Blog Archives - Global Lyme Alliance Blog Archives - Global Lyme Alliance

COVID 19: Am I Immune?

Does a positive antibody test mean a person is immune and safe from spreading the virus? by Robert Kobre, Chairman, Global Lyme Alliance The Global Lyme Alliance (“GLA”) has acquired an expertise in antibodies and …MORE

Have You Heard of the Tick-Borne Disease Babesi...

Lyme disease isn’t the only illness you can get from a tick bite Babesiosis, a tick-borne infection caused by the parasite Babesia (most commonly, Babesia microti, though there are other species like Babesia duncani and …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Do you have a question for Jennifer? If so, email her at [email protected] Do you usually feel a tick bite? …MORE

The need for an alternative to current antibody...

by Timothy J. Sellati, Ph.D., Chief Scientific Officer, Global Lyme Alliance An early and accurate test result is critical to effectively treat most diseases. Especially Lyme disease. The earlier one is diagnosed and treated, the …MORE

Cooling Off When Swimming Isn’t an Option

by Jennifer Crystal Heat can take a toll when living with Lyme disease Summer is usually a time for celebration, relaxation, and fun in the sun, but 2020 presents special challenges. Due to the pandemic  …MORE

Corona With a Twist of Lyme: Part 4

by Jennifer Crystal As many of you know from my previous blog posts and my webinar with Daniel Cameron, M.D., I got sick with COVID-19 in mid-March. I have charted my progress with in Corona With …MORE

I Found a Tick on Me, Now What?

It’s important to follow these simple tips when you find a tick on you, whether it’s attached or unattached   After months of mandatory quarantines and shutdowns, you’ve no doubt happily ventured outdoors by now …MORE

We’re Not Out of the Woods Yet

by Jennifer Crystal It’s finally Summer! The heat has arrived, the sun is out, and everyone wants to be outside. Before we begin to romp too freely in the great outdoors, however, we have to …MORE

The Lyme Voices You Didn’t Hear at TBDWG ...

The Tick-borne Disease Working Group (TBDWG) issued a public request to hear from patients willing to share their stories for its July 8, 2020 meeting. It’s an important part of these meetings, where the public …MORE

Overcoming Lyme Disease GI Issues with Kate Farms

by Christina Kovacs Patients who have late disseminated (post-treatment, chronic, or neurological) Lyme are usually told to reduce foods that cause inflammation or sensitivity. This means eliminating gluten, soy, and dairy. Lyme Disease is known …MORE

Do we need clinical trials, even for long-used ...

With the need for fast treatment options, for COVID-19 and other diseases, is it necessary to re-approve drugs already approved by the FDA? by Timothy J. Sellati, Ph.D., Chief Scientific Officer, Global Lyme Alliance There …MORE

Lyme Arthritis: The Antibody Connection

by Mayla Hsu, Ph.D., Director of Research and Science, GLA Lyme disease, caused by Borrelia burgdorferi bacteria, often leads to arthritis, with up to 60 percent of late-stage patients suffering from painful joints and swelling. …MORE

Calculating Risks

by Jennifer Crystal When living with Lyme disease and making decisions in regards to your health, it’s important to weigh the dangers, benefits, and consequences. It’s called taking calculated risks. When I got my PICC …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Do you have a question for Jennifer? If so, email her at [email protected] I have tried several different medications for …MORE

You Know Your Body Best

by Jennifer Crystal …we grow up thinking of doctors as all-knowing. Whatever ‘the doctor’ said—be it the Primary Care Physician, the family doctor, or the ER doctor—was once deemed absolute. This doesn’t have to be …MORE

Managing Burning Extremities

by Jennifer Crystal Dealing with unexplained symptoms? Don’t rule out Lyme & other tick-borne diseases Last night I went to sleep about an hour past my usual bedtime. Revved up from a busy day which …MORE

The Advantage of Public-Private Partnerships to...

GLA’s CEO Scott Santarella shares his insight on how scientific advancements that benefit patients can be accelerated through public-private partnerships, as he witnessed during his previous work in cancer research, and see now with both …MORE

Lyme Patients, Make Your Voice Heard

Time-sensitive: Act now to make your voice heard at the national level by submitting your comments to the tick-borne disease working group by June 24th Science shows that chronic Lyme exists. Now it’s time for …MORE

The Comfort of Solidarity

by Jennifer Crystal When I was bedridden with Lyme disease, two tick-borne co-infections babesia and ehrlichia, and chronic Epstein-Barr virus, I often felt terribly alone. Friends and family did their best to try to understand …MORE

One Bite Is All It Takes – Lyme Awareness...

GLA’s campaign wrap-up for Lyme Disease Awareness Month 2020 May was National Lyme Disease Awareness Month, a time to come together to spread awareness about Lyme disease, and also show support of those living with …MORE

Corona With a Twist of Lyme: Part 3

by Jennifer Crystal Since writing “Corona With a Twist of Lyme: Part 1” and following up with a sequel a few weeks later, I’ve received many emails from those who wonder how I’m doing. In …MORE

COVID-19: Is a Vaccine the Answer?

Point of View: Looking through the Lyme disease lens in weighing the vaccine and treatment path for COVID-19   by Robert Kobre, Chairman, Global Lyme Alliance The United States is currently in a struggle between …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Do you have a question for Jennifer? If so, email her at [email protected] How do you know if antibiotics are …MORE

The Importance of Being Vigilant

by Jennifer Crystal From medication issues to prescription errors and medical bills, these areas require heightened vigilance when dealing with tick-borne illness In a recent blog post “Don’t Forget It’s Tick Season, Too”, I discussed …MORE

Lyme Disease Research Remains Active During Pan...

GLA-funded researchers are still focused on their Lyme disease research initiatives   by Mayla Hsu, Ph.D., Director of Research and Science, GLA During this period of quarantines and social distancing, it is important to remember …MORE

What a Difference a Year Makes

by Jennifer Crystal When I was little, my grandmother used to sing the Dinah Washington song, “What a difference a day makes, twenty-four little hours…” Later, memories of her singing those lyrics carried me through …MORE

PODCAST: In The Lymelight – Lyme Awarenes...

IN THE LYMELIGHT: A SHOW ABOUT … WELL … LYME DISEASE by Alex Moresco In The Lymelight · Lyme Awareness Month Podcast – 5:3:20, 2.24 PM   Welcome to In The Lymelight: a show about…well…Lyme …MORE

Don’t Forget It’s Tick Season, Too

by Jennifer Crystal While everyone is quarantined at home people have one illness in mind: COVID-19. It’s why we wear gloves and masks, why we sanitize anything we touch, and the reason we practice social …MORE

Pandemics, Ecology, and Food Production: Is The...

