2020 - Global Lyme Alliance 2020 - Global Lyme Alliance

Victoria’s Story

This blog post is part of our People to Highlight Series during our 2020 Year-End Appeal. Each week we’ll be spotlighting a GLA community member who has helped to advance our mission. To support GLA …MORE

Lessons from Lyme: Lockdown Isn’t Forever

by Jennifer Crystal With COVID-19 cases surging, many states are returning to lockdown, and those that aren’t may soon be headed that way. The first time we were in lockdown, it was almost spring, so …MORE

Ali’s Story

This blog post is part of our People to Highlight Series during our 2020 Year-End Appeal. Each week we’ll be spotlighting a GLA community member who has helped to advance our mission. To support GLA …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Do you have a question for Jennifer? If so, email her at [email protected] How did you know when you were …MORE

Jack’s Story

This blog post is part of our People to Highlight Series during our 2020 Year-End Appeal. Each week we’ll be spotlighting a GLA community member who has helped to advance our mission. To support GLA …MORE

Raising Lyme Disease Awareness in Mexico

GLA Lyme Education Ambassador, Daniela Acosta was joined by experts for a week-long webinar series addressing Lyme disease in Mexico. Daniela is a student at Tecnologico de Monterrey, Mexico who helped support this timely educational …MORE

The Similarities Between Post-COVID-19 and Lyme...

Tens of thousands of people in the U.S. have lingering illness following COVID-19, known as post-Covid “long haulers.” Why do some people recover relatively quickly from Lyme disease and Covid-19, and a significant number do …MORE

Wondering What to Say to a Lyme Patient? Try Th...

by Jennifer Crystal A bereaved creative writing student of mine recently lamented how infrequently friends and family talk about her lost loved one. “When she was alive, everyone asked how she was doing,” the student …MORE

When Interpretation of Results Misses the Bull’...

by Timothy J. Sellati, Ph.D., Chief Scientific Officer, GLA New Danish study published in JAMA Psychiatry misses the mark on the link between Lyme disease and psychiatric disorders The Infectious Disease Society of America, the …MORE

Patient Spotlight: Samantha’s Story

This blog post is part of our People to Highlight Series during our 2020 Year-End Appeal. Each week we’ll be spotlighting a GLA community member who has helped to advance our mission. To support GLA …MORE

Candida and Lyme

by Jennifer Crystal Strategies and treatments for Lyme patients to avoid Candida overgrowth When I was a teenager, I used to get yeast infections during the summers because I was always in a wet bathing …MORE

Caregiver Spotlight: Dr. Sarah Maxwell

This blog post is part of our People to Highlight Series during our 2020 Year-End Appeal. Each week we’ll be spotlighting a GLA community member who has helped to advance our mission. To support GLA …MORE

What Avril Lavigne’s Virtual #FightLyme C...

by Jennifer Crystal On October 24th, I had the opportunity to virtually attend the #FightLyme with Avril & Friends concert to benefit The Avril Lavigne Foundation and Global Lyme Alliance. Hosted by Wilmer Valderrama with special …MORE

Flu Symptoms: Could It Be Lyme Disease or COVID?

Shared symptoms can make it hard to diagnose the aches and pains typically associated with the flu Heading outside? Especially after months of quarantining, the outdoors provides a much-needed escape, from a simple walk around …MORE

Ask Dr. Kelley: Cold, Flu & COVID-19

It’s cold, flu, and COVID season. Below is a patient-doctor Q&A with tips and info from an MD. Interview by Alex Moresco As a Lyme disease patient that also suffers from Specific Antibody Deficiency (in …MORE

My Lyme Disease Is In Remission. How Do I Keep ...

by Jennifer Crystal The first time my doctor said the word “remission” for my late disseminated Lyme disease, I cheered.I’d been in treatment for Lyme and two of its co-infections, babesiosis and ehrlichiosis, for over …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Do you have a question for Jennifer? If so, email her at [email protected] Should Lyme patients get the flu vaccine? …MORE

Living in the Present While Worrying About the ...

by Jennifer Crystal Tips and resources for living in the present during challenging times. As schools resume and cooler weather rolls in, the country is bracing for a possible second wave of COVID-19. The U.S. …MORE

Breaking Down Lyme Disease and the Blood-Brain ...

by Jennifer Crystal In previous posts, I’ve mentioned the blood-brain barrier and the fact that tick-borne illnesses can cross it and infect the central nervous system. Daniel Cameron, M.D. and I also talked about the …MORE

What Lyme Patients Can Teach Us About the New N...

by Jennifer Crystal The start of a new school year is usually a time of excitement: new pencils, new books, new teachers and classmates. While there’s always some trepidation for students, teachers, and parents alike, …MORE

Lyme Arthritis and Inflammation: Shut It Off!

