2017 - Global Lyme Alliance 2017 - Global Lyme Alliance

Making the Holidays Work For You

By Jennifer Crystal Many people with Lyme disease don’t have the physical capacity to celebrate the holidays. But that doesn’t mean you can’t enjoy them! Here are some tips to work around your illness during …MORE

GLA POV: Advances in Serodiagnostic Testing for...

by Timothy J. Sellati, Ph.D. Chief Scientific Officer Global Lyme Alliance GLA Point of View on “Advances in Serodiagnostic Testing for Lyme Disease Are at Hand” published in Clinical Infectious Diseases   In 2016, a scientific …MORE

Ticks Are a Year Round Threat: Don’t Let Lyme d...

By Jennifer Crystal Writer Jennifer Crystal discusses common Lyme disease misconceptions. Many are surprising! Read on to ensure you are up to date. In late November, a friend told me she’d just found an engorged …MORE

Chronic Illness is a Big Waste of Time

by Kerry Heckman #MyLymeLife Every Sunday evening I get out my pill organizer and about 20 bottles of medication and supplements. I set up a station at my table and start dividing pills into little …MORE

In The Lymelight Episode 4: Things I wish I kne...

Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Limelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, yes, the “heavy” stuff, but also …MORE

How Chronic Lyme Disease Changed My Life

by Skye Cowie How a professional athlete at the start of her career was sidelined by chronic Lyme disease People always say that life can change in a blink of an eye, but I never …MORE

Chronic Lyme Disease Series: Bryce’s Story

Reprinted with the permission of itslyme.com #MyLymeLife Doctors tested me for MS, ALS, Lupus, Lyme disease and vitamin deficiencies but everything kept showing up normal. When I was 18 I got very sick with a flu-like …MORE


By Lori Dennis I’ve been in the Lyme world for several years now. And if there’s one palpable emotion that reverberates throughout this community … it’s anger. For reasons we all understand, Lyme sufferers and …MORE

Highlights from ILADS Boston 2017

by Jennifer Crystal A Lyme Warrior’s take on ILADS Boston 2017 Tick-Borne Diseases: The Global Perspective   This past weekend, November 9 through 12,  I had the opportunity to attend the International Lyme and Associated …MORE

Video: GLA CEO Scott Santarella’s speech ...

Scott Santarella’s speech from the gala highlights GLA’s mission and some notable accomplishments in the past 12 months Good evening. I am Scott Santarella, CEO of the Global Lyme Alliance. It’s an honor to be …MORE

Dear Lyme Warrior…Help!

By Jennifer Crystal Every couple months, Lyme Warrior Jennifer Crystal devotes a column to answering her readers’ questions. Here are her answers to questions she is frequently asked. I found a bullseye rash, but my …MORE

In The Lymelight Episode 3

Welcome to In The Lymelight: a show about…well…Lyme Disease.   In the Limelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, yes, the “heavy” stuff, but …MORE

How Pets Help Us Heal

by Kerry Heckman #MyLymeLife It’s a proven fact that pets help us heal. Just petting your animal all by itself is known to lower blood pressure. It will also release the relaxation hormone oxytocin in …MORE

Podcast: In The Lymelight Episode 2

Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, yes, the “heavy” stuff, but also …MORE

Bursting the “Woods of New England”...

by Jennifer Crystal THE COMMON MYTH THAT LYME DISEASE ONLY EXISTS IN NEW ENGLAND. Last summer, a friend who lives in Oklahoma found a classic bullseye rash on her seven-year-old daughter. “That’s a spider bite,” …MORE

Chronic Lyme Disease Series: Chelsea’s Story

Reprinted with the permission of itslyme.com #MyLymeLife My Lyme disease story starts two years ago. At 27 I was fully devoted to my career and would blow off steam from a long day’s work at …MORE

Podcast: In The Lymelight

Welcome to In The Lymelight: a show about…well…Lyme Disease. In the Lymelight aims to bring humor and knowledge to an otherwise somber topic with biweekly expert interviews that include, yes, the “heavy” stuff, but also …MORE

The Dangers of Playing Doctor

by Jennifer Crystal Being a Lyme-literate patient doesn’t mean you’re a Lyme-literate doctor. It’s important to know the difference.   Remember the old TV ad where the actor says, “I’m not a doctor, but I …MORE

Post Traumatic Growth: Reframing the Trauma of ...

