Treating Instead of Denying Yourself

by Jennifer Crystal Spring is a time of rebirth and renewal.  Many people engage in some kind of spring cleaning, whether it is airing out their homes or themselves. People open their windows and shake …MORE

Spring REALLY Will Come

by Jennifer Crystal This time of year can be a tease. With daylight savings time, the sun is suddenly brighter, and there are hints of warmer weather coming, Not surprisingly, we start to think it’s almost …MORE

Be a Victor, Not a Victim

by Jennifer Crystal Many patients of tick-borne disease take years to get diagnosed. A lucky few ones find a bull’s-eye rash or an embedded tick, go to a physician who just happens to be Lyme …MORE

What Does it Mean to Herx?

by Jennifer Crystal Sometimes when I’m describing tick-borne illness, I feel like I’m speaking a foreign language. Most people have heard of Lyme disease—though too many mistakenly call it “Lyme’s” when there is actually no …MORE

Lyme Isn’t a Choice

by Jennifer Crystal Please don’t give in to denial and fear. If you think you might have a tick-borne disease and have been avoiding going to an LLMD, or if you have been diagnosed with …MORE

Don’t Settle For Good Enough

by Jennifer Crystal In life, we’re often told not to settle. We don’t want to take a job or enter a relationship simply because it seems good enough. Doing so might bring short-term gains, but in …MORE

Financing Tick-Borne Disease

by Jennifer Crystal Having Lyme disease is expensive. It can take a toll on you in more ways than one. Below are some resources and insights to help you or the patient in your life. …MORE

Can’t Versus Shouldn’t

by Jennifer Crystal “Should” is one of my least favorite words. Society gets us caught up in the idea of what we “should” be doing—we should work more, exercise more, take on more—and that puts …MORE

A Different Kind of Lyme Journey

Brooke Procida Takes to the Road to Promote Lyme Disease Healing   Many of us have embarked on cross-country adventures with plans to enjoy America’s superb national parks, cultural landmarks and regional cuisine. But Brooke …MORE

A Tribute to Rick LaPierre, Our Friend and Advo...

Remembering our friend who advocated for patients with chronic illness   By Diane Blanchard, Vice Chair, GLA Global Lyme Alliance (GLA) wants to say a fond goodbye to our dear friend, Rick LaPierre, who was …MORE

Starting Small in the New Year

by Jennifer Crystal New Year’s Day is supposed to be a time of renewal. People celebrate and make resolutions for a fresh start. But for Lyme patients and those with chronic illness, New Year’s can …MORE

Hope For the Holidays

by Jennifer Crystal The holidays are supposed to be the happiest time of the year. But for many people with chronic illnesses—and others suffering in different ways—the holidays can be really difficult. If you’re bedridden …MORE

The Value of Visualization

by Jennifer Crystal When I was bedridden with Lyme disease and two of its co-infections—babesia and ehrlichia— people sometimes asked if I had tried meditation. Usually, tired of unsolicited advice from yet another person who …MORE

A Marathon Accomplishment by Team GLA Runners

Completing the TCS New York City Marathon, all 26.2 miles of it, is an amazing feat for anyone, let alone for those who suffer from Lyme. Yet last month, five Lyme warriors did exactly that, …MORE

Avoiding Reminders Until You’re Ready

by Jennifer Crystal When I was very sick with Lyme disease and two of its co-infections—specifically, babesia and ehrlichia—friends invited me to a Warren Miller ski movie. Every season, the renowned filmmaker put out a …MORE

A Different Kind of Denial

by Jennifer Crystal In my recent post The Danger of Denial, I spoke about the consequences of denying symptoms or diagnoses when battling serious illness like tick-borne disease. For years I ignored my health issues, …MORE

Five Warriors Tackle the Ultimate Road Race for...

Five runners gave new meaning to the term “Lyme warrior” on Sunday, November 4, 2018, as they completed in the largest marathon in the world—the TCS New York City Marathon. Representing Global Lyme Alliance’s first …MORE

Holidays: Relishing the In-Between Times

by Jennifer Crystal The build-up to Halloween is always an exciting time for kids. There’s so much anticipation—what will I be? What will my friends be? How much candy will I get? After the final …MORE

Scheduling Life with Lyme Disease

by Jennifer Crystal Flexible vs. rigid? How keeping to a schedule can impact one’s life with Lyme disease.   In 2007, I suffered a severe relapse of Lyme and two of its tick-borne co-infections Babesia …MORE

The Idea of Hope

by Jennifer Crystal Hope is a tricky concept for patients with chronic illnesses. It is something everyone—healthy or sick—wants, but summoning hope is not always easy when the world around you looks bleak. Someone can …MORE