A summary of 3 Lyme arthritis studies and how our immune system can fail to shut off when there’s an infection. by Mayla Hsu, Ph.D., Director of Research and Science, GLA Arthritis is one of …MORE

COVID 19: Am I Immune?

Does a positive antibody test mean a person is immune and safe from spreading the virus? by Robert Kobre, Chairman, Global Lyme Alliance The Global Lyme Alliance (“GLA”) has acquired an expertise in antibodies and …MORE

Have You Heard of the Tick-Borne Disease Babesi...

by Jennifer Crystal Lyme disease isn’t the only illness you can get from a tick bite Babesiosis, a tick-borne infection caused by the parasite Babesia (most commonly, Babesia microti, though there are other species like …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Do you have a question for Jennifer? If so, email her at [email protected] Do you usually feel a tick bite? …MORE

The need for an alternative to current antibody...

by Timothy J. Sellati, Ph.D., Chief Scientific Officer, Global Lyme Alliance An early and accurate test result is critical to effectively treat most diseases. Especially Lyme disease. The earlier one is diagnosed and treated, the …MORE

Cooling Off When Swimming Isn’t an Option

by Jennifer Crystal Heat can take a toll when living with Lyme disease Summer is usually a time for celebration, relaxation, and fun in the sun, but 2020 presents special challenges. Due to the pandemic  …MORE

Corona With a Twist of Lyme: Part 4

by Jennifer Crystal As many of you know from my previous blog posts and my webinar with Daniel Cameron, M.D., I got sick with COVID-19 in mid-March. I have charted my progress with in Corona With …MORE

I Found a Tick on Me, Now What?

It’s important to follow these simple tips when you find a tick on you, whether it’s attached or unattached   After months of mandatory quarantines and shutdowns, you’ve no doubt happily ventured outdoors by now …MORE

We’re Not Out of the Woods Yet

by Jennifer Crystal It’s finally Summer! The heat has arrived, the sun is out, and everyone wants to be outside. Before we begin to romp too freely in the great outdoors, however, we have to …MORE

The Lyme Voices You Didn’t Hear at TBDWG ...

The Tick-borne Disease Working Group (TBDWG) issued a public request to hear from patients willing to share their stories for its July 8, 2020 meeting. It’s an important part of these meetings, where the public …MORE

Overcoming Lyme Disease GI Issues with Kate Farms

by Christina Kovacs Patients who have late disseminated (post-treatment, chronic, or neurological) Lyme are usually told to reduce foods that cause inflammation or sensitivity. This means eliminating gluten, soy, and dairy. Lyme Disease is known …MORE

Do we need clinical trials, even for long-used ...

With the need for fast treatment options, for COVID-19 and other diseases, is it necessary to re-approve drugs already approved by the FDA? by Timothy J. Sellati, Ph.D., Chief Scientific Officer, Global Lyme Alliance There …MORE

Lyme Arthritis: The Antibody Connection

by Mayla Hsu, Ph.D., Director of Research and Science, GLA Lyme disease, caused by Borrelia burgdorferi bacteria, often leads to arthritis, with up to 60 percent of late-stage patients suffering from painful joints and swelling. …MORE

Calculating Risks

by Jennifer Crystal When living with Lyme disease and making decisions in regards to your health, it’s important to weigh the dangers, benefits, and consequences. It’s called taking calculated risks. When I got my PICC …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Do you have a question for Jennifer? If so, email her at [email protected] I have tried several different medications for …MORE

You Know Your Body Best

by Jennifer Crystal …we grow up thinking of doctors as all-knowing. Whatever ‘the doctor’ said—be it the Primary Care Physician, the family doctor, or the ER doctor—was once deemed absolute. This doesn’t have to be …MORE

Managing Burning Extremities

by Jennifer Crystal Dealing with unexplained symptoms? Don’t rule out Lyme & other tick-borne diseases Last night I went to sleep about an hour past my usual bedtime. Revved up from a busy day which …MORE

Is the Clinical Trials Process Working?

GLA’s Chief Scientific Officer takes an important look at our current clinical trials process. Is it still working? Does it serve patient needs?   by Timothy J. Sellati, Ph.D., Chief Scientific Officer, Global Lyme Alliance …MORE

The Advantage of Public-Private Partnerships to...

