2020 - Global Lyme Alliance 2020 - Global Lyme Alliance

Managing Burning Extremities

by Jennifer Crystal Dealing with unexplained symptoms? Don’t rule out Lyme & other tick-borne diseases Last night I went to sleep about an hour past my usual bedtime. Revved up from a busy day which …MORE

Is the Clinical Trials Process Working?

GLA’s Chief Scientific Officer takes an important look at our current clinical trials process. Is it still working? Does it serve patient needs?   by Timothy J. Sellati, Ph.D., Chief Scientific Officer, Global Lyme Alliance …MORE

The Advantage of Public-Private Partnerships to...

GLA’s CEO Scott Santarella shares his insight on how scientific advancements that benefit patients can be accelerated through public-private partnerships, as he witnessed during his previous work in cancer research, and see now with both …MORE

Lyme Patients, Make Your Voice Heard

Time-sensitive: Act now to make your voice heard at the national level by submitting your comments to the tick-borne disease working group by June 24th Science shows that chronic Lyme exists. Now it’s time for …MORE

The Comfort of Solidarity

by Jennifer Crystal When I was bedridden with Lyme disease, two tick-borne co-infections babesia and ehrlichia, and chronic Epstein-Barr virus, I often felt terribly alone. Friends and family did their best to try to understand …MORE

Speaking Up for the Immunocompromised

by Jennifer Crystal I live in a high-rise apartment building with a common laundry room for hundreds of apartments. The long, narrow room is lined with ten washers and dryers, with barely enough space for one …MORE

One Bite Is All It Takes – Lyme Awareness...

GLA’s campaign wrap-up for Lyme Disease Awareness Month 2020 May was National Lyme Disease Awareness Month, a time to come together to spread awareness about Lyme disease, and also show support of those living with …MORE

Corona With a Twist of Lyme: Part 3

by Jennifer Crystal Since writing “Corona With a Twist of Lyme: Part 1” and following up with a sequel a few weeks later, I’ve received many emails from those who wonder how I’m doing. In …MORE

COVID-19: Is a Vaccine the Answer?

Point of View: Looking through the Lyme disease lens in weighing the vaccine and treatment path for COVID-19   by Robert Kobre, Chairman, Global Lyme Alliance The United States is currently in a struggle between …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Do you have a question for Jennifer? If so, email her at [email protected] How do you know if antibiotics are …MORE

The Importance of Being Vigilant

by Jennifer Crystal From medication issues to prescription errors and medical bills, these areas require heightened vigilance when dealing with tick-borne illness In a recent blog post “Don’t Forget It’s Tick Season, Too”, I discussed …MORE

Lyme Disease Research Remains Active During Pan...

GLA-funded researchers are still focused on their Lyme disease research initiatives   by Mayla Hsu, Ph.D., Director of Research and Science, GLA During this period of quarantines and social distancing, it is important to remember …MORE

What a Difference a Year Makes

by Jennifer Crystal When I was little, my grandmother used to sing the Dinah Washington song, “What a difference a day makes, twenty-four little hours…” Later, memories of her singing those lyrics carried me through …MORE

PODCAST: In The Lymelight – Lyme Awarenes...

IN THE LYMELIGHT: A SHOW ABOUT … WELL … LYME DISEASE by Alex Moresco In The Lymelight · Lyme Awareness Month Podcast – 5:3:20, 2.24 PM   Welcome to In The Lymelight: a show about…well…Lyme …MORE

Research Sharing: What Can Lyme Disease Learn f...

Is it possible to leverage research findings and treatment options for malignant cancers, like skin cancer, for Lyme disease?   by Timothy J. Sellati, Ph.D., Chief Scientific Officer, Global Lyme Alliance At the outset, the …MORE

Don’t Forget It’s Tick Season, Too

by Jennifer Crystal While everyone is quarantined at home people have one illness in mind: COVID-19. It’s why we wear gloves and masks, why we sanitize anything we touch, and the reason we practice social …MORE

Pandemics, Ecology, and Food Production: Is The...

Why and how do pandemics emerge? Is there a connection between our ecosystems and global food production?   by Mayla Hsu, Ph.D., Director of Research and Science, GLA Why do infectious disease pandemics emerge? In …MORE

Lyme and COVID-19 Panel: Follow-up Q and A

by Jennifer Crystal Last week, I had the opportunity to talk about my experience as a Lyme patient with COVID-19 on a panel with leading Lyme specialist Dr. Daniel Cameron. Thank you to everyone who …MORE

Corona With a Twist of Lyme: Part 2

by Jennifer Crystal I have been battling COVID-19 symptoms for almost five weeks. I have had Lyme disease and two tick-borne co-infections—babesia and ehrlichia—for twenty-three years, though my tick-borne diseases went undiagnosed for the first …MORE

Why Are Virus Infections Like COVID-19 Resistan...

While many bacteria can be treated with antibiotics, it’s not the same for virus infections like COVID-19   by Mayla Hsu, Ph.D., Director of Research and Science, GLA Why can’t we treat COVID-19 with antibiotics? …MORE

What Can We Learn from Our Response to COVID-19?

