Lobbying for Lyme Disease on Capitol Hill
March 9, 2020
Learning first-hand the power of coming together to get things done, as Lyme patients and advocates joined together in Washington, D.C. to lobby for Lyme disease research and awareness
Blog
April 19, 2024
Read about a Lyme warrior's advocacy journey through creativity, leading to a powerful musical adaptation of Olivia Goodreau's memoir, But She Looks Fine. It was Tuesday, February 20th– I was nervousl...
Blog
April 19, 2024
Learn how Lyme disease can impact bladder health and discover treatment options for symptoms like frequent urination and bladder pain. Understand the connection between Lyme disease and interstitial c...
Blog
April 3, 2024
Explore the differences between Babesiosis and Bartonellosis, uncovering the complexities of vector-borne diseases and the challenges of diagnosis and treatment. Before I was diagnosed with tick-borne...
Blog
March 25, 2024
Learn how to navigate the challenges of working with Lyme disease, from rights and accommodations to disclosure and disability options. Find support and resources for managing your career while living...
Blog
March 19, 2024
Learn how glutathione can help support Lyme disease symptoms like brain fog and fatigue. From Jennifer Crystal's personal experience, learn its benefits and the importance of consulting a Lyme Literat...
All Blog Posts
Dear Lyme Warrior…Help! Herxheimer Reactions and Colleges in High Tick Areas
March 6, 2020
By Jennifer Crystal
Are Current Tick Prevention Methods for Dogs Working?
March 2, 2020
With all the pills, vaccines, collars, and topicals spent on tick prevention methods for dogs, why do cases of Lyme disease and other tick-borne illnesses in dogs continue to rise?
Why Is Lyme Disease So Hard to Treat?
February 28, 2020
For many Lyme disease patients, the bacteria seem to outsmart antibiotic treatment. Why?
Stop the Itching! Lyme and Hives
February 13, 2020
Do you get unexplained hives? Could it be Lyme disease?
When Nothing’s Funny, Even Simulated Laughter Can Be Good Medicine
February 6, 2020
by Jennifer Crystal
The Making of a Lyme Disease Research Scientist
January 22, 2020
Most Lyme disease stories start with a tick bite and symptoms. But Ashley Groshong’s (pictured) Lyme disease odyssey began by peering down a microscope lens. As a young biology student at the Universi...
Why Good Science is Crucial
January 21, 2020
While the road to drug discovery and new treatment options for Lyme disease may seem slow, it’s imperative that the science is sound.
A GREAT YEAR OF PROGRESS: GIVING THANKS TO OUR AMAZING COMMUNITY
December 19, 2019
With 2019 drawing to a close, I want to take a moment to thank you for being a part of our community. Your generous support—whether in research dollars, program participation, or simply standing in so...
The Avril Lavigne Foundation and GLA Discuss Tick-Borne Disease at Global Health Forum
December 18, 2019
Real change happens when we work together. This is especially true when it comes to advancing the Lyme disease and tick-borne illness agenda, be it through research, awareness, funding, or patient sup...
Gratitude for the Long Game
November 27, 2019
Though we may spiral through difficult times, we must remember that we are still moving forward, if slowly. One is often reminded of Martin Luther King’s quote, a paraphrase of abolitionist minister T...
Dear Lyme Warrior…Help! Migratory Pain and Chronic Lyme Disease
November 21, 2019
Every few months, Jennifer Crystal devotes a column to answering your questions. Here she answers some questions she recently received. Do you have a question for Jennifer? If so, email her at lymewar...
The Difficulty—and Importance—of Asking for Help
October 22, 2019
Why is asking for help so hard? Sometimes it’s necessary, especially when you are chronically ill
In The Lymelight: Dating and Relationships with DJ McKerr
October 17, 2019
IN THE LYMELIGHT: A SHOW ABOUT … WELL … LYME DISEASE
William Beesmer: Why Giving Back is So Important for This Lyme Patient
October 16, 2019
Life hasn’t always been easy for William Beesmer, a life-long resident of West Hurley, New York. Born into an impoverished family in 1943, he and his 15 brothers and sisters grew up in a home without ...
Kids and Lyme Disease: Cognitive Symptoms and School
September 5, 2019
Kids and Lyme disease, part 2. This blog addresses some common cognitive Lyme disease symptoms among children and how they may present in school
Peer-to-Peer Support: A Personal Passion and Mission
August 28, 2019
GLA launched its Peer-to-Peer Mentor Support program in June 2019. The inspiration for this important program was our friend Kasey Passen.
