Top 7 Science-Based Events to Impact Lyme Disea...

GLA’s Chief Scientific Officer and Director of Research and Science identified the Top 7 science-based events to impact the Lyme disease community in 2018   Connection Between Lyme Disease and Depression GLA-funded investigator, Brian Fallon …MORE

Meet the Researcher: Catherine Brissette, Ph.D.

MEET THE RESEARCHER IS A BLOG SERIES TO INTRODUCE GLA-FUNDED LYME DISEASE RESEARCHERS MAKING A DIFFERENCE IN THE FIGHT AGAINST LYME DISEASE. #MEETTHERESEARCHER NAME: Catherine Brissette, Ph.D. TITLE: Associate Professor, Biomedical Sciences INSTITUTION: University of North …MORE

Together in Partnership: Giving thanks to an am...

With 2018 drawing to a close, I want to take a moment to thank you for being a part of our community. Your generous support—whether in research dollars, program participation, or simply standing in solidarity …MORE

GLA Counters IDSA’s Criticisms of Tick-Borne Di...

GLA’s Chief Scientific Officer Provides Evidence-based Rebuttal of IDSA Letter to Head of HHS and Tick-Borne Disease Working Group Report   by Timothy J. Sellati, Chief Scientific Officer, Global Lyme Alliance Last month, the Tick-Borne …MORE

The Value of Visualization

by Jennifer Crystal When I was bedridden with Lyme disease and two of its co-infections—babesia and ehrlichia— people sometimes asked if I had tried meditation. Usually, tired of unsolicited advice from yet another person who …MORE

A Marathon Accomplishment by Team GLA Runners

Completing the TCS New York City Marathon, all 26.2 miles of it, is an amazing feat for anyone, let alone for those who suffer from Lyme. Yet last month, five Lyme warriors did exactly that, …MORE

Avoiding Reminders Until You’re Ready

by Jennifer Crystal When I was very sick with Lyme disease and two of its co-infections—specifically, babesia and ehrlichia—friends invited me to a Warren Miller ski movie. Every season, the renowned filmmaker put out a …MORE

A Different Kind of Denial

by Jennifer Crystal In my recent post The Danger of Denial, I spoke about the consequences of denying symptoms or diagnoses when battling serious illness like tick-borne disease. For years I ignored my health issues, …MORE

Five Warriors Tackle the Ultimate Road Race for...

Five runners gave new meaning to the term “Lyme warrior” on Sunday, November 4, 2018, as they completed in the largest marathon in the world—the TCS New York City Marathon. Representing Global Lyme Alliance’s first …MORE

Requests for Tick-borne Disease Research Reach ...

by Mayla Hsu, Ph.D., Director of Research & Science, GLA It is no surprise that when funding for research lags, associated progress in science and medicine slows. Perhaps no area of health research illustrates this …MORE

New Research Article, “Ticking Bomb” Offers Int...

A study by Igor Dumic and Edson Severnini entitled “Ticking Bomb: The Impact of Climate Change on the Incidence of Lyme Disease” published in Canadian Journal of Infectious Diseases and Medical Microbiology describes the relationship …MORE

Holidays: Relishing the In-Between Times

by Jennifer Crystal The build-up to Halloween is always an exciting time for kids. There’s so much anticipation—what will I be? What will my friends be? How much candy will I get? After the final …MORE

Highlights from LDA/Columbia Lyme Disease Confe...

Highlights from LDA/Columbia 19th Annual Scientific Conference Lyme & Tick-Borne Diseases: Turning the Corner Through Research   Global Lyme Alliance (GLA) recently attended a conference jointly organized by Lyme Disease Association, Inc. and Columbia University. The meeting …MORE

GLA POV: Essential Oils as Treatment Against Ly...

by Mayla Hsu, Ph.D., Director of Research and Science, GLA Global Lyme Alliance’s Director of Research and Science offers perspective on newly published research on using essential oils to treat Lyme disease   Global Lyme …MORE

Dear Lyme Warrior … Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Here are her replies to questions she has recently received. Do you have a question for Jennifer? If so, email …MORE

GLA POV: Antimicrobial Action of Calprotectin T...

by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA GLOBAL LYME ALLIANCE’S CHIEF SCIENTIFIC OFFICER OFFERS PERSPECTIVE ON NEWLY PUBLISHED GLA-FUNDED RESEARCH OUT OF JOHNS HOPKINS BLOOMBERG SCHOOL OF HEALTH   A Global Lyme Alliance (GLA)-funded …MORE

Taking Stock of Tick Threats

by Mayla Hsu, Ph.D., Director of Research and Science, GLA “Tickpocalypse!” “The Year of the Tick!” “A Tick-ing Time Bomb!” These are all recent clickbait headlines that cause us fear and anxiety. But how do we …MORE

Scheduling Life with Lyme Disease

by Jennifer Crystal Flexible vs. rigid? How keeping to a schedule can impact one’s life with Lyme disease.   In 2007, I suffered a severe relapse of Lyme and two of its tick-borne co-infections Babesia …MORE

Meet the Researcher: Ying Zhang, M.D., Ph.D.