Why and how do pandemics emerge? Is there a connection between our ecosystems and global food production?   by Mayla Hsu, Ph.D., Director of Research and Science, GLA Why do infectious disease pandemics emerge? In …MORE

Lyme and COVID-19 Panel: Follow-up Q and A

by Jennifer Crystal Last week, I had the opportunity to talk about my experience as a Lyme patient with COVID-19 on a panel with leading Lyme specialist Dr. Daniel Cameron. Thank you to everyone who …MORE

Corona With a Twist of Lyme: Part 2

by Jennifer Crystal I have been battling COVID-19 symptoms for almost five weeks. I have had Lyme disease and two tick-borne co-infections—babesia and ehrlichia—for twenty-three years, though my tick-borne diseases went undiagnosed for the first …MORE

What Can We Learn from Our Response to COVID-19?

What can we learn from Lyme disease patients and our work in tick-borne disease research that can be applied to the current COVID-19 crisis?   by Robert Kobre, Chairman of the Board, Global Lyme Alliance …MORE

Top Ten Myths About Lyme Disease

by Jennifer Crystal Lyme is an enormously complex disease. To properly understand its symptomology, diagnostic issues, and treatment options, you’ve got to do a good deal of research. And that’s just for Lyme; there are …MORE

Lyme Disease Physician Answers Questions About ...

Patient-Doctor Q&A: Lyme Disease and COVID-19 Interview by Alex Moresco I have spent the last few weeks like many of you inundated and overwhelmed by the sheer enormity of the news coverage about COVID-19. Separating …MORE

Corona With a Twist of Lyme

by Jennifer Crystal Our nation is in a crisis about novel coronavirus COVID-19, and no one is more fearful than those with pre-existing conditions. These patients, along with the elderly, are at high risk if …MORE

The Importance of Digging Deep

by Jennifer Crystal I was a telling a date last night about my Lyme journey. He responded, “I read an article that said Lyme can be cured, but then I read another that said it …MORE

Lyme Brain: The Science and the Experience

by Jennifer Crystal At the 2019 International Lyme and Associated Diseases Society (ILADS) conference in Boston, infectious disease specialist Francine Hanberg, M.D. gave a talk about the causes and manifestations of “Lyme brain” called “Neuropathology …MORE

Letter from CEO About COVID-19 and GLA Community

The well-being of our community is an ongoing priority for Global Lyme Alliance (GLA). The current COVID-19 pandemic has created a new set of challenges for everyone, especially those whose health is already challenged due …MORE

Lobbying for Lyme Disease on Capitol Hill

Learning first-hand the power of coming together to get things done, as Lyme patients and advocates joined together in Washington, D.C. to lobby for Lyme disease research and awareness   by Sara Tyghter, Director of …MORE

Dear Lyme Warrior…Help!

By Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Below she answers some that she’s recently received. Do you have a question for Jennifer? If so, email her at …MORE

The Leaps of Lyme

by Jennifer Crystal This year is a “leap year”, meaning that every four years we add February 29th to the calendar. This leap year got me thinking about the many leaps that are involved in …MORE

Why Is Lyme Disease So Hard to Treat?

For many Lyme disease patients, the bacteria seem to outsmart antibiotic treatment. Why?   It’s a hotly debated topic, and one that is still not completely understood – what causes the persistent symptoms in many …MORE

Mixed Messages: Finding Your Truth

by Jennifer Crystal Why is there so much conflicting information on Lyme disease? Here are a few tips on how to cope One student in the “Writing to Heal” course I teach recently wrote a …MORE

Stop the Itching! Lyme and Hives

by Jennifer Crystal Do you get unexplained hives? Could it be Lyme disease? Four years after I was bitten by a tick—and four years before I would be diagnosed with three tick-borne illnesses: Lyme, babesia, and …MORE

When Nothing’s Funny, Even Simulated Laughter C...

by Jennifer Crystal In 2016, I wrote a post called “Laughter Really Can Be the Best Medicine”. In it, I discussed the health benefits of laughter: it reduces stress and anxiety, decreases pain, strengthens resilience, …MORE

No Set Protocol

by Jennifer Crystal WHY ISN’T THERE A SET TREATMENT PROTOCOL FOR LYME DISEASE? Patients often write asking how I fought off Lyme and two other tick-borne diseases. I understand why they ask. When you read …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Below she answers some that she’s recently received. Do you have a question for Jennifer? If so, email her at …MORE

2020 Vision For Lyme Warriors

by Jennifer Crystal Here are some things I now know for sure, things I wish I’d known, looking back on my Lyme Journey As the saying goes, “hindsight is 20/20.” It’s easy for us to …MORE

Tick-Borne Disease: The Year in Review

by Jennifer Crystal A few highlights on the advances in Lyme in 2019 The end of the year can be a time for reflection. What have we achieved? What losses have we endured? How have …MORE

Dealing With Brain Fog

by Jennifer Crystal What is brain fog, exactly? What does it feel like? What can a patient do to get rid of it? Writing a weekly blog post is a thrilling and rewarding process. I …MORE

A GREAT YEAR OF PROGRESS: GIVING THANKS TO OUR ...

With 2019 drawing to a close, I want to take a moment to thank you for being a part of our community. Your generous support—whether in research dollars, program participation, or simply standing in solidarity …MORE

The Avril Lavigne Foundation and GLA Discuss Ti...

Real change happens when we work together. This is especially true when it comes to advancing the Lyme disease and tick-borne illness agenda, be it through research, awareness, funding, or patient support. At Global Lyme …MORE

Risk-Benefit Analysis of Tick-Borne Disease Tre...

by Jennifer Crystal Asking important questions when it comes to Lyme treatment. Do the benefits outweigh the risks? At the 2019 International Lyme and Associated Diseases Society (ILADS) conference in Boston, there was a lot …MORE

Gratitude for the Long Game

by Jennifer Crystal In the current political climate, one is often reminded of Martin Luther King’s quote, a paraphrase of abolitionist minister Theodore Parker, that “The arc of the moral universe is long, but it …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Here she answers some questions she recently received. Do you have a question for Jennifer? If so, email her at …MORE

Lyme: The Differential Diagnosis

By Jennifer Crystal With overlapping symptoms, how do you know that you have Lyme and not another disease? It’s important to consider all health factors A patient recently asked me, “How do you know you …MORE

Highlights from ILADS 2019

By Jennifer Crystal A RECAP OF THE 20TH ANNUAL ILADS CONFERENCE From November 1 to 3, I had the opportunity to attend the 20thannual International Lyme and Associated Diseases Society (ILADS) conference in Boston. Tick-borne …MORE

On Disclosure: When and How Much to Tell

By Jennifer Crystal Patients often ask me when, and how much information they should disclose about their illness(es) to employers, new or casual acquaintances, or dates. While there’s no set answer to these questions, my …MORE