Kids and Lyme Disease: Time for a Post-Summer Symptom Check
August 21, 2019
Kids and Lyme disease, part 1. This blog addresses some common physical Lyme disease symptoms among children that may appear at early stage of the disease
PODCAST: IN THE LYMELIGHT – Gwyn Prentice
August 19, 2019
IN THE LYMELIGHT: A SHOW ABOUT … WELL … LYME DISEASE Season 2, Episode 6 with Gwyn Prentice, co-founder and creator of Helen Jon
How to Be an Advocate with Your Non-Lyme Doctor
August 16, 2019
Here are 10 tips to most effectively work with your non-Lyme doctor
Meet Team GLA for the 2019 TCS New York City Marathon
August 14, 2019
Meet the Team GLA runners for the 2019 TCS New York City Marathon. All 5 have personal reasons for taking on the 26.2 mile run through the streets of New York City.
GLA Response to Proposed IDSA/AAN/ACR 2019 Draft Lyme Disease Guidelines
August 13, 2019
The Infectious Diseases Society of America (IDSA), along with the American Academy of Neurology (AAN), and the American College of Rheumatology (ACR), recently published a public request for comments ...
Ticks are Everywhere. Don’t Believe Me? I was Bitten in My Own Bed.
August 2, 2019
By Caroline Lewis
How the New "Maybe It's Lyme" Article Hurts Lyme Patients
July 26, 2019
Is this becoming a trend? Another opinion piece on Lyme disease that dismisses post-treatment and chronic Lyme disease. The author calls these debilitating stages of Lyme an “identity” for people rath...
Dear Lyme Warrior…Help! Memory Loss and How to Travel with Lyme Disease
July 24, 2019
by Jennifer Crystal
The Aches and Pains of Tick-Borne Illnesses
July 23, 2019
For those with Lyme disease, the physical pain can be incredibly uncomfortable and difficult to deal with. The first time I saw the award-winning Lyme documentary Under Our Skin, I was seated in the t...
GLA Letter to Assistant Secretary of Health Re: TBDWG
July 18, 2019
Below is text from the letter sent to the Assistant Secretary of Health at the U.S. Department of Health and Human Services regarding changes to the 2019 Tick-Borne Disease Working Group, by GLA Chair...
How to Keep Ticks Out of Your Party and Off Your Guests
July 17, 2019
You’ve gone through your party checklist from guests to food, but did you add tick prevention to your list? Follow these simple tips to keep ticks out of your party and off your guests.
3 Tips to Protect Your Kids from a Tick Bite at Summer Camp
July 16, 2019
Summer camp can be one of the most memorable experiences for kids. It’s often the first taste of independence, fun from sunrise to sundown, and making lasting memories. A sure-fire way to make summer ...
Not All Lyme Rashes Are Created Equal
July 8, 2019
Lyme disease: that’s the illness you get when you find a bulls-eye rash, right?
One Article Cannot Dismiss the Facts About Lyme Disease
July 3, 2019
Updated on July 9 to include link to GLA’s Letter to the Editor that was submitted, and accepted, by The New York Times.
Podcast: In The Lymelight - Dr. Casey Kelley
July 1, 2019
WELCOME TO IN THE LYMELIGHT: A SHOW ABOUT…WELL…LYME DISEASE Season 2, episode 4
Men, Ticks, and Lyme Disease
June 28, 2019
Why do more men get diagnosed with Lyme disease than women? Is it chance? Is it job related (think about outdoor workers such as landscapers)? Or do they view the initial risk of a tick bite indiffere...
REGAINING CONTROL …of your day, life… Why agency is important for Lyme warriors
June 28, 2019
by Jennifer Crystal
Stop the Music! How to X Out the Songs and Words That Keep Playing in Your Head
June 14, 2019
by Jennifer Crystal
Leading Lyme Disease Expert Weighs in on New Study Showing Public Health Crisis
June 6, 2019
Guest Point of View: John Aucott, M.D., Director of the Johns Hopkins Lyme Disease Clinical Research Center; Associate Professor of Medicine, Johns Hopkins University School of Medicine
Podcast: In the Lymelight - The Intuitive Swan, Kelsey Mazeski
June 5, 2019
WELCOME TO IN THE LYMELIGHT: A SHOW ABOUT…WELL…LYME DISEASE Season 2, episode 3
Podcast: In the Lymelight – Comedian and Hypnotist Chris Jones
May 21, 2019
WELCOME TO IN THE LYMELIGHT: A SHOW ABOUT…WELL…LYME DISEASE Season 2, episode 2
GLA POV: Microbiome analysis of Ixodes scapularis ticks from New York and Connecticut
May 20, 2019
by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA
WellBe Founder Adrienne Nolan-Smith’s Journey to Beat Chronic Lyme Disease
May 10, 2019
By Adrienne Nolan-Smith
Podcast: In the Lymelight – A Reflection on Two Years With Lyme Disease
May 6, 2019
Welcome to in the Lymelight: A Show About…Well…Lyme Disease Season 2, episode 1
Living with Lyme: Treating Instead of Denying Yourself
April 19, 2019
When you have Lyme disease, how else can you fill yourself up rather than deplete yourself? Spring is a time of rebirth and renewal. Many people engage in some kind of spring cleaning, whether it is a...