MEET THE RESEARCHER IS A BLOG SERIES TO INTRODUCE GLA-FUNDED LYME DISEASE RESEARCHERS MAKING A DIFFERENCE IN THE FIGHT AGAINST LYME DISEASE. #MEETTHERESEARCHER NAME: Ying Zhang, M.D., Ph.D. TITLE: Professor at Department of Molecular Microbiology …MORE

The Idea of Hope

by Jennifer Crystal Hope is a tricky concept for patients with chronic illnesses. It is something everyone—healthy or sick—wants, but summoning hope is not always easy when the world around you looks bleak. Someone can …MORE

Avril Lavigne and GLA: Head Above Water Campaign

Avril Lavigne recently stated that fighting Lyme Disease has been the hardest battle she’s ever fought. If you are reading this post, we have no doubt you understand the sentiment. The Avril Lavigne Foundation supports individuals …MORE

GLA POV: Identifying Vancomycin as an effective...

by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA Global Lyme Alliance’s Chief Scientific Officer offers perspective on newly published GLA-funded research out of Northeastern University   Although the underlying premise of a recent study by …MORE

REMEMBERING ONE OF OUR OWN

by Scott Santarella, CEO of Global Lyme Alliance Kasey Passen was driven to help others in the fight against Lyme disease Some people have dreams about changing people’s lives but, through no fault of their …MORE

The Danger of Denial

by Jennifer Crystal One of the many rewards of writing this weekly blog is connecting with patients and caregivers all over the world. I receive emails from people telling me their stories and asking me …MORE

The Spectrum of Lyme

by Jennifer Crystal Just this week, I heard from yet another friend who had found an engorged tick on her child. With tick populations soaring, it’s not surprising that so many people are being bitten …MORE

To Sleep, Perchance to Dream

by Jennifer Crystal GLA writer and Lyme Warrior, Jennifer Crystal writes about her experience with “crazy dreams” as a result of neurological Lyme disease Last night I had a dream that a college friend and …MORE

Meet the Researcher: Kim Lewis, Ph.D.

MEET THE RESEARCHER IS A BLOG SERIES TO INTRODUCE GLA-FUNDED LYME DISEASE RESEARCHERS MAKING A DIFFERENCE IN THE FIGHT AGAINST LYME DISEASE. #MEETTHERESEARCHER NAME: Kim Lewis, Ph.D. TITLE: University Distinguished Professor; Director, Antimicrobial Discovery Center; Department …MORE

Enjoying the Summer While Living with Lyme

by Jennifer Crystal When I first moved to Boston, I took a Duck Boat tour of the city. As the amphibious vehicle cruised the Charles River, the driver pointed out Spaulding Rehabilitation Hospital. I looked …MORE

Forest ecology shapes Lyme disease risk in the ...

Predators, acorns, & fragmentation regulate numbers of infected ticks Public Release from the CARY INSTITUTE OF ECOSYSTEM STUDIES (Millbrook, NY) In the eastern US, risk of contracting Lyme disease is higher in fragmented forests with …MORE

Dealing with Lyme-related Fear

by Jennifer Crystal Last week I wrote about the well-founded fear of ticks which alarms us every summer, but especially now that infected tick populations are on the rise. Getting a tick bite that could …MORE

Tick Discovery Highlights How Few Answers We Ha...

By Melinda Wenner Moyer on June 26, 2018 for Scientific American As Lyme and other tick-borne diseases worsen in the U.S., new efforts seek to fill in the gaps Last August Tadhgh Rainey, division manager at the Hunterdon …MORE

Managing Fear of Ticks During the Summer

by Jennifer Crystal I’m that friend. The friend who checks out your Facebook photos and comments “tick check!” every time you post a picture of a hike in the woods, or of your child rolling …MORE

Meet the Researcher: Timothy J. Sellati, Ph.D.