GLA’s CEO Scott Santarella shares his insight on how scientific advancements that benefit patients can be accelerated through public-private partnerships, as he witnessed during his previous work in cancer research, and see now with both …MORE

Lyme Patients, Make Your Voice Heard

Time-sensitive: Act now to make your voice heard at the national level by submitting your comments to the tick-borne disease working group by June 24th Science shows that chronic Lyme exists. Now it’s time for …MORE

The Comfort of Solidarity

by Jennifer Crystal When I was bedridden with Lyme disease, two tick-borne co-infections babesia and ehrlichia, and chronic Epstein-Barr virus, I often felt terribly alone. Friends and family did their best to try to understand …MORE

Speaking Up for the Immunocompromised

by Jennifer Crystal I live in a high-rise apartment building with a common laundry room for hundreds of apartments. The long, narrow room is lined with ten washers and dryers, with barely enough space for one …MORE

One Bite Is All It Takes – Lyme Awareness...

GLA’s campaign wrap-up for Lyme Disease Awareness Month 2020 May was National Lyme Disease Awareness Month, a time to come together to spread awareness about Lyme disease, and also show support of those living with …MORE

Corona With a Twist of Lyme: Part 3

by Jennifer Crystal Since writing “Corona With a Twist of Lyme: Part 1” and following up with a sequel a few weeks later, I’ve received many emails from those who wonder how I’m doing. In …MORE

COVID-19: Is a Vaccine the Answer?

Point of View: Looking through the Lyme disease lens in weighing the vaccine and treatment path for COVID-19   by Robert Kobre, Chairman, Global Lyme Alliance The United States is currently in a struggle between …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Do you have a question for Jennifer? If so, email her at [email protected] How do you know if antibiotics are …MORE

The Importance of Being Vigilant

by Jennifer Crystal From medication issues to prescription errors and medical bills, these areas require heightened vigilance when dealing with tick-borne illness In a recent blog post “Don’t Forget It’s Tick Season, Too”, I discussed …MORE

Lyme Disease Research Remains Active During Pan...

GLA-funded researchers are still focused on their Lyme disease research initiatives   by Mayla Hsu, Ph.D., Director of Research and Science, GLA During this period of quarantines and social distancing, it is important to remember …MORE

What a Difference a Year Makes

by Jennifer Crystal When I was little, my grandmother used to sing the Dinah Washington song, “What a difference a day makes, twenty-four little hours…” Later, memories of her singing those lyrics carried me through …MORE

PODCAST: In The Lymelight – Lyme Awarenes...

IN THE LYMELIGHT: A SHOW ABOUT … WELL … LYME DISEASE by Alex Moresco In The Lymelight · Lyme Awareness Month Podcast – 5:3:20, 2.24 PM   Welcome to In The Lymelight: a show about…well…Lyme …MORE

Research Sharing: What Can Lyme Disease Learn f...

Is it possible to leverage research findings and treatment options for malignant cancers, like skin cancer, for Lyme disease?   by Timothy J. Sellati, Ph.D., Chief Scientific Officer, Global Lyme Alliance At the outset, the …MORE

Don’t Forget It’s Tick Season, Too

by Jennifer Crystal While everyone is quarantined at home people have one illness in mind: COVID-19. It’s why we wear gloves and masks, why we sanitize anything we touch, and the reason we practice social …MORE

Pandemics, Ecology, and Food Production: Is The...

Why and how do pandemics emerge? Is there a connection between our ecosystems and global food production?   by Mayla Hsu, Ph.D., Director of Research and Science, GLA Why do infectious disease pandemics emerge? In …MORE

Lyme and COVID-19 Panel: Follow-up Q and A

by Jennifer Crystal Last week, I had the opportunity to talk about my experience as a Lyme patient with COVID-19 on a panel with leading Lyme specialist Dr. Daniel Cameron. Thank you to everyone who …MORE

Corona With a Twist of Lyme: Part 2

by Jennifer Crystal I have been battling COVID-19 symptoms for almost five weeks. I have had Lyme disease and two tick-borne co-infections—babesia and ehrlichia—for twenty-three years, though my tick-borne diseases went undiagnosed for the first …MORE

Why Are Virus Infections Like COVID-19 Resistan...

While many bacteria can be treated with antibiotics, it’s not the same for virus infections like COVID-19   by Mayla Hsu, Ph.D., Director of Research and Science, GLA Why can’t we treat COVID-19 with antibiotics? …MORE

What Can We Learn from Our Response to COVID-19?

What can we learn from Lyme disease patients and our work in tick-borne disease research that can be applied to the current COVID-19 crisis?   by Robert Kobre, Chairman of the Board, Global Lyme Alliance …MORE

Top Ten Myths About Lyme Disease

by Jennifer Crystal Lyme is an enormously complex disease. To properly understand its symptomology, diagnostic issues, and treatment options, you’ve got to do a good deal of research. And that’s just for Lyme; there are …MORE

Parallel Pandemics: COVID-19 and Lyme Disease

Are there connections between COVID-19 and Lyme disease? by Timothy J. Sellati, Chief Scientific Officer, GLA There is only one region on the globe with no cases of COVID-19. Except for Antarctica, every continent has …MORE

Lyme Disease Physician Answers Questions About ...