Unraveling Spirochetes

by Jennifer Crystal Lyme disease is a complex illness, not just because it manifests in the body in different ways, but because it is also very difficult to diagnose. The Lyme disease bacterium itself, Borrelia …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Here she answers some questions she recently received. Do you have a question for Jennifer? Email her at [email protected] Can …MORE

Rest: The Most Important Message of My Dreams

by Jennifer Crystal Tick-borne illness and sleep disturbances One of the most difficult symptoms of neurological tick-borne illness is sleep disturbances. In addition to insomnia, I battled detailed, fast-paced, hallucinogenic dreams and nightmares that often …MORE

Traveling With Tick-Borne Illness

by Jennifer Crystal For many people, summer means travel, but for Lyme patients, vacationing is not as simple as it was in our healthier days. I miss being able to just throw a pair of …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column, “Dear Lyme Warrior … Help!”, to answering your questions. Here are her answers to questions she has recently received. Do you have a question …MORE

The Aches and Pains of Tick-Borne Illnesses

by Jennifer Crystal The first time I saw the award-winning Lyme documentary Under Our Skin, I was seated in the theater. In the film, a doctor who doesn’t believe in chronic Lyme was asked what …MORE

Building Resilience

by Jennifer Crystal Last spring was incredibly stressful for me. With adrenaline, good maintenance routines, and a bit of luck, I completed an intense amount of written work, a teaching load that included a lot …MORE

Not All Lyme Rashes Are Created Equal

by Jennifer Crystal Lyme disease: that’s the illness you get when you find a bulls-eye rash, right? It very well could be, but here’s the catch. The bulls-eye rash isn’t the only sign of Lyme …MORE

Podcast: In The Lymelight – Dr. Casey Kelley

WELCOME TO IN THE LYMELIGHT: A SHOW ABOUT…WELL…LYME DISEASE Season 2, episode 4 Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber …MORE

Men, Ticks, and Lyme Disease

Why do more men get diagnosed with Lyme disease than women? Is it chance? Is it job related (think about outdoor workers such as landscapers)? Or do they view the initial risk of a tick …MORE

Leading Lyme Disease Expert Weighs in on New St...

Guest Point of View: John Aucott, M.D., Director of the Johns Hopkins Lyme Disease Clinical Research Center; Associate Professor of Medicine, Johns Hopkins University School of Medicine   In a recently published study, the authors* …MORE

Podcast: In the Lymelight – The Intuitive...

WELCOME TO IN THE LYMELIGHT: A SHOW ABOUT…WELL…LYME DISEASE Season 2, episode 3 Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber …MORE

Reframing Restrictions

by Jennifer Crystal A few months ago, someone told me that my life has a lot of restrictions. From a certain perspective, this statement seems true. To thrive in the context of chronic tick-borne illness, …MORE

A Hard Day’s Night

By Marisa Mann Fighting Lyme and Mast Cell Activation Syndrome After Dark Can you imagine a life where you wake up at least one night a week with violent food poisoning? No, I’m not talking …MORE

Podcast: In the Lymelight – Comedian and Hypnot...

WELCOME TO IN THE LYMELIGHT: A SHOW ABOUT…WELL…LYME DISEASE Season 2, episode 2 Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber …MORE

GLA POV: Microbiome analysis of Ixodes scapular...

by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA GLOBAL LYME ALLIANCE’S CHIEF SCIENTIFIC OFFICER OFFERS PERSPECTIVE ON NEW RESEARCH OUT OF COLUMBIA UNIVERSITY WITH ANALYSIS OF BLACKLEGGED TICKS   Ixodes scapularis, the blacklegged tick, is …MORE

Lyme Disease is Causing a Mental Health Crisis:...

By Kerry Heckman Note: This post discusses self-harm and suicide. If you feel suicidal or a danger to yourself or others, PLEASE call the National Suicide Prevention Lifeline: 1-800-273 TALK (8255),or text “HOME” to 741741 …MORE

The Time Warp of Tick-Borne Illness

by Jennifer Crystal   I’d already lost three years of my life to illness. Then I got a taste of resumed independence and health, only to have those intimations of well-being quashed once more. The …MORE

Treating Instead of Denying Yourself

by Jennifer Crystal Spring is a time of rebirth and renewal.  Many people engage in some kind of spring cleaning, whether it is airing out their homes or themselves. People open their windows and shake …MORE

Dear Lyme Warrior…Help!

By Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Below are her responses to a few recently received questions. Do you have a question for Jennifer? If so, email …MORE

Spring REALLY Will Come

by Jennifer Crystal This time of year can be a tease. With daylight savings time, the sun is suddenly brighter, and there are hints of warmer weather coming, Not surprisingly, we start to think it’s almost …MORE

Be a Victor, Not a Victim

by Jennifer Crystal Many patients of tick-borne disease take years to get diagnosed. A lucky few ones find a bull’s-eye rash or an embedded tick, go to a physician who just happens to be Lyme …MORE

Video Interview with Dr. Neeta Connally at WCSU

Dr. Mayla Hsu, Ph.D., Director of Research and Science at Global Lyme Alliance interviews Dr. Neeta Connally, Ph.D., medical entomologist, associate professor and Director of the Tickborne Disease Prevention Laboratory at Western Connecticut State University. …MORE

What Does it Mean to Herx?

by Jennifer Crystal Sometimes when I’m describing tick-borne illness, I feel like I’m speaking a foreign language. Most people have heard of Lyme disease—though too many mistakenly call it “Lyme’s” when there is actually no …MORE

Request for Information: Input on NIH Tick-born...

Below is a letter from Global Lyme Alliance’s Chief Scientific Officer in response to the NIH’s request for information to their Tick-borne Diseases Strategic Plan   As Chief Scientific Officer of GLA, I herewith respond …MORE

Lyme Isn’t a Choice

by Jennifer Crystal Please don’t give in to denial and fear. If you think you might have a tick-borne disease and have been avoiding going to an LLMD, or if you have been diagnosed with …MORE

Don’t Settle For Good Enough

by Jennifer Crystal In life, we’re often told not to settle. We don’t want to take a job or enter a relationship simply because it seems good enough. Doing so might bring short-term gains, but in …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Here are her answers to some recently received questions. Do you have a question for Jennifer? Email her at [email protected]MORE

Financing Tick-Borne Disease

by Jennifer Crystal Having Lyme disease is expensive. It can take a toll on you in more ways than one. Below are some resources and insights to help you or the patient in your life. …MORE

Can’t Versus Shouldn’t

by Jennifer Crystal “Should” is one of my least favorite words. Society gets us caught up in the idea of what we “should” be doing—we should work more, exercise more, take on more—and that puts …MORE

Starting Small in the New Year

by Jennifer Crystal New Year’s Day is supposed to be a time of renewal. People celebrate and make resolutions for a fresh start. But for Lyme patients and those with chronic illness, New Year’s can …MORE

Hope For the Holidays

by Jennifer Crystal The holidays are supposed to be the happiest time of the year. But for many people with chronic illnesses—and others suffering in different ways—the holidays can be really difficult. If you’re bedridden …MORE

Top 7 Science-Based Events to Impact Lyme Disea...