Meet the Researcher is a blog series to introduce GLA-funded Lyme disease researchers, and in this case, GLA’s Chief Scientific Officer.   #Meettheresearcher NAME: Timothy J. Sellati, Ph.D. TITLE: Chief Scientific Officer Dr. Sellati has …MORE

MY JOURNEY TO A CHRONIC LYME DISEASE DIAGNOSIS

By Jordan Younger Repurposed with permission from the writer for GLA.org It’s time for a mega health update, especially if you’ve seen my Instagram over the last week or so. I have been sharing openly there about …MORE

Tribute to The Men of Lyme

by Jennifer Crystal In my blog post “Gender and Lyme: Is Tick-Borne Disease Different for Women?”, I cited a study by John Aucott, M.D., of Johns Hopkins University which found that more men than women …MORE

Things I Never Thought I Would Do Before Lyme

by Kerry J. Heckman On one hand a doctor treating Lyme may recommend antibiotics, and on the other hand, a doctor treating an autoimmune disease may recommend immunosuppressants. It’s very difficult to know which is …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Here are her replies to questions she has recently received. Do you have a question for Jennifer? If so, email …MORE

GLA Point of View on New Tick-Borne Co-infectio...

by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA Lyme disease is the most commonly occurring vector-borne disease in the United States. The number of cases reported to the Centers for Disease Control and Prevention (CDC) …MORE

Honoring the Past, Embracing the Future

by Jennifer Crystal A friend recently shared with me the news that her grandmother had passed away. “She was 97,” she said. “It’s not like we didn’t know it was coming, but it’s still sad.” …MORE

Why Isn’t There a Lyme Disease Vaccine?

by Ashley Ross from The Daily Beast  Blame its bacteria’s weird protein structure. For 25 years, Heather McKean has experienced uncomfortable, unexplainable health issues. Since she was five years old, the 30-year-old has lived with …MORE

Podcast: In The Lymelight Episode 7

A Story of Remission: Ana Saldamando Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, …MORE

Saluting the Caretakers of Lyme Patients

by Jennifer Crystal On Mother’s Day, I read a Facebook post that said “For the sake of equity, shouldn’t we show appreciation for mothers every day?” I agree. But if we’re talking equity, shouldn’t we …MORE

GLA Greenwich Gala 2018: Highlights

Global Lyme Alliance honored Lyme disease patients and researchers at its annual Greenwich Gala on Saturday, May 12 at the Hyatt Regency Greenwich. The event supports GLA’s mission to conquer Lyme and other tick-borne diseases …MORE

GLA: Lyme Disease Research Symposium 2018

Highlights from GLA’s 8th Annual Research Symposium with top Lyme Disease Researchers   by Timothy J. Sellati, Ph.D., Chief Scientific Officer, GLA (pictured: GLA’s Scott Santarella and Dr. Timothy Sellati with GLA grantee Dr. Nicole Baumgarth) …MORE

Lyme’s Life Lessons: Sonya Rolin and Tatiana Do...

INTRODUCING GLA GREENWICH GALA CO-CHAIRS: PART 3 OF SERIES   Anyone struggling with Lyme disease knows it can pretty much take over your life. It is an exhausting, socially isolating, life-altering illness that causes many …MORE

A Mother and Daughter’s 12-Year Quest for...

Introducing GLA Greenwich Gala Co-Chairs: Part 2 of Series   Not every Lyme patient is lucky enough to have a family that stands by their side when no one else will. That’s why Christina Womble …MORE

#VBGIVESBACK: STACI GRODIN

Republished with permission from Veronicabeard.com For the month of April 2018, veronicabeard.com will donate $10 from every sale to Global Lyme Alliance as part of their ongoing #VBGIVESBACK program. For over two years Staci Grodin …MORE

The Pros and Cons of Social Media When You Have...

by Kerry J. Heckman Before I was diagnosed with Lyme disease, I’d already been diagnosed with multiple autoimmune disorders. At the time, I turned to the internet to learn about diet protocols and treatment options …MORE

A Mother, A Supporter, A Lyme Warrior: Stephani...

Introducing GLA Greenwich Gala Co-Chairs: Part 1 of Series   Three years ago, Stephanie Ercegovic (pictured with husband, Brian Foster) began a medical journey that took her from one doctor’s office to the next as …MORE

Video – Living with Lyme disease: A young...