Patient-Doctor Q&A: Lyme Disease and COVID-19 Interview by Alex Moresco I have spent the last few weeks like many of you inundated and overwhelmed by the sheer enormity of the news coverage about COVID-19. Separating …MORE

Corona With a Twist of Lyme

by Jennifer Crystal Our nation is in a crisis about novel coronavirus COVID-19, and no one is more fearful than those with pre-existing conditions. These patients, along with the elderly, are at high risk if …MORE

The Importance of Digging Deep

by Jennifer Crystal I was a telling a date last night about my Lyme journey. He responded, “I read an article that said Lyme can be cured, but then I read another that said it …MORE

Lyme Brain: The Science and the Experience

by Jennifer Crystal At the 2019 International Lyme and Associated Diseases Society (ILADS) conference in Boston, infectious disease specialist Francine Hanberg, M.D. gave a talk about the causes and manifestations of “Lyme brain” called “Neuropathology …MORE

Letter from CEO About COVID-19 and GLA Community

The well-being of our community is an ongoing priority for Global Lyme Alliance (GLA). The current COVID-19 pandemic has created a new set of challenges for everyone, especially those whose health is already challenged due …MORE

Research POV: Lyme Arthritis and Peptidoglycan

Important study identifies the Borrelia burgdorferi peptidoglycan as an immunogen likely to cause Lyme arthritis in some patients   by Mayla Hsu, Ph.D., Director of Research and Science, GLA A longstanding mystery in Lyme disease …MORE

Lyme Education Ambassadors: Active In the Commu...

Global Lyme Alliance’s (GLA) Lyme Education Ambassador Program (LEAP) has been busy since it began in August 2018, thanks to a growing team of dedicated volunteer Ambassadors   Working together to spread awareness drives change. …MORE

Lobbying for Lyme Disease on Capitol Hill

Learning first-hand the power of coming together to get things done, as Lyme patients and advocates joined together in Washington, D.C. to lobby for Lyme disease research and awareness   by Sara Tyghter, Director of …MORE

Dear Lyme Warrior…Help!

By Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Below she answers some that she’s recently received. Do you have a question for Jennifer? If so, email her at …MORE

The Leaps of Lyme

by Jennifer Crystal This year is a “leap year”, meaning that every four years we add February 29th to the calendar. This leap year got me thinking about the many leaps that are involved in …MORE

Why Is Lyme Disease So Hard to Treat?

For many Lyme disease patients, the bacteria seem to outsmart antibiotic treatment. Why?   It’s a hotly debated topic, and one that is still not completely understood – what causes the persistent symptoms in many …MORE

Mixed Messages: Finding Your Truth

by Jennifer Crystal Why is there so much conflicting information on Lyme disease? Here are a few tips on how to cope One student in the “Writing to Heal” course I teach recently wrote a …MORE

Stop the Itching! Lyme and Hives

by Jennifer Crystal Do you get unexplained hives? Could it be Lyme disease? Four years after I was bitten by a tick—and four years before I would be diagnosed with three tick-borne illnesses: Lyme, babesia, and …MORE

When Nothing’s Funny, Even Simulated Laughter C...

by Jennifer Crystal In 2016, I wrote a post called “Laughter Really Can Be the Best Medicine”. In it, I discussed the health benefits of laughter: it reduces stress and anxiety, decreases pain, strengthens resilience, …MORE

No Set Protocol

by Jennifer Crystal WHY ISN’T THERE A SET TREATMENT PROTOCOL FOR LYME DISEASE? Patients often write asking how I fought off Lyme and two other tick-borne diseases. I understand why they ask. When you read …MORE

The Making of a Lyme Disease Research Scientist

Most Lyme disease stories start with a tick bite and symptoms. But Ashley Groshong’s (pictured) Lyme disease odyssey began by peering down a microscope lens. As a young biology student at the University of Arkansas, …MORE

Why Good Science is Crucial

While the road to drug discovery and new treatment options for Lyme disease may seem slow, it’s imperative that the science is sound.   Lyme disease patients all know the thrill of hearing through the …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Below she answers some that she’s recently received. Do you have a question for Jennifer? If so, email her at …MORE

2020 Vision For Lyme Warriors

by Jennifer Crystal Here are some things I now know for sure, things I wish I’d known, looking back on my Lyme Journey As the saying goes, “hindsight is 20/20.” It’s easy for us to …MORE

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