by Jennifer Crystal Jennifer Crystal discusses how you can grow from chronic illness trauma and how it can change your life for the better.   After reading one of the most intense chapters of my upcoming memoir—about …MORE

Should I Tell My Employer I Have Lyme Disease?

by Jennifer Crystal The chronic illness conundrum. When personal issues enter the workplace.   One of the many factors that led to my 2007 relapse was a huge research project I was doing for the …MORE

Chronic Lyme Disease Series: Kelly’s Story

By Kelly Gibson Reprinted with the permission of itslyme.com #MyLymeLife With modeling, I was on my feet 8-12 hours a day on jobs or running from casting to casting, and was under severe pressure from …MORE

Lyme Disease: The View from Canada

by Lori Dennis #MyLymeLife Lori Dennis shares insight into the Lyme madness facing Lyme patients in Canada   Ever since my adult son fell ill with Lyme in the fall of 2012 and we were …MORE

Dear Lyme Warrior … Help!


Natural Isn’t Always Better: Getting Real About...

by Jennifer Crystal Our society’s focus on living naturally has created a stigma around the “dangers” of pharmaceutical medications. But for patients with complex illnesses, like Lyme, it’s not that simple.   One of the most …MORE

A Lyme Warrior Bites Back

Heidi Buono wants others to have a fighting chance against Lyme disease. She is raising awareness about Lyme and other tick-borne diseases through her “Bite Back Against Lyme Run-Walk” in Albany, NY.   Nine years …MORE

Adjusting to a Lyme Diet

by Emily Croot #MyLymeLife Learning to Love What There is to Eat When You’re on a Lyme Diet   For anyone familiar with the Lyme diet, you will know that while it is a useful …MORE

Partisan Politics in Lyme Disease

by Jennifer Crystal This past year we’ve seen our country’s politics become sharply divided, even though our politicians are supposed to be working together for the greater good of the American people. Watching the news, …MORE

Podcast: tick bite prevention

Our Director of Research and Science, Dr. Mayla Hsu talks to us about tick bite prevention, and what you can do to protect yourself from tick-borne infections.     Transcript below: Lindsy: Welcome everyone, I’m …MORE

Tough Mudder and Lyme Disease

by Scott Santarella, CEO, Global Lyme Alliance I have always been intrigued by the endurance event concept and its connection to charity fundraising. More specifically, I have been a huge fan of Tough Mudder, which …MORE

Care Versus Overcare: A Fine Line

by Jennifer Crystal Well-meaning Lyme caregivers can easily cross the line from care to overcare. Here are some simple rules to follow for both patient and caregiver.   Recently a friend was going through a …MORE

The Roller Coaster of Lyme Disease

by Kerry Heckman #MyLymeLife Living with Lyme disease comes with constant ups and downs   The MRI results were sitting in my email inbox a week before my doctor’s appointment. I couldn’t bring myself to …MORE

Promising New Research: PrEPping for Ticks

by Mayla Hsu, Ph.D. Director, Research and Science Global Lyme Alliance Stopping Lyme disease before it starts. Promising new research based on pre-exposure prophylaxis, or PrEP.   It’s frustrating that there are so few ways …MORE

7 Tips to Organize Your Medications

by Jennifer Crystal 7 Tips to Organize Your Medications, from One Lymie to Another   Every Sunday morning, I pull out a big bag of pills and set about organizing my medications for the week. …MORE

Tough Mudder Weekly Training Tips

By Sean Aqareva, Certifed Personal Trainer #TeamGLA Trainer Sean Aqareva of Multilevel Fitness offers weekly training tips for our Tough Mudder participants.   Hey guys, This week we are going to tone it down a …MORE

Dear Lyme Warrior … Help!

by Jennifer Crystal Every couple months, Lyme Warrior Jennifer Crystal devotes a column to answering your questions. Here are her answers to questions she is frequently asked.   Do you have a question for Jennifer? …MORE

You’re Not Alone Anymore

by Jesse Ruben #MyLymeLife My battle with Lyme Disease was easily the most difficult experience of my life. A journey that lasted almost 3 years, that included more than 15 doctors, several incorrect diagnoses, and …MORE

The Pursuit of Answers: What My Doctors Said

by Susan Pogorzelski #MyLymeLife What was the path to your Lyme diagnosis?   I’m in middle school the first time it happens. I’m 13, I think. Possibly younger. We’ve just returned from a school camping …MORE