Video created by the Poughkeepsie Journal Ella Buss, 9, was diagnosed with chronic Lyme disease in 2016. Her mother and family have become advocates for Ella and others who suffer from the disease. For more …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Here are her answers to questions she has recently received. Do you have a question for Jennifer? Email her at …MORE

You’re Not Crazy—You Have Lyme

By Jennifer Crystal I knew there was something physically wrong with me, but when my blood work came back clean and I didn’t fit into any classic diagnostic box, the nurses decided the symptoms were …MORE

Podcast: In The Lymelight Episode 6

Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, yes, the “heavy” stuff, but also …MORE

Seasons of Lyme

By Jennifer Crystal The change in seasons is usually an exciting time for most, but the jump from season to season can be especially trying for Lyme patients In the past couple weeks, many people …MORE

GLA POV: FDA Clears Quidel Lyme Disease Immunoa...

by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA Global Lyme Alliance’s Chief Scientific Officer offers perspective on the new FDA approved Lyme disease blood test. The U.S. Food and Drug Administration recently cleared the Quidel company’s …MORE

What is Air Hunger, Anyway?

By Jennifer Crystal Chronic Lyme disease & its co-infections, like Babesia, can produce unique symptoms. One of them is referred to as air hunger. When I tell people I have chronic Lyme and some of …MORE

New test for Babesia approved by the FDA

by Mayla Hsu, Ph.D. Director, Research and Science Global Lyme Alliance Screening the blood supply for infectious microbes should be an obvious and ongoing health sector priority, especially for those microbes known to cause disease. …MORE

Could a pathogen be the cause of Alzheimer’s di...

By Philip Perry Originally published on bigthink.com For the last 40 years, a minority of researchers have considered the notion that a pathogen might be behind Alzheimer’s disease. In 2011, Judith Miklossy (former GLA Scientific Advisory Board member) and fellow …MORE

Are Mold and Mycotoxins Compromising Your Recov...

By Jennifer Crystal When I was in elementary school, I developed a barking cough every spring. Loud, disruptive and persistent, the cough drew annoyed looks from teachers and students alike. Hearing me coming down the …MORE

GLA Point of View on “First Multiplex Tes...

by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA Advances in Serodiagnostic Testing for Lyme Disease Are at Hand …the TBD-Serochip represents an important advance and significant improvement over existing tests for tick-borne diseases (TBDs), which …MORE

Coming to Terms With the Truth About My Health

by Emily Croot #MyLymeLife Learning to acknowledge my Lyme disease is a powerful gift that only I can give to myself I recently rewatched one of my favorite TED talks, Susan David’s “The Gift and …MORE

Feed Your Body to Fight Lyme

by Kenzie Vath It has been a long nine years since I was diagnosed with Lyme disease. I have been suffering from chronic Lyme for twice as long or over 18 years. After my diagnosis, …MORE

Learning to Love Lyme/ A lesson in self-underst...

By Jennifer Crystal The recent celebration of Valentine’s day got me thinking about past posts I’ve written about the holiday. I’ve written about various matters of the heart: about Lyme carditis and about Valentine’s Day as …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every few months, Jennifer Crystal devotes a column to answering your questions. Here are her answers to questions she has recently received. Do you have a question for Jennifer? Email her at …MORE

What’s In a Name? When talking about Lyme...

by Jennifer Crystal Before becoming so debilitated by illness that I could not work, I was a high school English teacher. My ninth grade students read Shakespeare’s Romeo and Juliet, and I’ll never forget our …MORE

GLA Point of View on New Lyme Disease Study

by Timothy Sellati, Ph.D., Chief Scientific Officer, GLA A study funded in part by Global Lyme Alliance could spur further investigation into the cause of persistent symptoms, a source of medical controversy. A controversial aspect of …MORE

CureTalks – Listen Now

Highlights from the International Lyme and Associated Diseases (ILADS), 18th Annual Scientific Conference – Boston Lyme disease is an illness caused by the bacteria Borrelia burgdorferi, a complex microbe known as a spirochete. Lyme disease is …MORE

In The Lymelight Episode 5

Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Limelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, yes, the “heavy” stuff, but also …MORE

Forget Ebola, Sars and Zika: ticks are the next...

by Mackenzie Kwak Ticks carry a wide array of pathogens – and environmental changes mean they are spreading Since the beginning of our species we have been at war. It’s a continuous, neverending fight against the …MORE

My #1 Headache Trigger? Lyme disease

By Jennifer Crystal Skiing has always been part of my life. I went to a college in Vermont that had its own ski run. After graduation, I moved to Colorado to teach high school, and …MORE

We Are the World: What I Learned About the Glo...

By Jennifer Crystal It’s frightening that tick-borne disease is so globally prevalent. But I’m encouraged that so many doctors and scientists are studying the problem and sharing their findings. As 2017 drew to a close, …MORE

Not Immune

by Erin Walker Something is Not Right   As the wife of PGA TOUR player and major winner Jimmy Walker, I am used to supporting him during challenges. In April of this year, my husband …MORE

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