2019 - Global Lyme Alliance 2019 - Global Lyme Alliance

In The Lymelight: Dating and Relationships with...

IN THE LYMELIGHT: A SHOW ABOUT … WELL … LYME DISEASE Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber topic with biweekly …MORE

Unraveling Spirochetes

by Jennifer Crystal Lyme disease is a complex illness, not just because it manifests in the body in different ways, but because it is also very difficult to diagnose. The Lyme disease bacterium itself, Borrelia …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Here she answers some questions she recently received. Do you have a question for Jennifer? Email her at jennifercrystalwriter@gmail.com. Can …MORE

Rest: The Most Important Message of My Dreams

by Jennifer Crystal Tick-borne illness and sleep disturbances One of the most difficult symptoms of neurological tick-borne illness is sleep disturbances. In addition to insomnia, I battled detailed, fast-paced, hallucinogenic dreams and nightmares that often …MORE

Peer-to-Peer Support: A Personal Passion and Mi...

GLA launched its Peer-to-Peer Mentor Support program in June 2019. The inspiration for this important program was our friend Kasey Passen.   When Kasey Passen, a Chicago chef and nutrition expert, contacted Global Lyme Alliance’s …MORE

A Call to Unite, Not Divide

by Jennifer Crystal We are all in the Lyme battle together. Let’s be united, not divided.   In today’s divided times, we see a lot of hate on the internet. Politics have become more polarized …MORE

PODCAST: IN THE LYMELIGHT – Gwyn Prentice

IN THE LYMELIGHT: A SHOW ABOUT … WELL … LYME DISEASE Season 2, Episode 6 with Gwyn Prentice, co-founder and creator of Helen Jon Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lyme …MORE

How to Be an Advocate with Your Non-Lyme Doctor

by Jennifer Crystal Here are 10 tips to most effectively work with your non-Lyme doctor   Finding a good Lyme Literate Medical Doctor (LLMD) is hard enough. (If you’re having trouble finding one, GLA can …MORE

GLA Response to Proposed IDSA/AAN/ACR 2019 Draf...

The Infectious Diseases Society of America (IDSA), along with the American Academy of Neurology (AAN), and the American College of Rheumatology (ACR), recently published a public request for comments on the “2019 Draft Guidelines for …MORE

Traveling With Tick-Borne Illness

by Jennifer Crystal For many people, summer means travel, but for Lyme patients, vacationing is not as simple as it was in our healthier days. I miss being able to just throw a pair of …MORE

How the New “Maybe It’s Lyme”...

Is this becoming a trend? Another opinion piece on Lyme disease that dismisses post-treatment and chronic Lyme disease. The author calls these debilitating stages of Lyme an “identity” for people rather than an illness. And …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column, “Dear Lyme Warrior … Help!”, to answering your questions. Here are her answers to questions she has recently received. Do you have a question …MORE

The Aches and Pains of Tick-Borne Illnesses

by Jennifer Crystal The first time I saw the award-winning Lyme documentary Under Our Skin, I was seated in the theater. In the film, a doctor who doesn’t believe in chronic Lyme was asked what …MORE

Building Resilience

by Jennifer Crystal Last spring was incredibly stressful for me. With adrenaline, good maintenance routines, and a bit of luck, I completed an intense amount of written work, a teaching load that included a lot …MORE

Not All Lyme Rashes Are Created Equal

by Jennifer Crystal Lyme disease: that’s the illness you get when you find a bulls-eye rash, right? It very well could be, but here’s the catch. The bulls-eye rash isn’t the only sign of Lyme …MORE

Podcast: In The Lymelight – Dr. Casey Kelley

WELCOME TO IN THE LYMELIGHT: A SHOW ABOUT…WELL…LYME DISEASE Season 2, episode 4 Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber …MORE

Men, Ticks, and Lyme Disease

Why do more men get diagnosed with Lyme disease than women? Is it chance? Is it job related (think about outdoor workers such as landscapers)? Or do they view the initial risk of a tick …MORE

Leading Lyme Disease Expert Weighs in on New St...

Guest Point of View: John Aucott, M.D., Director of the Johns Hopkins Lyme Disease Clinical Research Center; Associate Professor of Medicine, Johns Hopkins University School of Medicine   In a recently published study, the authors* …MORE

Podcast: In the Lymelight – The Intuitive...

WELCOME TO IN THE LYMELIGHT: A SHOW ABOUT…WELL…LYME DISEASE Season 2, episode 3 Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber …MORE

Reframing Restrictions

by Jennifer Crystal A few months ago, someone told me that my life has a lot of restrictions. From a certain perspective, this statement seems true. To thrive in the context of chronic tick-borne illness, …MORE

A Hard Day’s Night

By Marisa Mann Fighting Lyme and Mast Cell Activation Syndrome After Dark Can you imagine a life where you wake up at least one night a week with violent food poisoning? No, I’m not talking …MORE

Podcast: In the Lymelight – Comedian and Hypnot...

WELCOME TO IN THE LYMELIGHT: A SHOW ABOUT…WELL…LYME DISEASE Season 2, episode 2 Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber …MORE

GLA POV: Microbiome analysis of Ixodes scapular...

by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA GLOBAL LYME ALLIANCE’S CHIEF SCIENTIFIC OFFICER OFFERS PERSPECTIVE ON NEW RESEARCH OUT OF COLUMBIA UNIVERSITY WITH ANALYSIS OF BLACKLEGGED TICKS   Ixodes scapularis, the blacklegged tick, is …MORE

Lyme Disease is Causing a Mental Health Crisis:...