GLA’s Chief Scientific Officer and Director of Research and Science identified the Top 7 science-based events to impact the Lyme disease community in 2018   Connection Between Lyme Disease and Depression GLA-funded investigator, Brian Fallon …MORE

Meet the Researcher: Catherine Brissette, Ph.D.

MEET THE RESEARCHER IS A BLOG SERIES TO INTRODUCE GLA-FUNDED LYME DISEASE RESEARCHERS MAKING A DIFFERENCE IN THE FIGHT AGAINST LYME DISEASE. #MEETTHERESEARCHER NAME: Catherine Brissette, Ph.D. TITLE: Associate Professor, Biomedical Sciences INSTITUTION: University of North …MORE

Together in Partnership: Giving thanks to an am...

With 2018 drawing to a close, I want to take a moment to thank you for being a part of our community. Your generous support—whether in research dollars, program participation, or simply standing in solidarity …MORE

GLA Counters IDSA’s Criticisms of Tick-Borne Di...

GLA’s Chief Scientific Officer Provides Evidence-based Rebuttal of IDSA Letter to Head of HHS and Tick-Borne Disease Working Group Report   by Timothy J. Sellati, Chief Scientific Officer, Global Lyme Alliance Last month, the Tick-Borne …MORE

The Value of Visualization

by Jennifer Crystal When I was bedridden with Lyme disease and two of its co-infections—babesia and ehrlichia— people sometimes asked if I had tried meditation. Usually, tired of unsolicited advice from yet another person who …MORE

A Marathon Accomplishment by Team GLA Runners

Completing the TCS New York City Marathon, all 26.2 miles of it, is an amazing feat for anyone, let alone for those who suffer from Lyme. Yet last month, five Lyme warriors did exactly that, …MORE

Avoiding Reminders Until You’re Ready

by Jennifer Crystal When I was very sick with Lyme disease and two of its co-infections—specifically, babesia and ehrlichia—friends invited me to a Warren Miller ski movie. Every season, the renowned filmmaker put out a …MORE

A Different Kind of Denial

by Jennifer Crystal In my recent post The Danger of Denial, I spoke about the consequences of denying symptoms or diagnoses when battling serious illness like tick-borne disease. For years I ignored my health issues, …MORE

Five Warriors Tackle the Ultimate Road Race for...

Five runners gave new meaning to the term “Lyme warrior” on Sunday, November 4, 2018, as they completed in the largest marathon in the world—the TCS New York City Marathon. Representing Global Lyme Alliance’s first …MORE

Requests for Tick-borne Disease Research Reach ...

by Mayla Hsu, Ph.D., Director of Research & Science, GLA It is no surprise that when funding for research lags, associated progress in science and medicine slows. Perhaps no area of health research illustrates this …MORE

New Research Article, “Ticking Bomb” Offers Int...

A study by Igor Dumic and Edson Severnini entitled “Ticking Bomb: The Impact of Climate Change on the Incidence of Lyme Disease” published in Canadian Journal of Infectious Diseases and Medical Microbiology describes the relationship …MORE

Holidays: Relishing the In-Between Times

by Jennifer Crystal The build-up to Halloween is always an exciting time for kids. There’s so much anticipation—what will I be? What will my friends be? How much candy will I get? After the final …MORE

Highlights from LDA/Columbia Lyme Disease Confe...

Highlights from LDA/Columbia 19th Annual Scientific Conference Lyme & Tick-Borne Diseases: Turning the Corner Through Research   Global Lyme Alliance (GLA) recently attended a conference jointly organized by Lyme Disease Association, Inc. and Columbia University. The meeting …MORE

GLA POV: Essential Oils as Treatment Against Ly...

by Mayla Hsu, Ph.D., Director of Research and Science, GLA Global Lyme Alliance’s Director of Research and Science offers perspective on newly published research on using essential oils to treat Lyme disease   Global Lyme …MORE

Dear Lyme Warrior … Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Here are her replies to questions she has recently received. Do you have a question for Jennifer? If so, email …MORE

Scheduling Life with Lyme Disease

by Jennifer Crystal Flexible vs. rigid? How keeping to a schedule can impact one’s life with Lyme disease.   In 2007, I suffered a severe relapse of Lyme and two of its tick-borne co-infections Babesia …MORE

Meet the Researcher: Ying Zhang, M.D., Ph.D.

MEET THE RESEARCHER IS A BLOG SERIES TO INTRODUCE GLA-FUNDED LYME DISEASE RESEARCHERS MAKING A DIFFERENCE IN THE FIGHT AGAINST LYME DISEASE. #MEETTHERESEARCHER NAME: Ying Zhang, M.D., Ph.D. TITLE: Professor at Department of Molecular Microbiology …MORE

The Idea of Hope

by Jennifer Crystal Hope is a tricky concept for patients with chronic illnesses. It is something everyone—healthy or sick—wants, but summoning hope is not always easy when the world around you looks bleak. Someone can …MORE

Avril Lavigne and GLA: Head Above Water Campaign

Avril Lavigne recently stated that fighting Lyme Disease has been the hardest battle she’s ever fought. If you are reading this post, we have no doubt you understand the sentiment. The Avril Lavigne Foundation supports individuals …MORE

GLA POV: Identifying Vancomycin as an effective...

by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA Global Lyme Alliance’s Chief Scientific Officer offers perspective on newly published GLA-funded research out of Northeastern University   Although the underlying premise of a recent study by …MORE

REMEMBERING ONE OF OUR OWN

by Scott Santarella, CEO of Global Lyme Alliance Kasey Passen was driven to help others in the fight against Lyme disease Some people have dreams about changing people’s lives but, through no fault of their …MORE

The Danger of Denial

by Jennifer Crystal One of the many rewards of writing this weekly blog is connecting with patients and caregivers all over the world. I receive emails from people telling me their stories and asking me …MORE

The Spectrum of Lyme

by Jennifer Crystal Just this week, I heard from yet another friend who had found an engorged tick on her child. With tick populations soaring, it’s not surprising that so many people are being bitten …MORE

To Sleep, Perchance to Dream

by Jennifer Crystal GLA writer and Lyme Warrior, Jennifer Crystal writes about her experience with “crazy dreams” as a result of neurological Lyme disease Last night I had a dream that a college friend and …MORE

Meet the Researcher: Kim Lewis, Ph.D.