A Letter to My Sick Self

by Bonnie van Geffen #MyLymeLife One Lyme Warrior’s Letter to Herself   Dear Me, Dear Humiliated Me, Please don’t ever call your body weak again. It had to fight so much for so long, that …MORE

When I Miss My Life Before Lyme

by Kerry Heckman #MyLymeLife Do you reminisce about your life before Lyme?   This morning my co-worker walked around to each of our offices to tell us that there were muffins the conference room left …MORE

Meditation and Lyme: How it Helps, How it Doesn’t

by Kerry Heckman #MyLymeLife Without a cure, meditation can provide a relief of Lyme symptoms.   Sometimes meditation is offered up as a cure-all for chronic illness. This is certainly not true, and occasionally dissuades …MORE

A Lymie’s View from 39

by Jennifer Crystal Birthdays and milestones can have a different meaning for Lymies and people with a chronic illness.   When I was six or seven years old, I asked a great-aunt how old she …MORE

Determination Through Despair: A Lyme Warrior S...

by Susan Pogorzelski #MyLymeLife From one Lyme warrior to another.   I’d be lying if I said this wasn’t a difficult time. I’m still struggling to recover from this disease—the raw feelings surrounding this daily …MORE

Fear of Lyme Reinfection

by Jennifer Crystal Hoping you don’t get another tick bite and Lyme reinfection this spring.   This time of year always makes me happy: the tulips come out, everything blooms, and the world feels hopeful …MORE

Lyme Moms: We Salute You

by Jennifer Crystal A tribute to the mothers of children with Lyme disease and mothers with Lyme disease, out there on the front lines fighting for awareness, research, treatment, and validation.   When I was …MORE

Loving Yourself Through Lyme Disease

by Susan Pogorzelski #MyLymeLife Living with Lyme disease can damage both your body and your soul. How do you take care of yourself, emotionally?   This May it will be five years since I was …MORE

Dear Lyme Warrior … Help!

by Jennifer Crystal Every couple months, Lyme Warrior Jennifer Crystal devotes a column to answering your questions. Here are her answers to questions she is frequently asked.   Do you have a question for Jennifer? …MORE

Why I’m Getting Dirty for Lyme Disease

by Scott Santarella, CEO, Global Lyme Alliance pictured here with GLA teammate, Lindsy Brophy I need your support for Team GLA and Tough Mudder   On Sunday, July 23rd I will Captain the Global Lyme Alliance …MORE

Fighting ‘Fight or Flight’

by Jennifer Crystal Does stress impact your Lyme symptoms? How do you react?   For a few days last week, I had trouble napping. This is usually a result of being physically and neurologically overtaxed, …MORE

Taking Lyme One Day-Minute-Second At A Time

by Jennifer Crystal How do you manage Lyme symptoms that can change day by day, minute by minute, second by second?   Last weekend in Boston we had a nor’easter. I wondered if it was …MORE

Short-Circuited by Lyme Disease

by Jennifer Crystal Understanding how everyday functions can be short-circuited by Lyme disease.   During my 2007 relapse, I was sent to a state-approved doctor who was supposed to decide if I really had Lyme …MORE

When We Build Cathedrals

by Susan Pogorzelski #MyLymeLife Finding the strength to build when your chronic illness leaves you feeling exhausted and invisible.   I recently read a powerful story by author and speaker Nicole Johnson about a gift …MORE

GLA: Lyme Disease Research Symposium Highlights

by Mayla Hsu, Ph.D Director of Research and Science, GLA GLA hosts top researchers to discuss Lyme disease research.   How can we understand Lyme disease better? Are there drugs that can kill persistent bacteria? Why …MORE

Chronic Fatigue or Feeling Tired?

by Kerry Heckman #MyLymeLife There is a difference between chronic fatigue and feeling tired. Have you developed chronic fatigue as a result of your Lyme disease?   I remember the moment when my husband said, …MORE

What’s Luck Got to Do with Lyme Disease?

by Jennifer Crystal For many Lyme disease patients, luck starts with getting an accurate diagnosis.   Whenever someone hears my story and says, “Wow, you’ve really been through the wringer,” I respond, “Yes, it was …MORE

The Mighty White-Footed Mouse

by Mayla Hsu, Ph.D., GLA Director of Research and Science What makes the white-footed mouse more mighty than a lab mouse when it comes to tolerating Borrelia burgdorferi, the bacterium that causes Lyme disease?   …MORE

Lyme Lies

by Susan Pogorzelski #MyLymeLife How does your illness speak to you?   There it is again—that voice in the back of my mind, growing louder, crushing my confidence and making me feel worse.“You’re sick,” it …MORE

Podcast: Tick-Borne Co-Infections, Bartonella a...