By Kerry Heckman Note: This post discusses self-harm and suicide. If you feel suicidal or a danger to yourself or others, PLEASE call the National Suicide Prevention Lifeline: 1-800-273 TALK (8255),or text “HOME” to 741741 …MORE

The Time Warp of Tick-Borne Illness

by Jennifer Crystal   I’d already lost three years of my life to illness. Then I got a taste of resumed independence and health, only to have those intimations of well-being quashed once more. The …MORE

Treating Instead of Denying Yourself

by Jennifer Crystal Spring is a time of rebirth and renewal.  Many people engage in some kind of spring cleaning, whether it is airing out their homes or themselves. People open their windows and shake …MORE

Dear Lyme Warrior…Help!

By Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Below are her responses to a few recently received questions. Do you have a question for Jennifer? If so, email …MORE

Spring REALLY Will Come

by Jennifer Crystal This time of year can be a tease. With daylight savings time, the sun is suddenly brighter, and there are hints of warmer weather coming, Not surprisingly, we start to think it’s almost …MORE

GLA POV: Ability of Stationary Phase Persister/...

by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA Ying Zhang, Ph.D., a Global Lyme Alliance (GLA)-funded investigator, and his team at Johns Hopkins University just published a seminal study in the journal Discovery Medicine titled …MORE

Be a Victor, Not a Victim

by Jennifer Crystal Many patients of tick-borne disease take years to get diagnosed. A lucky few ones find a bull’s-eye rash or an embedded tick, go to a physician who just happens to be Lyme …MORE

Video Interview with Dr. Neeta Connally at WCSU

Dr. Mayla Hsu, Ph.D., Director of Research and Science at Global Lyme Alliance interviews Dr. Neeta Connally, Ph.D., medical entomologist, associate professor and Director of the Tickborne Disease Prevention Laboratory at Western Connecticut State University. …MORE

GLA: Lyme Disease Research Symposium 2019

HIGHLIGHTS FROM GLA’S 2019 LYME DISEASE RESEARCH SYMPOSIUM WITH TOP LYME RESEARCHERS   by Mayla Hsu, Ph.D., Director of Research and Science, GLA (pictured: GLA grantee Dr. John Aucott, GLA’s Dr. Mayla Hsu, GLA SAB …MORE

What Does it Mean to Herx?

by Jennifer Crystal Sometimes when I’m describing tick-borne illness, I feel like I’m speaking a foreign language. Most people have heard of Lyme disease—though too many mistakenly call it “Lyme’s” when there is actually no …MORE

Request for Information: Input on NIH Tick-born...

Below is a letter from Global Lyme Alliance’s Chief Scientific Officer in response to the NIH’s request for information to their Tick-borne Diseases Strategic Plan   As Chief Scientific Officer of GLA, I herewith respond …MORE

Lyme Isn’t a Choice

by Jennifer Crystal Please don’t give in to denial and fear. If you think you might have a tick-borne disease and have been avoiding going to an LLMD, or if you have been diagnosed with …MORE

Don’t Settle For Good Enough

by Jennifer Crystal In life, we’re often told not to settle. We don’t want to take a job or enter a relationship simply because it seems good enough. Doing so might bring short-term gains, but in …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Here are her answers to some recently received questions. Do you have a question for Jennifer? Email her at jennifercrystalwriter@gmail.com. …MORE

Financing Tick-Borne Disease

by Jennifer Crystal Having Lyme disease is expensive. It can take a toll on you in more ways than one. Below are some resources and insights to help you or the patient in your life. …MORE

Can’t Versus Shouldn’t

by Jennifer Crystal “Should” is one of my least favorite words. Society gets us caught up in the idea of what we “should” be doing—we should work more, exercise more, take on more—and that puts …MORE

A Different Kind of Lyme Journey

Brooke Procida Takes to the Road to Promote Lyme Disease Healing   Many of us have embarked on cross-country adventures with plans to enjoy America’s superb national parks, cultural landmarks and regional cuisine. But Brooke …MORE

A Tribute to Rick LaPierre, Our Friend and Advo...

Remembering our friend who advocated for patients with chronic illness   By Diane Blanchard, Vice Chair, GLA Global Lyme Alliance (GLA) wants to say a fond goodbye to our dear friend, Rick LaPierre, who was …MORE

Starting Small in the New Year

by Jennifer Crystal New Year’s Day is supposed to be a time of renewal. People celebrate and make resolutions for a fresh start. But for Lyme patients and those with chronic illness, New Year’s can …MORE

Podcast: Outbreak News Interview on Lyme Diseas...

Robert Herriman with Outbreak News interviews GLA’s Chief Scientific Officer Timothy Sellati, Ph.D. to discuss Lyme disease, the Tick-borne Disease Working Group, and the IDSA   Read the complete transcript below or listen to the …MORE

Hope For the Holidays

by Jennifer Crystal The holidays are supposed to be the happiest time of the year. But for many people with chronic illnesses—and others suffering in different ways—the holidays can be really difficult. If you’re bedridden …MORE

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