MEET THE RESEARCHER IS A BLOG SERIES TO INTRODUCE GLA-FUNDED LYME DISEASE RESEARCHERS MAKING A DIFFERENCE IN THE FIGHT AGAINST LYME DISEASE. #MEETTHERESEARCHER NAME: Kim Lewis, Ph.D. TITLE: University Distinguished Professor; Director, Antimicrobial Discovery Center; Department …MORE

Enjoying the Summer While Living with Lyme

by Jennifer Crystal When I first moved to Boston, I took a Duck Boat tour of the city. As the amphibious vehicle cruised the Charles River, the driver pointed out Spaulding Rehabilitation Hospital. I looked …MORE

Dealing with Lyme-related Fear

by Jennifer Crystal Last week I wrote about the well-founded fear of ticks which alarms us every summer, but especially now that infected tick populations are on the rise. Getting a tick bite that could …MORE

Tick Discovery Highlights How Few Answers We Ha...

By Melinda Wenner Moyer on June 26, 2018 for Scientific American As Lyme and other tick-borne diseases worsen in the U.S., new efforts seek to fill in the gaps Last August Tadhgh Rainey, division manager at the Hunterdon …MORE

Managing Fear of Ticks During the Summer

by Jennifer Crystal I’m that friend. The friend who checks out your Facebook photos and comments “tick check!” every time you post a picture of a hike in the woods, or of your child rolling …MORE

Meet the Researcher: Timothy J. Sellati, Ph.D.

Meet the Researcher is a blog series to introduce GLA-funded Lyme disease researchers, and in this case, GLA’s Chief Scientific Officer.   #Meettheresearcher NAME: Timothy J. Sellati, Ph.D. TITLE: Chief Scientific Officer Dr. Sellati has …MORE

MY JOURNEY TO A CHRONIC LYME DISEASE DIAGNOSIS

By Jordan Younger Repurposed with permission from the writer for GLA.org It’s time for a mega health update, especially if you’ve seen my Instagram over the last week or so. I have been sharing openly there about …MORE

Tribute to The Men of Lyme

by Jennifer Crystal In my blog post “Gender and Lyme: Is Tick-Borne Disease Different for Women?”, I cited a study by John Aucott, M.D., of Johns Hopkins University which found that more men than women …MORE

Things I Never Thought I Would Do Before Lyme

by Kerry J. Heckman On one hand a doctor treating Lyme may recommend antibiotics, and on the other hand, a doctor treating an autoimmune disease may recommend immunosuppressants. It’s very difficult to know which is …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Here are her replies to questions she has recently received. Do you have a question for Jennifer? If so, email …MORE

Honoring the Past, Embracing the Future

by Jennifer Crystal A friend recently shared with me the news that her grandmother had passed away. “She was 97,” she said. “It’s not like we didn’t know it was coming, but it’s still sad.” …MORE

Podcast: In The Lymelight Episode 7

A Story of Remission: Ana Saldamando Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, …MORE

Saluting the Caretakers of Lyme Patients

by Jennifer Crystal On Mother’s Day, I read a Facebook post that said “For the sake of equity, shouldn’t we show appreciation for mothers every day?” I agree. But if we’re talking equity, shouldn’t we …MORE

GLA Greenwich Gala 2018: Highlights

Global Lyme Alliance honored Lyme disease patients and researchers at its annual Greenwich Gala on Saturday, May 12 at the Hyatt Regency Greenwich. The event supports GLA’s mission to conquer Lyme and other tick-borne diseases …MORE

GLA: Lyme Disease Research Symposium 2018

Highlights from GLA’s 8th Annual Research Symposium with top Lyme Disease Researchers   by Timothy J. Sellati, Ph.D., Chief Scientific Officer, GLA (pictured: GLA’s Scott Santarella and Dr. Timothy Sellati with GLA grantee Dr. Nicole Baumgarth) …MORE

Lyme’s Life Lessons: Sonya Rolin and Tatiana Do...

INTRODUCING GLA GREENWICH GALA CO-CHAIRS: PART 3 OF SERIES   Anyone struggling with Lyme disease knows it can pretty much take over your life. It is an exhausting, socially isolating, life-altering illness that causes many …MORE

A Mother and Daughter’s 12-Year Quest for...

Introducing GLA Greenwich Gala Co-Chairs: Part 2 of Series   Not every Lyme patient is lucky enough to have a family that stands by their side when no one else will. That’s why Christina Womble …MORE

#VBGIVESBACK: STACI GRODIN

Republished with permission from Veronicabeard.com For the month of April 2018, veronicabeard.com will donate $10 from every sale to Global Lyme Alliance as part of their ongoing #VBGIVESBACK program. For over two years Staci Grodin …MORE

The Pros and Cons of Social Media When You Have...

by Kerry J. Heckman Before I was diagnosed with Lyme disease, I’d already been diagnosed with multiple autoimmune disorders. At the time, I turned to the internet to learn about diet protocols and treatment options …MORE

A Mother, A Supporter, A Lyme Warrior: Stephani...

Introducing GLA Greenwich Gala Co-Chairs: Part 1 of Series   Three years ago, Stephanie Ercegovic (pictured with husband, Brian Foster) began a medical journey that took her from one doctor’s office to the next as …MORE

Video – Living with Lyme disease: A young...

Video created by the Poughkeepsie Journal Ella Buss, 9, was diagnosed with chronic Lyme disease in 2016. Her mother and family have become advocates for Ella and others who suffer from the disease. For more …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Here are her answers to questions she has recently received. Do you have a question for Jennifer? Email her at …MORE

You’re Not Crazy—You Have Lyme

By Jennifer Crystal I knew there was something physically wrong with me, but when my blood work came back clean and I didn’t fit into any classic diagnostic box, the nurses decided the symptoms were …MORE

Podcast: In The Lymelight Episode 6

Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, yes, the “heavy” stuff, but also …MORE

Seasons of Lyme

By Jennifer Crystal The change in seasons is usually an exciting time for most, but the jump from season to season can be especially trying for Lyme patients In the past couple weeks, many people …MORE

GLA POV: FDA Clears Quidel Lyme Disease Immunoa...

by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA Global Lyme Alliance’s Chief Scientific Officer offers perspective on the new FDA approved Lyme disease blood test. The U.S. Food and Drug Administration recently cleared the Quidel company’s …MORE

What is Air Hunger, Anyway?

By Jennifer Crystal Chronic Lyme disease & its co-infections, like Babesia, can produce unique symptoms. One of them is referred to as air hunger.   Listen to the audio version of this blog here: When …MORE

New test for Babesia approved by the FDA

by Mayla Hsu, Ph.D. Director, Research and Science Global Lyme Alliance Screening the blood supply for infectious microbes should be an obvious and ongoing health sector priority, especially for those microbes known to cause disease. …MORE

Could a pathogen be the cause of Alzheimer’s di...