What can we learn from Lyme disease patients and our work in tick-borne disease research that can be applied to the current COVID-19 crisis?   by Robert Kobre, Chairman of the Board, Global Lyme Alliance …MORE

Top Ten Myths About Lyme Disease

by Jennifer Crystal Lyme is an enormously complex disease. To properly understand its symptomology, diagnostic issues, and treatment options, you’ve got to do a good deal of research. And that’s just for Lyme; there are …MORE

Parallel Pandemics: COVID-19 and Lyme Disease

Are there connections between COVID-19 and Lyme disease? by Timothy J. Sellati, Chief Scientific Officer, GLA There is only one region on the globe with no cases of COVID-19. Except for Antarctica, every continent has …MORE

Lyme Disease Physician Answers Questions About ...

Patient-Doctor Q&A: Lyme Disease and COVID-19 Interview by Alex Moresco I have spent the last few weeks like many of you inundated and overwhelmed by the sheer enormity of the news coverage about COVID-19. Separating …MORE

Corona With a Twist of Lyme

by Jennifer Crystal Our nation is in a crisis about novel coronavirus COVID-19, and no one is more fearful than those with pre-existing conditions. These patients, along with the elderly, are at high risk if …MORE

The Importance of Digging Deep

by Jennifer Crystal I was a telling a date last night about my Lyme journey. He responded, “I read an article that said Lyme can be cured, but then I read another that said it …MORE

Lyme Brain: The Science and the Experience

by Jennifer Crystal At the 2019 International Lyme and Associated Diseases Society (ILADS) conference in Boston, infectious disease specialist Francine Hanberg, M.D. gave a talk about the causes and manifestations of “Lyme brain” called “Neuropathology …MORE

Letter from CEO About COVID-19 and GLA Community

The well-being of our community is an ongoing priority for Global Lyme Alliance (GLA). The current COVID-19 pandemic has created a new set of challenges for everyone, especially those whose health is already challenged due …MORE

Research POV: Lyme Arthritis and Peptidoglycan

Important study identifies the Borrelia burgdorferi peptidoglycan as an immunogen likely to cause Lyme arthritis in some patients   by Mayla Hsu, Ph.D., Director of Research and Science, GLA A longstanding mystery in Lyme disease …MORE

Lyme Education Ambassadors: Active In the Commu...

Global Lyme Alliance’s (GLA) Lyme Education Ambassador Program (LEAP) has been busy since it began in August 2018, thanks to a growing team of dedicated volunteer Ambassadors   Working together to spread awareness drives change. …MORE

Lobbying for Lyme Disease on Capitol Hill

Learning first-hand the power of coming together to get things done, as Lyme patients and advocates joined together in Washington, D.C. to lobby for Lyme disease research and awareness   by Sara Tyghter, Director of …MORE

Dear Lyme Warrior…Help!

By Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Below she answers some that she’s recently received. Do you have a question for Jennifer? If so, email her at …MORE

The Leaps of Lyme

by Jennifer Crystal This year is a “leap year”, meaning that every four years we add February 29th to the calendar. This leap year got me thinking about the many leaps that are involved in …MORE

Why Is Lyme Disease So Hard to Treat?

For many Lyme disease patients, the bacteria seem to outsmart antibiotic treatment. Why?   It’s a hotly debated topic, and one that is still not completely understood – what causes the persistent symptoms in many …MORE

Mixed Messages: Finding Your Truth

by Jennifer Crystal Why is there so much conflicting information on Lyme disease? Here are a few tips on how to cope One student in the “Writing to Heal” course I teach recently wrote a …MORE

Stop the Itching! Lyme and Hives

by Jennifer Crystal Do you get unexplained hives? Could it be Lyme disease? Four years after I was bitten by a tick—and four years before I would be diagnosed with three tick-borne illnesses: Lyme, babesia, and …MORE

When Nothing’s Funny, Even Simulated Laughter C...

by Jennifer Crystal In 2016, I wrote a post called “Laughter Really Can Be the Best Medicine”. In it, I discussed the health benefits of laughter: it reduces stress and anxiety, decreases pain, strengthens resilience, …MORE

No Set Protocol

by Jennifer Crystal WHY ISN’T THERE A SET TREATMENT PROTOCOL FOR LYME DISEASE? Patients often write asking how I fought off Lyme and two other tick-borne diseases. I understand why they ask. When you read …MORE

The Making of a Lyme Disease Research Scientist

Most Lyme disease stories start with a tick bite and symptoms. But Ashley Groshong’s (pictured) Lyme disease odyssey began by peering down a microscope lens. As a young biology student at the University of Arkansas, …MORE

Why Good Science is Crucial

While the road to drug discovery and new treatment options for Lyme disease may seem slow, it’s imperative that the science is sound.   Lyme disease patients all know the thrill of hearing through the …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Below she answers some that she’s recently received. Do you have a question for Jennifer? If so, email her at …MORE

2020 Vision For Lyme Warriors

by Jennifer Crystal Here are some things I now know for sure, things I wish I’d known, looking back on my Lyme Journey As the saying goes, “hindsight is 20/20.” It’s easy for us to …MORE

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