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Many Lyme Disease Cases Go Unreported. A New Model Could Help Change That.

Written by Global Lyme Alliance | Mar 6, 2020 5:00:00 AM
By Carla Cantor for Columbia News Researchers have drawn on 17 years of data to develop a model that identifies areas in which the tick-borne illness is likely to emerge. The Centers for Disease Control and Prevention receives reports of about 30,000 cases of Lyme disease each year. The real number, according to the agency, is closer to 300,000. Underreporting affects the ability of public health authorities to assess risk, allocate resources and devise prevention strategies. It also makes early detection very difficult, hampering efforts to treat the condition quickly and effectively. A new report, published on March 3, 2020, in Journal of the American Medical Association, describes a data model developed by researchers from Columbia University and RTI International, a nonprofit research institute, that helps identify areas of the United States where Lyme disease cases may go unreported. “We believe our analysis can help predict the trajectory of where Lyme disease will spread,” said Maria Pilar Fernandez, a post-doctoral researcher at Columbia and lead author of the study. “Identifying high-risk areas can lead to surveillance in counties and areas where infections are likely to emerge. It also allows authorities to alert physicians and the public, which can lead to early treatment, when it is most effective.” To develop their model, the researchers analyzed publicly available data, tracking the geographic spread of Lyme disease over nearly two decades. They studied an estimated 500,000 cases of the illness reported to CDC from different counties across the United States between 2000 and 2017. “We were able to show that about 162 U.S. counties may already have Lyme disease, but they have not yet been reported to the CDC,” said Maria Diuk-Wasser, associate professor in the Department of Ecology, Evolution and Environmental Biology at Columbia and a co-author on the study. The CDC collects Lyme disease data from state and local health departments, which base the number of cases on notifications from clinicians, hospitals and laboratories. Lyme disease is difficult to diagnose, and accurate case assessment depends on many variables, the researchers said, from provider awareness and testing methods to reporting practices, state budgets and personnel. Although Lyme disease has been diagnosed in almost every state, most cases reported to the CDC are in the Northeast and upper Midwest. Read the full story here.