By Philip Perry Originally published on bigthink.com For the last 40 years, a minority of researchers have considered the notion that a pathogen might be behind Alzheimer’s disease. In 2011, Judith Miklossy (former GLA Scientific Advisory Board member) and fellow …MORE

Are Mold and Mycotoxins Compromising Your Recov...

By Jennifer Crystal When I was in elementary school, I developed a barking cough every spring. Loud, disruptive and persistent, the cough drew annoyed looks from teachers and students alike. Hearing me coming down the …MORE

GLA Point of View on “First Multiplex Tes...

by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA Advances in Serodiagnostic Testing for Lyme Disease Are at Hand …the TBD-Serochip represents an important advance and significant improvement over existing tests for tick-borne diseases (TBDs), which …MORE

Coming to Terms With the Truth About My Health

by Emily Croot #MyLymeLife Learning to acknowledge my Lyme disease is a powerful gift that only I can give to myself I recently rewatched one of my favorite TED talks, Susan David’s “The Gift and …MORE

Feed Your Body to Fight Lyme

by Kenzie Vath It has been a long nine years since I was diagnosed with Lyme disease. I have been suffering from chronic Lyme for twice as long or over 18 years. After my diagnosis, …MORE

Learning to Love Lyme/ A lesson in self-underst...

By Jennifer Crystal The recent celebration of Valentine’s day got me thinking about past posts I’ve written about the holiday. I’ve written about various matters of the heart: about Lyme carditis and about Valentine’s Day as …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Here are her answers to questions she has recently received. Do you have a question for Jennifer? Email her at …MORE

What’s In a Name? When talking about Lyme...

by Jennifer Crystal Before becoming so debilitated by illness that I could not work, I was a high school English teacher. My ninth grade students read Shakespeare’s Romeo and Juliet, and I’ll never forget our …MORE

GLA Point of View on New Lyme Disease Study

by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA A study funded in part by Global Lyme Alliance could spur further investigation into the cause of persistent symptoms, a source of medical controversy. A controversial aspect of …MORE

CureTalks – Listen Now

Highlights from the International Lyme and Associated Diseases (ILADS), 18th Annual Scientific Conference – Boston Lyme disease is an illness caused by the bacteria Borrelia burgdorferi, a complex microbe known as a spirochete. Lyme disease is …MORE

In The Lymelight Episode 5

Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Limelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, yes, the “heavy” stuff, but also …MORE

Forget Ebola, Sars and Zika: ticks are the next...

by Mackenzie Kwak Ticks carry a wide array of pathogens – and environmental changes mean they are spreading Since the beginning of our species we have been at war. It’s a continuous, neverending fight against the …MORE

My #1 Headache Trigger? Lyme disease

By Jennifer Crystal Listen to the audio version of this blog below: Skiing has always been part of my life. I went to a college in Vermont that had its own ski run. After graduation, …MORE

We Are the World: What I Learned About the Glo...

By Jennifer Crystal It’s frightening that tick-borne disease is so globally prevalent. But I’m encouraged that so many doctors and scientists are studying the problem and sharing their findings. As 2017 drew to a close, …MORE

Not Immune

by Erin Walker Something is Not Right   As the wife of PGA TOUR player and major winner Jimmy Walker, I am used to supporting him during challenges. In April of this year, my husband …MORE

Making the Holidays Work For You

By Jennifer Crystal Many people with Lyme disease don’t have the physical capacity to celebrate the holidays. But that doesn’t mean you can’t enjoy them! Here are some tips to work around your illness during …MORE

GLA POV: Advances in Serodiagnostic Testing for...

by Timothy J. Sellati, Ph.D. Chief Scientific Officer Global Lyme Alliance GLA Point of View on “Advances in Serodiagnostic Testing for Lyme Disease Are at Hand” published in Clinical Infectious Diseases   In 2016, a scientific …MORE

Ticks Are a Year Round Threat: Don’t Let Lyme d...

By Jennifer Crystal Writer Jennifer Crystal discusses common Lyme disease misconceptions. Many are surprising! Read on to ensure you are up to date. In late November, a friend told me she’d just found an engorged …MORE

Chronic Illness is a Big Waste of Time

by Kerry Heckman #MyLymeLife Every Sunday evening I get out my pill organizer and about 20 bottles of medication and supplements. I set up a station at my table and start dividing pills into little …MORE

In The Lymelight Episode 4: Things I wish I kne...

Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Limelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, yes, the “heavy” stuff, but also …MORE

How Chronic Lyme Disease Changed My Life

by Skye Cowie How a professional athlete at the start of her career was sidelined by chronic Lyme disease People always say that life can change in a blink of an eye, but I never …MORE

Chronic Lyme Disease Series: Bryce’s Story

Reprinted with the permission of itslyme.com #MyLymeLife Doctors tested me for MS, ALS, Lupus, Lyme disease and vitamin deficiencies but everything kept showing up normal. When I was 18 I got very sick with a flu-like …MORE

TURN YOUR ANGER INTO ACTION

By Lori Dennis I’ve been in the Lyme world for several years now. And if there’s one palpable emotion that reverberates throughout this community … it’s anger. For reasons we all understand, Lyme sufferers and …MORE

Highlights from ILADS Boston 2017

by Jennifer Crystal A Lyme Warrior’s take on ILADS Boston 2017 Tick-Borne Diseases: The Global Perspective   This past weekend, November 9 through 12,  I had the opportunity to attend the International Lyme and Associated …MORE

Video: GLA CEO Scott Santarella’s speech ...

Scott Santarella’s speech from the gala highlights GLA’s mission and some notable accomplishments in the past 12 months Good evening. I am Scott Santarella, CEO of the Global Lyme Alliance. It’s an honor to be …MORE

Dear Lyme Warrior…Help!