REMEMBERING ONE OF OUR OWN

by Scott Santarella, CEO of Global Lyme Alliance Kasey Passen was driven to help others in the fight against Lyme disease Some people have dreams about changing people’s lives but, through no fault of their …MORE

The Danger of Denial

by Jennifer Crystal One of the many rewards of writing this weekly blog is connecting with patients and caregivers all over the world. I receive emails from people telling me their stories and asking me …MORE

The Spectrum of Lyme

by Jennifer Crystal Just this week, I heard from yet another friend who had found an engorged tick on her child. With tick populations soaring, it’s not surprising that so many people are being bitten …MORE

To Sleep, Perchance to Dream

by Jennifer Crystal GLA writer and Lyme Warrior, Jennifer Crystal writes about her experience with “crazy dreams” as a result of neurological Lyme disease Last night I had a dream that a college friend and …MORE

Enjoying the Summer While Living with Lyme

by Jennifer Crystal When I first moved to Boston, I took a Duck Boat tour of the city. As the amphibious vehicle cruised the Charles River, the driver pointed out Spaulding Rehabilitation Hospital. I looked …MORE

Dealing with Lyme-related Fear

by Jennifer Crystal Last week I wrote about the well-founded fear of ticks which alarms us every summer, but especially now that infected tick populations are on the rise. Getting a tick bite that could …MORE

MY JOURNEY TO A CHRONIC LYME DISEASE DIAGNOSIS

By Jordan Younger Repurposed with permission from the writer for GLA.org It’s time for a mega health update, especially if you’ve seen my Instagram over the last week or so. I have been sharing openly there about …MORE

Tribute to The Men of Lyme

by Jennifer Crystal In my blog post “Gender and Lyme: Is Tick-Borne Disease Different for Women?”, I cited a study by John Aucott, M.D., of Johns Hopkins University which found that more men than women …MORE

Things I Never Thought I Would Do Before Lyme

by Kerry J. Heckman On one hand a doctor treating Lyme may recommend antibiotics, and on the other hand, a doctor treating an autoimmune disease may recommend immunosuppressants. It’s very difficult to know which is …MORE

Honoring the Past, Embracing the Future

by Jennifer Crystal A friend recently shared with me the news that her grandmother had passed away. “She was 97,” she said. “It’s not like we didn’t know it was coming, but it’s still sad.” …MORE

Lyme’s Life Lessons: Sonya Rolin and Tatiana Do...

INTRODUCING GLA GREENWICH GALA CO-CHAIRS: PART 3 OF SERIES   Anyone struggling with Lyme disease knows it can pretty much take over your life. It is an exhausting, socially isolating, life-altering illness that causes many …MORE

A Mother and Daughter’s 12-Year Quest for...

Introducing GLA Greenwich Gala Co-Chairs: Part 2 of Series   Not every Lyme patient is lucky enough to have a family that stands by their side when no one else will. That’s why Christina Womble …MORE

The Pros and Cons of Social Media When You Have...

by Kerry J. Heckman Before I was diagnosed with Lyme disease, I’d already been diagnosed with multiple autoimmune disorders. At the time, I turned to the internet to learn about diet protocols and treatment options …MORE

A Mother, A Supporter, A Lyme Warrior: Stephani...

Introducing GLA Greenwich Gala Co-Chairs: Part 1 of Series   Three years ago, Stephanie Ercegovic (pictured with husband, Brian Foster) began a medical journey that took her from one doctor’s office to the next as …MORE

Seasons of Lyme

By Jennifer Crystal The change in seasons is usually an exciting time for most, but the jump from season to season can be especially trying for Lyme patients In the past couple weeks, many people …MORE

In The Lymelight Episode 5

Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Limelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, yes, the “heavy” stuff, but also …MORE

Not Immune

by Erin Walker Something is Not Right   As the wife of PGA TOUR player and major winner Jimmy Walker, I am used to supporting him during challenges. In April of this year, my husband …MORE

In The Lymelight Episode 4: Things I wish I kne...

Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Limelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, yes, the “heavy” stuff, but also …MORE

A Letter to My Sick Self

by Bonnie van Geffen #MyLymeLife One Lyme Warrior’s Letter to Herself   Dear Me, Dear Humiliated Me, Please don’t ever call your body weak again. It had to fight so much for so long, that …MORE

When I Miss My Life Before Lyme

by Kerry Heckman #MyLymeLife Do you reminisce about your life before Lyme?   This morning my co-worker walked around to each of our offices to tell us that there were muffins the conference room left …MORE

Fear of Lyme Reinfection

by Jennifer Crystal Hoping you don’t get another tick bite and Lyme reinfection this spring.   This time of year always makes me happy: the tulips come out, everything blooms, and the world feels hopeful …MORE

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