril Lavigne and our amazing partners in The Avril Lavigne Foundation. The Avril Lavigne Foundation recently invited GLA’s CEO Scott Santarella and Chief Scientific Officer Tim Sellati to join them at the Reaching the Last Mile (RLM) Forum in Abu Dhabi, to discuss and collaborate on the world stage about the risks of tick-borne illness and how we can come together to help patients.


The Avril Lavigne Foundation post from December 10, 2019 …

The biennial Reaching the Last Mile (RLM) Forum, held in Abu Dhabi, convenes global health leaders to share insights and best practices on how to map out, eliminate & eradicate infectious diseases. Held under the patronage of His Highness Sheikh Mohamed bin Zayed, Crown Prince of Abu Dhabi, in partnership with the Bill & Melinda Gates Foundation, this year’s RLM Forum  brought together more than 300 preeminent individuals from government, private sector, philanthropy & academia, to discuss reaching the last mile of disease elimination faster – including The Avril Lavigne Foundation!

We were honored to be invited by The Avril Lavigne Foundation to participate alongside incredible organizations like The Clinton Foundation, The Gates Foundation, Project Hope, The Carter Center, The World Health Organization and to join them in educating global health community about Lyme and other tick-borne/vector-borne diseases. During the Forum, we had the opportunity to hear from a number of prominent global health leaders, exhibit Louvre Abu Dhabi, and participate in a Round Table focused on Climate Change & Global Health (chaired by the esteemed Dr. Anthony Costello). Participants included the UAE’s Ministers of Climate Change and Health, Rt Hon Helen Clark (former Prime Minister of New Zealand), @MalariaNoMore @ChildrensPhila and others. During the Forum Bill Gates  and other philanthropic leaders from around the world pledged over $2.6 BILLION to eradicate Polio. The Forum was collaborative, educational and beyond inspiring.

We are grateful to have been included in this prestigious event.

Here are some highlights …

Reaching the Last Mile Forum 2019 in Abu Dhabi
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head above water

Avril Lavigne and GLA: Head Above Water Campaign

Avril Lavigne recently stated that fighting Lyme Disease has been the hardest battle she’s ever fought. If you are reading this post, we have no doubt you understand the sentiment.

The Avril Lavigne Foundation supports individuals with Lyme disease, serious illnesses and disabilities. We are excited to announce that as part of their expanded mission (which will include providing PREVENTION resources, funding TREATMENT and accelerating RESEARCH, in order to TRANSFORM lives), Global Lyme Alliance has recently become The Avril Lavigne Foundation’s newest partner.

Now, WE NEED YOUR HELP!

Avril’s “Head Above Water” charitable t-shirt will benefit the Lyme community as a whole – including GLA! We encourage you to support Avril, The Avril Lavigne Foundation & each other by purchasing yours today!

Buy a t-shirt

Once you’ve received your shirt, follow these three easy steps:

  1. Put your shirt on and take a selfie
  2. Post on Instagram with the hashtags #GlobalLymeAlliance #TheAvrilLavigneFoundation #HeadAboveWater
  3. Be sure to tag us in your post!

We’ll repost a few of our favorites, and everyone who submits a photo will be entered for the chance to win a personally autographed shirt – Avril’s gift to you to thank you for your support! (This is a limited time promotion – so get your shirt before they’re all gone!)

Thank you for your ongoing support of Global Lyme Alliance and thank you in advance for your support of our newest partner, The Avril Lavigne Foundation.


 

What We’re Thankful For–Thanksgiving 2016

As we approach Thanksgiving, many of us pause to reflect on why we are thankful.

 

Without a doubt, the challenges with Lyme remain—better diagnostics and improved treatments are still sorely needed.  But there are some things we and others in the Lyme community can be grateful for this year:

More Celebrities Speak Out

Supermodel Bella Hadid and President-elect Trump’s former wife, actress Marla Maples, were honored by GLA in 2016. They joined a growing list of celebrities who are turning the spotlight on Lyme disease, including singer Avril Lavigne; TV personality Yolanda Hadid; basketball superstar Elena Delle Donne; TV producer and author Ally Hilfiger; Daryl Hall; Marisol Thomas, wife of Matchbox Twenty frontman Rob Thomas, among others.

New State Laws Help Lyme Sufferers

Maryland’s first ever Lyme disease law requires healthcare providers and medical laboratories that draw blood for a Lyme test to give patients a written statement explaining the potential for inaccurate test results. In Massachusetts, health insurers must now cover long-term Lyme antibiotic treatment prescribed by a licensed physician.

Increased Research Interest

GLA received a record number of 31 grant requests for 2016-2017 research funding, an 80 percent increase over the previous year. This year’s applications are from researchers at top-tier universities in the United States, Australia, France, Switzerland and the United Kingdom. While their areas of research are diverse, it’s clear that the tick-borne disease community is zeroing in on unraveling the complexity of Lyme disease.

IDSA Guidelines Removed from Federal Database

Outdated Infectious Diseases of America (IDSA) guidelines were removed early this year from the National Guidelines Clearinghouse (NGC), a federal database used as a reference for physicians and healthcare practitioners in treating Lyme patients. The guidelines, currently undergoing revision, have for years restricted antibiotic treatment of Lyme patients to between two and four weeks. At present, only the guidelines from the International Lyme and Associated Diseases Society (ILADS) are on the NGC.

Increased Media Coverage of Lyme

FOX5 News aired two specials watched by tens of thousands called “Lyme & Reason: The Cause and Consequence of Lyme Disease” and “Lyme & Reason 2:0: Lyme Disease & The Voices of Change.” In addition, Lyme disease stories aired on WNET/MetroFocus, WBUR/PBS, CBS and local outlets as well as in national publications such as Huffington Post, Science, Town & Country, and others.

Most of All

… we are grateful for the unwavering support of Global Lyme Alliance’s volunteers, donors, and friends. Please help us accelerate progress in the fight against Lyme and join us in our Quest for the Test, GLA’s global effort to raise funds for a critically needed Lyme diagnostic test.

Wishing you and your loved ones a Happy Thanksgiving.

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