By Jennifer Crystal Every couple months, Lyme Warrior Jennifer Crystal devotes a column to answering her readers’ questions. Here are her answers to questions she is frequently asked. I found a bullseye rash, but my …MORE

In The Lymelight Episode 3

Welcome to In The Lymelight: a show about…well…Lyme Disease.   In the Limelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, yes, the “heavy” stuff, but …MORE

How Pets Help Us Heal

by Kerry Heckman #MyLymeLife It’s a proven fact that pets help us heal. Just petting your animal all by itself is known to lower blood pressure. It will also release the relaxation hormone oxytocin in …MORE

Podcast: In The Lymelight Episode 2

Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, yes, the “heavy” stuff, but also …MORE

Bursting the “Woods of New England”...

by Jennifer Crystal THE COMMON MYTH THAT LYME DISEASE ONLY EXISTS IN NEW ENGLAND. Last summer, a friend who lives in Oklahoma found a classic bullseye rash on her seven-year-old daughter. “That’s a spider bite,” …MORE

Chronic Lyme Disease Series: Chelsea’s Story

Reprinted with the permission of itslyme.com #MyLymeLife My Lyme disease story starts two years ago. At 27 I was fully devoted to my career and would blow off steam from a long day’s work at …MORE

Podcast: In The Lymelight

Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, yes, the “heavy” stuff, but also …MORE

The Dangers of Playing Doctor

by Jennifer Crystal Being a Lyme-literate patient doesn’t mean you’re a Lyme-literate doctor. It’s important to know the difference.   Remember the old TV ad where the actor says, “I’m not a doctor, but I …MORE

Post Traumatic Growth: Reframing the Trauma of ...

by Jennifer Crystal Jennifer Crystal discusses how you can grow from chronic illness trauma and how it can change your life for the better.   After reading one of the most intense chapters of my upcoming memoir—about …MORE

Should I Tell My Employer I Have Lyme Disease?

by Jennifer Crystal The chronic illness conundrum. When personal issues enter the workplace.   One of the many factors that led to my 2007 relapse was a huge research project I was doing for the …MORE

Chronic Lyme Disease Series: Kelly’s Story

By Kelly Gibson Reprinted with the permission of itslyme.com #MyLymeLife With modeling, I was on my feet 8-12 hours a day on jobs or running from casting to casting, and was under severe pressure from …MORE

Lyme Disease: The View from Canada

by Lori Dennis #MyLymeLife Lori Dennis shares insight into the Lyme madness facing Lyme patients in Canada   Ever since my adult son fell ill with Lyme in the fall of 2012 and we were …MORE

Dear Lyme Warrior … Help!

by Jennifer Crystal EVERY COUPLE MONTHS, LYME WARRIOR JENNIFER CRYSTAL DEVOTES A COLUMN TO ANSWERING YOUR QUESTIONS. HERE ARE HER ANSWERS TO QUESTIONS SHE IS FREQUENTLY ASKED.   Do you have a question for Jennifer? …MORE

Natural Isn’t Always Better: Getting Real About...

by Jennifer Crystal Our society’s focus on living naturally has created a stigma around the “dangers” of pharmaceutical medications. But for patients with complex illnesses, like Lyme, it’s not that simple.   One of the most …MORE

A Lyme Warrior Bites Back

Heidi Buono wants others to have a fighting chance against Lyme disease. She is raising awareness about Lyme and other tick-borne diseases through her “Bite Back Against Lyme Run-Walk” in Albany, NY.   Nine years …MORE

Adjusting to a Lyme Diet

by Emily Croot #MyLymeLife Learning to Love What There is to Eat When You’re on a Lyme Diet   For anyone familiar with the Lyme diet, you will know that while it is a useful …MORE

Partisan Politics in Lyme Disease

by Jennifer Crystal This past year we’ve seen our country’s politics become sharply divided, even though our politicians are supposed to be working together for the greater good of the American people. Watching the news, …MORE

Podcast: tick bite prevention

Our Director of Research and Science, Dr. Mayla Hsu talks to us about tick bite prevention, and what you can do to protect yourself from tick-borne infections.     Transcript below: Lindsy: Welcome everyone, I’m …MORE

Tough Mudder and Lyme Disease

by Scott Santarella, CEO, Global Lyme Alliance I have always been intrigued by the endurance event concept and its connection to charity fundraising. More specifically, I have been a huge fan of Tough Mudder, which …MORE

Care Versus Overcare: A Fine Line

by Jennifer Crystal Well-meaning Lyme caregivers can easily cross the line from care to overcare. Here are some simple rules to follow for both patient and caregiver.   Recently a friend was going through a …MORE

The Roller Coaster of Lyme Disease

by Kerry Heckman #MyLymeLife Living with Lyme disease comes with constant ups and downs   The MRI results were sitting in my email inbox a week before my doctor’s appointment. I couldn’t bring myself to …MORE

Promising New Research: PrEPping for Ticks

by Mayla Hsu, Ph.D. Director, Research and Science Global Lyme Alliance Stopping Lyme disease before it starts. Promising new research based on pre-exposure prophylaxis, or PrEP.   It’s frustrating that there are so few ways …MORE

7 Tips to Organize Your Medications

by Jennifer Crystal 7 Tips to Organize Your Medications, from One Lymie to Another   Every Sunday morning, I pull out a big bag of pills and set about organizing my medications for the week. …MORE

Tough Mudder Weekly Training Tips

By Sean Aqareva, Certifed Personal Trainer #TeamGLA Trainer Sean Aqareva of Multilevel Fitness offers weekly training tips for our Tough Mudder participants.   Hey guys, This week we are going to tone it down a …MORE

Dear Lyme Warrior … Help!

by Jennifer Crystal Every couple months, Lyme Warrior Jennifer Crystal devotes a column to answering your questions. Here are her answers to questions she is frequently asked.   Do you have a question for Jennifer? …MORE

You’re Not Alone Anymore

by Jesse Ruben #MyLymeLife My battle with Lyme Disease was easily the most difficult experience of my life. A journey that lasted almost 3 years, that included more than 15 doctors, several incorrect diagnoses, and …MORE

The Pursuit of Answers: What My Doctors Said

by Susan Pogorzelski #MyLymeLife What was the path to your Lyme diagnosis?   I’m in middle school the first time it happens. I’m 13, I think. Possibly younger. We’ve just returned from a school camping …MORE

A Letter to My Sick Self

by Bonnie van Geffen #MyLymeLife One Lyme Warrior’s Letter to Herself   Dear Me, Dear Humiliated Me, Please don’t ever call your body weak again. It had to fight so much for so long, that …MORE

When I Miss My Life Before Lyme

by Kerry Heckman #MyLymeLife Do you reminisce about your life before Lyme?   This morning my co-worker walked around to each of our offices to tell us that there were muffins the conference room left …MORE

Meditation and Lyme: How it Helps, How it Doesn’t

by Kerry Heckman #MyLymeLife Without a cure, meditation can provide a relief of Lyme symptoms.   Sometimes meditation is offered up as a cure-all for chronic illness. This is certainly not true, and occasionally dissuades …MORE

A Lymie’s View from 39

by Jennifer Crystal Birthdays and milestones can have a different meaning for Lymies and people with a chronic illness.   When I was six or seven years old, I asked a great-aunt how old she …MORE

Determination Through Despair: A Lyme Warrior S...

by Susan Pogorzelski #MyLymeLife From one Lyme warrior to another.   I’d be lying if I said this wasn’t a difficult time. I’m still struggling to recover from this disease—the raw feelings surrounding this daily …MORE

Fear of Lyme Reinfection

by Jennifer Crystal Hoping you don’t get another tick bite and Lyme reinfection this spring.   This time of year always makes me happy: the tulips come out, everything blooms, and the world feels hopeful …MORE