GLA POV: Ability of Stationary Phase Persister/Biofilm Microcolonies of Borrelia burgdorferi to Cause More Severe Disease
April 3, 2019
by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA
Video Interview with Dr. Neeta Connally at WCSU
March 28, 2019
Dr. Mayla Hsu, Ph.D., Director of Research and Science at Global Lyme Alliance interviews Dr. Neeta Connally, Ph.D., medical entomologist, associate professor and Director of the Tickborne Disease Pre...
GLA: Lyme Disease Research Symposium 2019
March 28, 2019
HIGHLIGHTS FROM GLA’S 2019 LYME DISEASE RESEARCH SYMPOSIUM WITH TOP LYME RESEARCHERS
Turning Sickness into Strength: GLA Partners with Mighty Well
March 22, 2019
Just because I am sick doesn’t mean I have to live a sick life. When I was first diagnosed, I felt that people looked at me as a sick person and not the strong and confident woman I am. I know that th...
What is Herxing? And What Does it Mean to Herx?
March 15, 2019
What does herx mean? Sometimes when I’m describing tick-borne illness, I feel like I’m speaking a foreign language. Most people have heard of Lyme disease—though too many mistakenly call it “Lyme’s” w...
Request for Information: Input on NIH Tick-borne Diseases Strategic Plan
March 14, 2019
Below is a letter from Global Lyme Alliance’s Chief Scientific Officer in response to the NIH’s request for information to their Tick-borne Diseases Strategic Plan
I Just Got Diagnosed with Lyme Disease. What Should I Do?
February 15, 2019
Welcome to the school of Lyme. Here are six tips for those newly diagnosed with Lyme disease. Every day, I receive emails from people who have recently been diagnosed with Lyme disease. As most of us ...
Dear Lyme Warrior…Help! Lyme Diets and Working Full-Time with Lyme
February 8, 2019
by Jennifer Crystal
A Different Kind of Lyme Journey
January 22, 2019
Brooke Procida Takes to the Road to Promote Lyme Disease Healing
A Tribute to Rick LaPierre, Our Friend and Advocate
January 14, 2019
Remembering our friend who advocated for patients with chronic illness
Podcast: Outbreak News Interview on Lyme Disease, TBDWG, and IDSA
January 3, 2019
Robert Herriman with Outbreak News interviews GLA’s Chief Scientific Officer Timothy Sellati, Ph.D. to discuss Lyme disease, the Tick-borne Disease Working Group, and the IDSA
Hope For the Holidays
January 2, 2019
The holidays are supposed to be the happiest time of the year. But for many people with chronic illnesses—and others suffering in different ways—the holidays can be really difficult. If you’re bedridd...
Top 7 Science-Based Events to Impact Lyme Disease in 2018
December 17, 2018
GLA’s Chief Scientific Officer and Director of Research and Science identified the Top 7 science-based events to impact the Lyme disease community in 2018
Meet the Researcher: Catherine Brissette, Ph.D.
December 13, 2018
MEET THE RESEARCHER IS A BLOG SERIES TO INTRODUCE GLA-FUNDED LYME DISEASE RESEARCHERS MAKING A DIFFERENCE IN THE FIGHT AGAINST LYME DISEASE. #MEETTHERESEARCHER NAME: Catherine Brissette, Ph.D. TITLE: ...
Together in Partnership: Giving thanks to an amazing community
December 11, 2018
With 2018 drawing to a close, I want to take a moment to thank you for being a part of our community. Your generous support—whether in research dollars, program participation, or simply standing in so...
GLA Counters IDSA’s Criticisms of Tick-Borne Disease Working Group Report
December 10, 2018
GLA’s Chief Scientific Officer Provides Evidence-based Rebuttal of IDSA Letter to Head of HHS and Tick-Borne Disease Working Group Report
A Marathon Accomplishment by Team GLA Runners
December 6, 2018
Completing the TCS New York City Marathon, all 26.2 miles of it, is an amazing feat for anyone, let alone for those who suffer from Lyme. Yet last month, five Lyme warriors did exactly that, running t...
Five Warriors Tackle the Ultimate Road Race for Lyme
November 6, 2018
Five runners gave new meaning to the term “Lyme warrior” on Sunday, November 4, 2018, as they completed in the largest marathon in the world—the TCS New York City Marathon.
Requests for Tick-borne Disease Research Reach an All-Time High
November 5, 2018
by Mayla Hsu, Ph.D., Director of Research & Science, GLA