Bartonella is a tick-borne co-infection. As with Lyme disease, its symptoms can be debilitating.   While the most common tick-borne infection is Lyme disease, infected ticks may carry more than one kind of microbe or …MORE

Fear of Relapse

by Jennifer Crystal Is Lyme disease ever really gone from your body? Relapsing is a constant reminder and reality that the bacteria are still lurking.   I am writing a memoir about my journey with …MORE

Dear Lyme Warrior…Help!

by Jennifer Crystal Every couple of months, Lyme Warrior Jennifer Crystal will devote a column to answering your questions. Here are her answers to some frequently asked questions she has recently received.   Do you …MORE

Why You Should Never Make Fun of a Restricted Diet

by Kerry Heckman #MyLymeLife For some patients with chronic illness, including Lyme disease, a restricted diet can improve their lives. So why the ridicule?   The jokes are everywhere. There is a popular meme that …MORE

It’s OK to Be Angry

by Jennifer Crystal What role does anger play in your Lyme journey?   For the last three winters, I have had the opportunity to teach an intensive “Healing Through Writing” course at my alma mater. …MORE

The Lyme Disease Divide

How to Make Sense of Conflicting Lyme Disease Facts   by Scott Santarella, CEO, Global Lyme Alliance With the possible exception of HIV, no infectious disease in recent history has been as misunderstood and divisive …MORE

Keep It Simple: You’re Just Tired

by Jennifer Crystal Fatigue is such a central part of Lyme disease that it can be easy to overlook. Don’t.   Recently I was on the phone with a friend telling her my woes. Angst …MORE

A Matter of the Heart

by Jennifer Crystal Lyme carditis: When it comes to maladies of the heart, don’t overlook Lyme disease and its co-infections.   In the summer of 1999, after studying abroad in Paris, I backpacked with a friend …MORE

How to Be Your Own Health Detective

by Kerry J. Heckman #MyLymeLife Getting an accurate Lyme diagnosis can take years. With poor diagnostic tools and limited support patients are often forced to be their own health detectives. Here are six tips to …MORE

Groundhog Day: Casting a Shadow on Lyme Disease

by Jennifer Crystal The repetitiveness of living with Lyme disease can feel like Groundhog Day, over and over again.   When I was studying in France, I had dinner with my landlady on Groundhog Day. …MORE

Dreaming of Better Days

by Susan Pogorzelski #MyLymeLife Do you dream of the day when rest is a choice, not a need? And when your friends and family truly understand the toll that Lyme disease takes on your body …MORE

Winter Ticks Take a Toll: Rise of the “Gh...

by Hannah Staab Over the past few decades, warmer winters have been associated with major declines in the moose population. These massive and majestic animals are dying across the U.S.—from Maine, New Hampshire and Vermont …MORE

Being Lyme Brave

by Susan Pogorzelski #MyLymeLife When you’re finally diagnosed with Lyme disease there’s a feeling of hope. That hope can turn to pain and desperation as new treatments induce Herxheimer reactions.   “Does she have Lyme …MORE

Podcast: Lyme Disease and Tick-Borne Co-Infections

The most common tick-borne infection is Lyme disease. However, infected ticks also carry and spread numerous co-infections.   The newest Global Lyme Alliance podcast, with GLA’s Dr. Harriet Kotsoris and Dr. Mayla Hsu, discusses Lyme disease …MORE

Living with Lyme Brain

by Jennifer Crystal Short-term memory loss, confusion, brain fog, and word repetition are just a few symptoms of Lyme brain experienced by many Lyme patients. How has Lyme brain affected you? Listen to the audio …MORE

The Double-Edged Sword of Boredom

by Jennifer Crystal Are you bored of being bored? Pace yourself.   With the holidays over, winter is settling in to its usual slow rhythm. If you don’t love winter activities like skiing and snowshoeing, …MORE

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