Lyme Moms: We Salute You

by Jennifer Crystal A tribute to the mothers of children with Lyme disease and mothers with Lyme disease, out there on the front lines fighting for awareness, research, treatment, and validation.   When I was …MORE

Loving Yourself Through Lyme Disease

by Susan Pogorzelski #MyLymeLife Living with Lyme disease can damage both your body and your soul. How do you take care of yourself, emotionally?   This May it will be five years since I was …MORE

Dear Lyme Warrior … Help!

by Jennifer Crystal Every couple months, Lyme Warrior Jennifer Crystal devotes a column to answering your questions. Here are her answers to questions she is frequently asked.   Do you have a question for Jennifer? …MORE

Why I’m Getting Dirty for Lyme Disease

by Scott Santarella, CEO, Global Lyme Alliance pictured here with GLA teammate, Lindsy Brophy I need your support for Team GLA and Tough Mudder   On Sunday, July 23rd I will Captain the Global Lyme Alliance …MORE

Fighting ‘Fight or Flight’

by Jennifer Crystal Does stress impact your Lyme symptoms? How do you react?   For a few days last week, I had trouble napping. This is usually a result of being physically and neurologically overtaxed, …MORE

Taking Lyme One Day-Minute-Second At A Time

by Jennifer Crystal How do you manage Lyme symptoms that can change day by day, minute by minute, second by second?   Last weekend in Boston we had a nor’easter. I wondered if it was …MORE

Short-Circuited by Lyme Disease

by Jennifer Crystal Understanding how everyday functions can be short-circuited by Lyme disease.   During my 2007 relapse, I was sent to a state-approved doctor who was supposed to decide if I really had Lyme …MORE

When We Build Cathedrals

by Susan Pogorzelski #MyLymeLife Finding the strength to build when your chronic illness leaves you feeling exhausted and invisible.   I recently read a powerful story by author and speaker Nicole Johnson about a gift …MORE

GLA: Lyme Disease Research Symposium Highlights

by Mayla Hsu, Ph.D Director of Research and Science, GLA GLA hosts top researchers to discuss Lyme disease research.   How can we understand Lyme disease better? Are there drugs that can kill persistent bacteria? Why …MORE

Chronic Fatigue or Feeling Tired?

by Kerry Heckman #MyLymeLife There is a difference between chronic fatigue and feeling tired. Have you developed chronic fatigue as a result of your Lyme disease?   I remember the moment when my husband said, …MORE

What’s Luck Got to Do with Lyme Disease?

by Jennifer Crystal For many Lyme disease patients, luck starts with getting an accurate diagnosis.   Whenever someone hears my story and says, “Wow, you’ve really been through the wringer,” I respond, “Yes, it was …MORE

The Mighty White-Footed Mouse

by Mayla Hsu, Ph.D., GLA Director of Research and Science What makes the white-footed mouse more mighty than a lab mouse when it comes to tolerating Borrelia burgdorferi, the bacterium that causes Lyme disease?   …MORE

Lyme Lies

by Susan Pogorzelski #MyLymeLife How does your illness speak to you?   There it is again—that voice in the back of my mind, growing louder, crushing my confidence and making me feel worse.“You’re sick,” it …MORE

Podcast: Tick-Borne Co-Infections, Bartonella a...

Bartonella is a tick-borne co-infection. As with Lyme disease, its symptoms can be debilitating.   While the most common tick-borne infection is Lyme disease, infected ticks may carry more than one kind of microbe or …MORE

Fear of Relapse

by Jennifer Crystal Is Lyme disease ever really gone from your body? Relapsing is a constant reminder and reality that the bacteria are still lurking.   I am writing a memoir about my journey with …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every couple of months, Lyme Warrior Jennifer Crystal will devote a column to answering your questions. Here are her answers to some frequently asked questions she has recently received.   Do you …MORE

Why You Should Never Make Fun of a Restricted Diet

by Kerry Heckman #MyLymeLife For some patients with chronic illness, including Lyme disease, a restricted diet can improve their lives. So why the ridicule?   The jokes are everywhere. There is a popular meme that …MORE

It’s OK to Be Angry

by Jennifer Crystal What role does anger play in your Lyme journey?   For the last three winters, I have had the opportunity to teach an intensive “Healing Through Writing” course at my alma mater. …MORE

The Lyme Disease Divide

How to Make Sense of Conflicting Lyme Disease Facts   by Scott Santarella, CEO, Global Lyme Alliance With the possible exception of HIV, no infectious disease in recent history has been as misunderstood and divisive …MORE

Keep It Simple: You’re Just Tired

by Jennifer Crystal Fatigue is such a central part of Lyme disease that it can be easy to overlook. Don’t.   Recently I was on the phone with a friend telling her my woes. Angst …MORE

A Matter of the Heart

by Jennifer Crystal Lyme carditis: When it comes to maladies of the heart, don’t overlook Lyme disease and its co-infections.   In the summer of 1999, after studying abroad in Paris, I backpacked with a friend …MORE

How to Be Your Own Health Detective

by Kerry J. Heckman #MyLymeLife Getting an accurate Lyme diagnosis can take years. With poor diagnostic tools and limited support patients are often forced to be their own health detectives. Here are six tips to …MORE

Groundhog Day: Casting a Shadow on Lyme Disease

by Jennifer Crystal The repetitiveness of living with Lyme disease can feel like Groundhog Day, over and over again.   When I was studying in France, I had dinner with my landlady on Groundhog Day. …MORE

Dreaming of Better Days

by Susan Pogorzelski #MyLymeLife Do you dream of the day when rest is a choice, not a need? And when your friends and family truly understand the toll that Lyme disease takes on your body …MORE

Winter Ticks Take a Toll: Rise of the “Gh...

by Hannah Staab Over the past few decades, warmer winters have been associated with major declines in the moose population. These massive and majestic animals are dying across the U.S.—from Maine, New Hampshire and Vermont …MORE

Being Lyme Brave

by Susan Pogorzelski #MyLymeLife When you’re finally diagnosed with Lyme disease there’s a feeling of hope. That hope can turn to pain and desperation as new treatments induce Herxheimer reactions.   “Does she have Lyme …MORE

Podcast: Lyme Disease and Tick-Borne Co-Infections

The most common tick-borne infection is Lyme disease. However, infected ticks also carry and spread numerous co-infections.   The newest Global Lyme Alliance podcast, with GLA’s Dr. Harriet Kotsoris and Dr. Mayla Hsu, discusses Lyme disease …MORE

Living with Lyme Brain

by Jennifer Crystal Short-term memory loss, confusion, brain fog, and word repetition are just a few symptoms of Lyme brain experienced by many Lyme patients. How has Lyme brain affected you? Listen to the audio …MORE